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back on meds :( WITH PICS!!!

Discussion in 'PCOS Community' started by hwag5149, Feb 26, 2009.

  1. hwag5149

    hwag5149 Guest

    I went to the dr today and she was SO MAD that I had gained the whole 55 pounds back that I lost after getting on meds a year ago. I told her I hadn't changed any of my eating habits while I was on or off the meds and so she wanted me to go back on metformin because she thinks that is why I gained the weight back. I told her I would as long as it was the XR kind. She also REALLY wants to me see an endo that specializes in pcos at UCLA. She let me do a ton of labs today. T, free T, DHEA, estrogen, progesterone, prolactin, metabolic panel, insulin, and a few others. It took 9 vials of blood.

    She was pretty frustrated and was like "man, we're exactly where we were a year ago... just with less head hair and more body hair." I thought it was funny, but it really isn't. It's frustrating!!!

    Anyone grow hair just from taking met?
     
  2. kimm

    kimm Guest

    Re: back on meds :(

    Big hug

    I think you're doing the right thing.

    You've given this time to work itself out without the meds and the hig androgens are still making their presence known unfortunately.

    I know we're all different, but my experience with extended release met has been really good. I'm fairly positive it hasn't made my hair loss worse and I think it's helped some with the unwanted hair as well. I really think it's slowed down from the met and even more from the saw palmetto.

    It's also great that you're getting another blood draw done. Having all those levels will give you a good picture of what's going on and a starting point to where you need to be.

    I hope this helps get your TE to finally come to an end.

    Fingers crossed that this is the beginning of the end of this nightmare for you.
     
  3. hwag5149

    hwag5149 Guest

    Re: back on meds :(

    thank you kimm :)

    Hey you're on flutamide right? When I see the endo specialist guy I kind of want to request it. The body hair is getting really really bad... my hands look like man hands now. I have thin dark hairs covering my boobs and all that. I really need it to stop. Its very hard to hold your head high when your hair is pouring out, your body and facial hair is very manly and your face is full of scars and active cystic acne. I should take a pic of the side of my face to show you. This is what it looks like when I use topical antibiotics on a daily basis. I'll go in the back and take a pic real fast.
     
  4. kimm

    kimm Guest

    Re: back on meds :(

    Hi there -

    Yes I've been on flutamide since oct 07.

    Hard to say how much it helped or didn't, since I started it 4 months post partum.

    It seemed to really help at first, but then as I got closer to a year out from my pregnancy it seemed to not work anymore. (facial hair got worse, shedding started again)

    Hopelina had a similar experience.

    I don't know if our bodies acclimated to it or what happened.

    I'm still on it and am hoping that the metformin and saw pametto will bring down the testosterone and stop it from converting into dht enough where maybe it will help again. I've been asking docs to increase my dosage but have so far been denied.

    I'm about to make an apt with the obgyn who first wrote the script, so I'm going to see what she says about increasing the dose. But if my body just keeps getting used to it, I'm not so sure if it will be worth it.

    I have had good luck epilating my arms and legs. I kept at my arm hair enough where it took a looong time to get bad again, and my body hair grows rather quick.

    I'm also noticing that my legs feel relatively smooth in the am when before they'd be visibly picky again, now that I've been on met as well.

    You have a similar androgen level that I do so, hoping that give you hope.

    I did have a point where after going on a bcp where my Total T shot up past 200! I still can't figure out if my body was converting the Estrogen to Testosterone or if it was just the progesterone. Still afraid of those things till I can figure out what happened.

    The really weird thing is that when I went to the psychiatrist a couple days ago and mentioned my T shooting up when this all started SHE was the one that suggested my body converted the estrogen to Testosterone. That's the first I'd ever considered it. It would be so funny to me if a psychiatrist helped me put the puzzle together enough to get balanced again.
     
  5. hwag5149

    hwag5149 Guest

    Re: back on meds :(

    here are pics of both of my cheeks. This is like the BEST it gets with no HUGE (active) cystic acne. This is mostly scars and smaller acne than I'm used to. This is also using erithromycen (prescription antibiotic) daily and washing with salycic acid or whatever (the thing that isn't bens-whatever peroxide). Oh, you can see my mustache too (if you zoom in)... and that's it when I pluck it regularly... apparently I miss a lot! Oh yeah you can see my side burns too... and that is after i pluck and cut the crap out of them too.

    Anyway, just posting the pics cuz I said I would
     

    Attached Files:

  6. Blue Bird

    Blue Bird Guest

    :(

    I am sorry

    I had cystic acne as a teen and I have a bunch of deep scars all around my jaw line and a few here and there. I hope you get it managed!!

    p.s. I like your ear peircing
     
  7. kimm

    kimm Guest

    Shwag -

    I started to get adult onset acne starting around my mid to late 20s

    That's why I went on bcp right before my wedding.

    Spironolactone really cleared it up and it's only reared it's head in my second pregnancy so far.

    Flutamide is supposed to be good at clearing skin, and if the metformin does it's job it should lower your androgens and possibly help some too.

    If you're up for alternative remedies then I've been reading good things about saw palmetto for acne as well.

    Just some thoughts.

    Sorry that you have to deal with this on top of the hair loss :(

    That piercing is cool. Looks like it probably hurt like a mo fo though!
     
  8. hwag5149

    hwag5149 Guest

    yeah this stuff sucks BUTT! never had a pimple a day in my life until i was an adult. This is pretty much the MOST under control it's ever been... which is sad. OMG when I was on Spironolactone, i wasn't oily, but my acne was completely uncontrollable. I would have acne that stuck out almost a half inch and was DEEP inside my skin. THAT is when my Dr suggested getting off of Spironolactone because she was shocked that my face looked so much worse after starting it. Weird huh???

