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27 yrs old with Androgenetic Alopecia most probably! help!

Discussion in 'Tell Your Story' started by cocoa, May 22, 2013.

  1. cocoa

    cocoa Established Member

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    Hello,

    I am 27 yrs old and I think I've been loosing my hair since I was 13, I remember people and a mean hair dresser pointing it out to me ("BUT! YOU ARE LOSING YOUR HAIR!) but I didn't pay attention to it, because I had very thick hair at the time. Now I realise I've lost a lot, it has thinned a lot too. I have several "bald spots" depending on where I try to put my hair line, and they show when I braid my hair, sometimes even when I do a ponytail... I don't know how to "fix" my hair anymore...

    Also, I live in France, so it is very difficult to find a specialist that takes you seriously. My GP does not want to here about it, a dermatologist whom I saw and told about my hair condition shrugged when I told her that I was loosing my hair severely, That I had lost a great deal of it, and that they used to be very dry, but now are very greasy, and grease back very quickly when I wash them. She shrugged, OMG, I could have cried in front of her. But my hair was still okay at the time, so this is probably why. Another dermatologist I saw only prescribed biotin, iron and something else, and said that I should book several appointments with her already, because the search for the cause is long and sometimes difficult to cure (understand, prepare your purse). And I can't really afford that...

    I'm sympathizing with a lot of you here, I read things that I've experienced, and I hope you can help me deal with this better. I go through the same feelings of unfairness, the "why me", I see very rarely women with hair loss in the streets, women my age. I've never feelt pretty, always thought I would die as an old maid, but I've had a boyfriend for several month now. I feel very lucky, but he doesn't know. I think he noticed though, he has been asking several times "are you loosing you hair?" because he saw some of the spots on my head, and also all the hair that I live around the house... Sometimes I've been wanting to tell him, but I am so afraid that he would leave me.

    My confidence is vey low, I've even developed an obsession with a girl I know, who I think is attracted, if not in love with my BF, i'm afraid she's going to steal him away from me, I've noticed them exchange looks, I've talked to my BF, he says that I imagine things, and that he would never do such a thing to me. But sometimes, i have a doubt, and become utterly convinced that they are having an affair together. I've had nightmares about this. And even if they are not doing it now, I'm afraid that it will happen in the end, she has everything I don't have: hair, positivity, cleavage, loving friends. I'm really afraid that one day he wakes up and realises he's made a mistake and is with the wrong person.

    He's already left someone to be with me, now i'm afraid the same thing will happen to me. And the other problem is I'm a huge introvert and have difficulties to communicate. So I'm like, with all of this, how can he want to be with me, how can he love me?

    I'm also in a "waiting" type of mood, I've been like that my hole life. When I was a teenager, I was like, when I will have more cleavage, I will have a boyfriend. When I was a little older, I was like, when I will have lost weight, I will have a boyfriend. Now I'm like, when I will have more/better hair, my life will be better. But we all know it's not improving. It's getting worse. And I'm still waiting. One day I will wake up and everything will be gone, the hair, the boyfriend, the life.

    I'm going to save and get some products I saw on your web site, and hope they work for me. I will also try to find an endocrinologist who knows about hair loss. I don't know if we have a specialist in that area in france. They tend to be dermatologists.

    I'm trying to get informed on Androgenetic Alopecia, I hear it is not reversible, you can only slow the process, is it true? There is no known cure to it?
    My mother has lost a great deal of hair too, so is my dad, so there is little hope for me, but for god sake, I am a woman :(
    please help me, please make it grow back, please, please...

    But my mother has lost it at an older age, I remember she had thick hair in her mid-thirties. I guess those are the genes from my dad...
    And I have a pear-shape figure, all my sisters and my mother have breasts, which I've lost when I became anorexic 10 years ago. And when I was severely dieting, my hair got better. I'm not trying to encourage anyone to diet, but I remember i only steam-cooked my food (fish and vegetables), and my hair was very pretty as a result. Eating healthily may help some of you,you don't need to go extreme like I did.

    As soon as I started eating normally, the hair got worse. I know you'll say, why don't eat like you did then, but having someone else to cook for, it is difficult, he probably won't want to eat steam-cooked food :D!

    I hate the grease in my hair! my showing scalp is shinning! I hate it. And I've washed it a few hours ago...

    I hope this is readable, I appologize for any mistake, this is not my first language...
     
