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Androgenetic Alopecia Or Cte? Seriously Losing My Mind.

Discussion in 'Women's General Hair Loss Discussions' started by dazedandconfused, Sep 1, 2017.

  1. dazedandconfused

    dazedandconfused New Member

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    Hi all,
    After weeks of reading through tons and tons of posts on this forum - I've decided to finally join myself to perhaps get some wise advice or words of encouragement from someone who might be going through the same thing. I'm on the verge of a nervous breakdown because of this. I'm sorry if this is too long.

    I'm a 25 year old mother of 1, and for roughly 2 1/2 years I've been dealing with what I believe to be substantial hair loss. Just a bit of history - my mother has very thinned out hair, she was never formally diagnosed with Androgenetic Alopecia but I can't imagine what else it could be? Almost 40 years ago she had a terrible miscarriage and developed Sepsis, the doctors didn't think she would survive. She thankfully did, but I can't imagine how traumatic that was on her body. Doctors said it was her thyroid causing her hair loss and excessive skinniness. So if someone asked if there is history of hair loss, I would have to say yes?
    Anyway - My son was born in January of 2014 - I gained a beautiful mane of hair during the pregnancy and I believe it also grew the longest I ever had it. Everything was fine and dandy - until around April of 2015, when I washed my hair in the shower. I was literally pulling out GLOBS of hair. I mean, they would cover almost my entire hands. I thought this was a bit strange, but since I've always had tons of hair I didn't think anything of it. I truly believed ''Oh, it's just my hair from the pregnancy falling out, no big deal''. Also at around this time, I finally finished breastfeeding my son. I thought perhaps I lost some nutrients from breastfeeding so long and perhaps my hormones were being out of whack because of it. Once again, not really taking much action.

    Towards the end of 2015, going into 2016 I wasn't losing globs of hair like I initially did, but I did finally begin to notice I was shedding. Whenever I would shower and wash my hair, a good amount of strands would come out. Whenever I brushed my hair, same thing - I'd have at least 10 hairs or more in my brush even though I lost a good 20-30 in the shower. Fast forward to now when I'm really doing everything in my power to prevent the shedding, it still happens. Some days it'll be less, some days it'll be more - but to me this is still NOT normal. I made my first dermatologist appointment in June of 2017, but I immediately regretted it since he didn't even check me thoroughly. He said he doesn't see anything wrong, didn't listen to me when I requested a biopsy and simply telling me to start up on some biotin and if I didn't see results to start on minoxidil.

    I went to an endocrinologist in August of 2017 and tested everything under the sun. Much to the young female doctors protest, this time I was much more assertive and got what I wanted. These are my results for what most people suggest to check for hair loss:
    • DHEA SULFATE: 294.6
    • FSH: 7.8 & LH: 9.5
    • HEMOGLOBIN: 12.9 & HEMATOCRIT: 38.1
    • Thyroid Tests: T-3, T-4, and Thyroid Stimulating Hormone (TSH):
    • T3, TOTAL: 120
    • FT4: 1.16
    • T4: 7.6
    • TSH: 1.17
    • IRON: 60
    • FERRITIN: 68.0
    • TOTAL IRON BINDING CAPACITY (TIBC): 407 (the reference range is between 225-390, which means this is high. I wasn't told this, I had to find it on my own)
    • And finally, VITAMIN D, which IS low at: 19.3

    I didn't feel that the endocrinologist took me seriously and neither did the dermatologist. I've utterly lost hope in doctors and I've felt hopeless in myself because of it. The endocrinologist said she has no proof the low levels of vitamin D can attribute to the hair loss.
    Nonetheless I began taking D3 supplements immediately. The only other therapy I did for myself was I began taking Dr Berg's hair formula for about 2 months now (https://shop.drberg.com/hair-formula-regular) and I can't really say if I see much of a difference, besides I might be shedding a bit less and my nails are stronger than ever before. The only time I see any ''baby hairs'' are when my hair is clean and air dried, but many of this ''new-growth'' appear so fine it's barely noticeable, some of them are wiry frizzy and misshapen. It's so strange - they look like some cheap plastic doll hair that went wrong during manufacturing, instead of straight, it's wavy! Is this a sign of miniaturization attributed to Androgenetic Alopecia? Or is this CTE? In about 2 years I've lost 50% of my hair. It's growing longer, but the volume stays the same and I see no signs of improvement, in fact I think it's gotten worse - when I let my hair down and fall naturally - there is now a space part on the back crown area of my head. I lost hair throughout my head, but it's mostly top and crown.