    Thanks for the compliments on the piercing :) I have one on the other side too but the ball is missing so you can't really see it. I have my tongue pierced twice and my boobies are pierced too lol. My ears are pierced about six times each but I haven't had anything in them for a while AND I used to have like 19 piercings just on my head!!! I have 16 tattoos too :) I'm a crazy one I guess. Ever since the hair loss and hairy body, I just haven't cared about anything so I took all the piercings out and never even try to put on make up. Acne, hair loss and body/facial hair makes me feel like I shouldn't even try!
     
  9. miche777

    miche777 Guest

    schwag,

    I've dealt with some cystic acne in my life but it wasn't during my hair loss hell that I'm in now; so sorry you are dealing with both at the same time. That just plain sucks!

    I was planning on posting to this board because I keep running into PCOS information while researching iodine (I don't have PCOS but my acne did coincide with my dealing with painful ovarian cysts from about age 18-25).

    Anyhoo, just wonding if anyone with PCOS has come across information regarding progesterone for treatment?

    http://www.westonaprice.org/askdoctor/pcos.html

    Also, Iodine seems to be a huge potential factor in treating PCOS. Apparently, it's because the thyroid regulates hormones from our ovaries, and just like we can form a goiter from iodine deficiency, we can form cysts on our ovaries from a deficiency.

    I think web_diva is trying out Lugol's for PCOS.

    Just throwing out some alternatives...sorry to jump in on this board; I just couldn't help but say something after I keep running into all of this information.

    Good luck to you!
     
  10. hwag5149

    hwag5149 Guest

    ohh i like it!
     
  11. joshsmommy

    joshsmommy Guest

    I've also dealt with adult onset cystic acne. I've taken every antibiotic known to man for it, but the only thing that worked was Accutane. The stuff was a godsend for me. Supposedly can cause hair loss, but I never noticed that when I was on it. I took it about 9 years ago and I've never had to take another acne treatment since.
     
  12. vaso

    vaso Established Member

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    Hi Shwag

    I too had adult acne just after my 21st, before that i had super clear skin mine was really active and my right side looked like a volcano and i have the scars to show it, my right definitely worse than my left.

    I'm glad your back on some meds i too went back on Spironolactone but on a low dose as one doctor said "it's better than doing nothing" I've decided to take things easy and do things slowly there's no point throwing everything at it in my case as it will induce a shed and then i'll second guess whether i should've gone on the meds again.

    Good luck with it all, acne, body hair, scalp hair loss it all sucks, i know hopefully the met xr will help.
     
  13. The scars are the worst! I got adult onset acne coinciding with my hair loss. Like you I barely had a pimple before this. I never imagined I would get scarring. I hoped that once it cleared up I would be good to go...no such luck :(

    I hope you are able to get some relief soon.
     
  14. kaylee

    kaylee Guest

    Yep, my sister took accutane and it worked wonders! She hasnt taken it in over three years and her skin is still as clear as ever!! My sis never had hair loss from it either..
     
  15. mjh

    mjh Guest

    hey there...

    I also have PCOS. The acne started with my hair loss. I tried following this regimen from a book called The Acne Cure and it worked well at the time. After going off that, my skin was fairly clear for awhile but then a couple years later my acne came back, worse. I tried Proactive and hated it. I tried antibiotic cream and it worked but it was HARSH on my skin. I guess with adult acne, you just have to deal with it unless you can get your hormones back into balance.

    I like using Bare Escentuals foundation to cover things up!
     
  16. skyblue

    skyblue Guest

    Hey just wanted to post here to offer my support and let you know that I've been there with the acne. I suffered with bad acne from early puberty till around age 20.
    Like joshsmommy the only thing that got rid of it finally for me was accutane. I had to go on it twice, once age 15, again age 19 (13 yrs ago). My skin was very similar to how it is in your pics.
    Even now although I don't have any acne as in spots, I still have large pores and non-inflammatory acne but this is nothing compared to how my skin used to be! Also there is significant scarring but this doesn't bother me so much as I get older.

    I am not big fan of makeup usually but I'd recommend trying Smashbox primer worn on it's own if you would like some light coverage. It's very barely there but it evens out the skin tone very well I think.
     
  17. snowflake

    snowflake Experienced Member

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    You should check out makeupartistschoice.com they sell peels that you can do at home. I have used them and they are both cheap and effective. The salysic acid one would be good for you I think.
     
  18. hwag5149

    hwag5149 Guest

    funny you say the salysic acid because I always use topical antibiotics, but they dont seem to work unless i combine it with a wash that has the s. acid in it. The peroxide kind does nothing for me. It used to be so bad that I had permament dark, kind of black, circles on my face. I would be so embarrassed and remember I put on the powder from MAC without the cream based cover up and my friends husband said "did you get hit in your face???" he thought the black circles were bruises! Im going to try to find a pic.
     
  19. tibetie

    tibetie Guest

    When I went off of BCP's in my mid 20's, I developed horrible acne. I didn't realize at the time that it could be related to a hormonal problem or PCOS (neither did my derm), so I eventually went on Accutane to clear up the acne. Accutane cleared up the acne, but within a few months of going off of it, my acne returned. It wasn't until I started to grow more hair on my body and lose hair on my head that I panicked and went to my gyno (I knew by then it was hormonally related). I've been on Yasmin ever since and haven't had another pimple. I know that BCP's can increase insulin resistance, which causes a new set up problems...
     
  20. miche777

    miche777 Guest

    Really? Erghhhh
     

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