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Anyone doing squaric acid treatment

Discussion in 'Women's Alopecia Universalis & Totalis' started by Kanvor, Sep 1, 2013.

  1. Kanvor

    Kanvor Guest

    Hello. I am new to all of this and am completely overwhelmed. I started massively losing my hair in September 2012 and within a two week time period I was completely bald. I am now receiving squaric acid treatments to hopefully restart the hair growth. The doctor said it could take up to two years to see if it works. Has anyone done this treatment or have seen it actually work? It's not painful, just expensive and time consuming (I have to have someone else apply it weekly).
     
  2. dancer

    dancer Experienced Member

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    Hi Kanvor

    Welcome to the forum :)

    Sorry to hear of your hair loss, loosing your hair quickly is devastating I know.
    Sorry I cant help you with your question but I wish you the best of luck with the treatment
     
  3. jacqui77

    jacqui77 Guest

    Hi Kanvor,
    I have AT so I would not be a candidate for squaric acid. From what I've heard, the less hair loss there is, the more successful the treatment is. The more hair loss, the less successful. Good luck on your journey.
    Jacqui
     
  4. i have used squaric acid. it is a process that takes a lot of patience. i started at 0.1% for 3 months. when nothing happened, my doctor upped the dosage to 0.2%. after another 3 months with no results, i went to 0.3%. after about 4 months of using 0.3% squaric acid, hair began to grow. my whole head was covered with hair. unfortunately after 10 weeks of hair growth all the little hairs fell out. I tried again with a newly bald head. after another 3 months of using 0.3% hair began to grow, but just like the first time...all the hairs fell out at week 10. i do not know why i cannot get past week 10! it is so frustrating. both times of regrowth, i got excited and hopeful. i was crushed both times when the new hairs fell out. i now have decided to take a break from trying anything (i've used topical steroids, some hair growth liquid that i think was called minoxidle, steroid shots, and lastly squaric acid). i have been Alopecia Universalis for 13 months now. I started with Alopecia Areata at age 33 (out of the blue!!!), then Alopecia Universalis at age 35. i am 36 now with not a hair on my body (well, except for two eyelashes that randomly sprouted out of my right eye a couple of weeks ago). what is your dosage? how long have you been using squaric acid?
     
  5. sunflower13

    sunflower13 Guest

    Drying to find dermatologists or clinics that do dpc treatment in Canada any help?

    Where did you do this treatment at. I'm trying to find a place in canda, preferably in the alberta area. Any advice on what dermatologist to contact
     
  6. Kanvor

    Kanvor Guest

    squaric acid

    I'm in Florida, and go to a specialist in Miami.
    The treatment is driving me crazy! I had some growth and then suddenly it was all gone. I am so frustrated and depressed. I am so tired of going to my regular doctor every week for the application. I wish I knew WHY this happened.
     
  7. dancer

    dancer Experienced Member

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    I am really sorry to hear that all your regrowth has fallen out, it is devastating :grouphug: The unpredictability of alopecia is so frustrating, I had treatments with no results and then regrowths when not receiving treatments :wacko:
     
  8. starshine

    starshine Guest

    My dermatologist has just started this treatment only with DCPC. He applied a test spot on the back of my head but I have had minimal reaction so far. I am going weekly and he said we are going to cautiously up the dose until I get a decent reaction. I was really scared to try this as I know what Joann went through, but he assured me we would be very cautious. Kanvor, let us know how you make out this time.
     
  9. Joann

    Joann Moderator

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    Starshine, you should be okay as long as he stops at the concentration where you get a decent reaction. Ten years ago when I underwent this treatment the concentration was upped even when my reaction was significant. It was thought at the time that the concentration had too be brought up to a certain level to get regrowth. They have now learned that once you react you can stay at the concentration you reacted too. It's not necessary to keep bumping it up.

    I don't know if they follow the same procedure in that I couldn't shampoo my head until the next day. If that is still the case & you notice you are quite uncomfortable with the itch and burning, have swollen glands or are feverish do shampoo you head immediately. When I had the adverse reaction I foolishly didn't do this. An indication of how much I wanted my hair to grow back never realizing I was doing more harm than good to myself.

    I know too that some patients on this treatment take Benadryl before each application. I'm not sure if all derms go along with doing this prior to application. You could see what your derm says about it.

    Good luck with it! I hope you are successful on the treatment.

    Joann :grouphug:
     
  10. starshine

    starshine Guest

    Thanks Joann. That makes me feel a little better and I am glad you told me about washing if the reaction is too bad. I am concerned that I have had very little reaction to the sensitization, which I think was the strongest at .02 percent. Do you know if that means I will probably not react?
     
  11. Joann

    Joann Moderator

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    Hi starshine,

    Just recalling my own experience with it. When they did a small patch test at the highest concentration I did get redness. I started going in weekly from that point. The first week they started at the slowest possible concentration. In that application the response was minimal but as they started upping the dose each week I started to react more and more. The whole idea at the time being to get to that strongest dose. I had my adverse reaction before that ever happened.

    I was told it could take as along as 6 months to see regrowth but I never got that far as the reaction happened 4 months in.I might have been quick to respond as I have had eczema in the past and sensitive skin.

    You may just need more time to react. The good news for you is that when you do react you will not have to go any higher in concentration so it will be more tolerable and I feel safer for you.
     
  12. starshine

    starshine Guest

    Thanks so much Joann. That is exactly what he is doing, but he said we will definitely stop increasing as soon as I show a decent reaction. I am really surprised as I also had severe hand psoriasis when younger and have very fair sensitive skin.
     

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