    If anyone has any advice or tips on what I should do next, literally anything at this point would help. I'm seriously depressed over this, I've been struggling with self-esteem issues and depression ever since puberty (13 years old) and I can't fathom losing my hair at such a young age. Below I have a few pictures attached - I'm sorry if they aren't the best of quality, but it's all I have.

    Thank you.
     

    Attached Files:

  2. Meliss9

    Meliss9 Member

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    Hi! I had to log in to reply to you cuz reading your story I feel like it's mine. I had 2 babies one in 2014 and one in 2012.. I'm trying to make a long story short but after doctors, dermatologists, endocrinologist, wig stores and them telling me the same thing nothing is wrong take vitamins and try rogaine which I refuse to do... after my 2nd baby was worse then the 1st as far as hair loss.. I even wanted a third but what's stopping me is my hair... idk what else to do anymore as well. I don't suggest using rogaine. I suggest doing your own research.. I will tell you to use Viviscal professional it's a hair supplement and I've been taking it and you don't ever have to stop... your hair honestly looks ok to me but they tell me the same thing (thank god).. I know we don't see it ourselves and this ruins my life everyday.. I have hair pieces and extensions and never wear them.. I think it's a security thing bc they actually pull your hair out as well... I wish we can talk bc I can't complain to anyone about it nor do I even speak to ppl about this.. I've lost so much hair and I can't believe how bald I would have been if I didn't have as much as I did not knowing I had that much.... can you private message me?
     
  3. Meliss9

    Meliss9 Member

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    Btw I also have low iron and low vit d I take that as well
     
  4. Meliss9

    Meliss9 Member

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    Sorry I just remembered again I also do an onion juice castor oil mix and don't use dyes anymore I use 100% pure henna
     
  5. Amal07

    Amal07 Member

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    Your story sounds a lot like mine although I have no kids. I have lost more than 50% of my hair in more than one year. My mother also has thinned out hair concentrated more on top but she has never been diagnosed.I almost have no loss on top, my part still looks super tight, but underneath, temples, sides and especially nape of neck are hit hard. I haven't been diagnosed too... I also get regrowth like you but it seems thin and gives me no coverage. Since your top and crown are hit the most that sounds to me like Androgenetic Alopecia triggered by giving birth but on the other hand you have periods of shedding, not constantly which can mean cte... or even maybe combination of these two. I'm really not sure.. But I hope that you will find solution for your problem. I'm also staying away from rogaine but instead I put castor and rosemary oil on my scalp, rinse it with nettle tea and wash it with burdock and saw palmetto shampoo.
     
  6. Jtilly

    Jtilly Established Member

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    This post is quite old so not sure if you will see this or not. Our conditions sounds very similar minus a pregnancy for me. But very hormonal in nature. Wondering if you ever got any answers or resolve to your hair loss?
    My hair was mildly thinning but I didn’t think much of it because I always had so much of it. It was mega thick in December 2017, by February and April I noticed a difference. I went in for hormone testing just to be sure and I was diagnosed with early menopause and put on estradiol. My body did not react well to the hormones at all. Also dabbled with progesterone hoping to relieve bad side effects of estradiol. By 6 weeks in my hair started shedding more. They took me off hormones because of all the side effects I was having. That was 4 weeks ago. My hair is massively shedding now more than ever. The last OB I saw said I should take birth control pills, but I am terrified of more side effects, plus I’ve seen how many girls lose their hair because of birth control pills! My testosterone levels and dht are not alarming high, in fact they are low, but they must be high compared to my female hormones estradiol and progesterone.
    Your experience with the type of hair loss you describe, how it has progressed and the pictures look and sounds exactly like mine.
    So I’m guessing it’s a hormonal imbalance? And wondering if you were able to do anything about it?
     

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