  2. psychpharm

    psychpharm Established Member

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    Hi Cocoa. I too am young (26) and I have been losing hair since I was 16. You are not alone! I don't have time to chat now but I will private message you later. Your english is very, very good so do not worry about that :)
     
  3. CKingAnswers

    CKingAnswers Established Member

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    Cocoa I know how you feel. I know it is so difficult but please try to have faith in your boyfriend. I think if he were going to leave you due to your hair loss that he would have done it already since he has noticed. HOnestly as hard as it would be, you should tell him. LIke if he asks again, say something like "I think I am...." and it's ok if you come off as upset or timid. It shows your human side and he'll know that it's really affecting you and that you're sensitive about it. Give him some credit. I think we all have a fear that our significant other won't be attracted to us due to our hair loss, or that they'd stop loving us, but it's not the case. He could end up being support for you. I really hope you can find a good endocrinologist. I think that will help a lot in identifying what could be causing the hair loss. You might be put on Spironolactone, which could help in reducing the oiliness. If you're on birth control, stop taking it. It could trigger hair loss and would definitely mask any potential hormone imbalance you could have.
    Good luck, sweetie. Hang in there and try to find the courage to tell your boyfriend. Give him a chance to be there for you!
     
  4. cocoa

    cocoa Established Member

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    Thank you girls :))

    I stopped taking birth control, but to take another that i read was given to women with hair loss, its called jasmine in France. What do you think? I could stop it but then i would have to explain him... And i don't know if i'm ready yet...

    But thank you very much for the support! My hair is also usually better when i cut it i noticed. I've wanted to shave it all to see if it grows back better :)), but i dońt think he would like that :)).
     
  5. Starfire

    Starfire Guest

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    I find that self-loathing only worsens the process of hair loss. You are probably exceptionally beautiful. It doesn't matter what attributes you feel you lack, you have to highlight the wonderful ones you already have. You have to come to terms with yourself and who you are, that is when true healing occurs. Food with iron (like fish) I have read can be good for your hair. Also nuts and healthy fats.
     
  6. cocoa

    cocoa Established Member

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    I thought I had replied to this already, my phone has probably failed to send the message. I wanted to thank you for your words of encouragement and your support, it means a lot to me. Especially since I don't have Any one to talk to about this issue. My mother, but she has never been bothered by it, she even refuses to wear a wig, because it will make her look like a hooker (her words, don't take offense). i admire her :D. so she cannot really relate to how depressed it makes me feel. So thank you, really. I'm feeling a lot more better overal ( i still have ups and downs), like all of us!

    Thanks and best wishes

    - - - Updated - - -

    Still haven't told my boyfriend either. I'm not ready yet.
     
  7. cocoa

    cocoa Established Member

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    Does anyone know what kind of alopecia starts around at puberty? Thanks
     
  8. cocoa

    cocoa Established Member

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    Update: my endocrinologist thinks i have pcos, we are waiting for the results. It kind of makes sense, it would explain why my hair felt better when i was on a diet. My mother also has had cysts on her ovaries, so she might have Pcos as well. She also has hair loss.

    I have an appointment in 10 days, i will tell you if we found something.

    If we don't find anything, i think he will suggest Spironolactone or androcur, because the hair loss is visible, but i alone will decide if i want to go down that route.

    I also have trouble assimilating iron and other vitamins, so i wanted to try that before jumping into hormonal treatments. In the mean time, i'll check for your threads on Spironolactone and androcur.

    Best ladies! :)
     
  9. cocoa

    cocoa Established Member

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    So my results only show vitamin D deffiency so far. What is needed in order to diagnose PCOS? It seems that I've had symptoms, but the hormones look pretty much normal.
     
  10. clover

    clover Guest

    I can relate to all your stories. I've just joined this site. I started losing hair at 16 but since I had thick lovely hair, no one noticed. At 22-23, I went abroad to study and I lost a lot of hair but thought it was stress cos I was very stressed there but I still had thick curly enviable hair. I came back home to india in 2010 and started noticing a wider part and facial hair and went for thyroid tests and it came back normal. I ignored the hair fall and thinning for a few years. Last august like all of a sudden I noticed my hair was SO sparse I could see my scalp in the front and couldn't wear it down anymore cos it was all strangly and horrible. I cry everyday. I went for another thyroid test which was again ok. The doctors think I'm overreacting and I just need some biotin and to be calm. I'm getting married in may and I've told my fiancé who thinks I'm overreacting and that my hair fell cos I had dandruff a lot and it'll be fine soon. But I know it's something more serious. I'm 27 now and overweight- always been, since a child. I workout and eat healthy most days but always been a big girl.
    I am very very upset. I dread going out and always tie my hair these days. I look at old photos and cry.
    I am moving to England soon. Anyone from the UK or know good doctors there who can help? Thanks!
     
  11. cocoa

    cocoa Established Member

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    I also lost a great deal of hair when i went abroad! But I found out why, it is when i started taking the pill, and one that was bad for my hair! Ah i so regret this! Also i remember a roomate taking pictures of the top of my head to make fun of my wide part. The part has filled since but its now extending on the back part of my head. And if i don't purposely Draw a part on my head, and try to put hair everywhere evenly, it just looks worse and shows diffuse thinning and scalp.

    I very rarely wear my hair down too because i know the spots will show so easily.

    I don't really now about doctors in England, i hope you find help from other girls here. My only advice would be to find a good endocrinologist, you need to test more than your thyroid, your iron, your vitamins, your hormones, ask to check if you don't have PCOS. If they don't want to you can just tell them there is history in your family and you want to be sure! LOL. That s what i did to get my appointment with the endo in the first place. I kind of forced my way in because they were full, and were not taking any new patients :).
     
  12. cocoa

    cocoa Established Member

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    Could you help me with my labs? Do you see anything that could provoke hair loss? My endo saw nothing.

    Progestérone 3,41 ng/ml
    Cortisol 315 nmol/l ( 124 ng/ml)
    D3 34-36 (after treatment)
    T4 Free 10,7 ng/l
    TSH 1,73 (2,44 a year ago)
    Oestradiol / oestrogens 54 pg/ml
    FSH plasmatic 5,4 ui/l
    LH plasmatic 5,1 ui/l
    Prolactine 22ng/l
    Delta androstedinione 6,2 (range 1,4 to 12)
    DHEA 12,9 ( range 4,1 to 28)
    Androstanediol gluconide 9,1 ( range 1,0 to 27)

    I hope you can help me !
    My endo did not see anything wrong besides not much oestrogens, just gave me a gel of it ( now switched to patches), along with androcur, even though there was nothing wrong with my androgens apparently. What do you guys think? I had to stop androcur after 6 months because it gave me insomnia.
     
  13. cocoa

    cocoa Established Member

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    No one can help? I'm having a bad hair day please.
     
  14. alohakels

    alohakels Established Member

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    Wish I could help you. I'm 25 struggling with the same thing. :(
     
  15. cocoa

    cocoa Established Member

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    I saw pictures of your hair on another forum it looks amazing compared to mine. I can't have bangs any longer. I've lost 75 percent of my hair at least. I feel so bad today. I don't Know what's the matter with me. I came here to cheer people up and now i want to Die because I can't style my hair any longer :(.

    This is so unfair.

    - - - Updated - - -

    I meant another thread not another forum, for your pictures , lol.
     
  16. cocoa

    cocoa Established Member

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    So yes I'm far from optimum levels in vit D I think my is around 36 or something. I don't Know my iron levels. Last time they were around 60, after months of supplementation. Thanks.
     
  17. cocoa

    cocoa Established Member

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    It is weird though because Im far from optimum vitamin D Level and yet, my endo discontinued the treatment. I Will have to ask to continue, i hope he accepts.
     
  18. iisara21

    iisara21 Experienced Member

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    Cocoa, I'm not sure what the reference range is for your cortisol, but if it's high, that could definitely trigger a TE.
     
  19. Eunmi

    Eunmi Established Member

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    Man, I wish my vit. d would go up already, I'm not sure on what it's at, since I've only been supplementing for about 2 1/2 months now.
    I have a severe deficiency. Mine was at 16.8
    The price I pay for living a hermit lifestyle while living in the northeastern United States!
    Still trying to get in touch with my gyn to get some blood tests done, unfortunately he won't be back until the 23rd of this month.
    I guess he wants to run a battery of tests to see how my PCOS is doing, since I haven't been re-tested for it since I was 16, and I haven't been on treatment, I want to try and naturally balance my hormones, which so far it seems to be working, since my testosterone levels came back normal according to my gp.
     
  20. Hi Cocoa, this is my first post ever here (I just joined).

    Im 29 and began losing hair a little over a year ago. I received a formal scalp biopsy and diagnosis of Androgenic Alopecia in August of last year. I also have PCOS.

    I am working with a team of doctors (general practitioner and hair loss dermatologist) and both maintain an interesting perspective regarding testosterone: 1) Check both free and weakly-bound (this gives your dr a better idea of how much testosterone is circulating through your system versus how much is attaching to testosterone receptor sites); 2) "Normal" testosterone levels mean nothing, as some women are hyper-sensitive and can develop androgen-related issues (hair loss, acne, midsection weight gain) even when labs show "normal" levels. So you may want to look into getting a more in-depth understanding of exactly how your body is processing testosterone.

    Also, my doctor told me that hormone-related hairloss CAN be reversed in women. It can take time - and you can't give up - but it can happen. I'd love to hear other's thoughts on the subject.

    I hope you're feeling better today. And I'm so sorry to hear about your boyfriend. I had an on-again/off-again relationship that recently ended (for good), and the reason I ended it was because I couldn't bear to think about my ex comparing me to other girls with hair. He swore up and down that he loved me for me, but Im having a lot of trouble managing my emotions and feeling like "me" with this whole process. I completely sympathize with your mindset, and I hope both of us can find ourselves in a better mental place soon.

     

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