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Cte Or Androgenetic Alopecia? Pics Included. Needing Help!

Discussion in 'Women's General Hair Loss Discussions' started by tula, Sep 24, 2018.

  1. tula

    tula Member

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    I definitely have a hormonal imbalance caused by a DIM supplement that started about 3 years ago. Almost all hair shed is longer and includes a bulb. Not all though. Last time ferritin was checked was in January and it was at 37. (up from 17, but that took 9 months)
    Other blood work says thyroid is good. I should get hormone blood work back this week. What does this look like?? Notice how thin it is all along my temples and ears. My whole head is practically like this. It is awful and I am always worried about it.
    My moms hair got thinner after a hysterectomy but I currently have less than her and even less than my 86 year old grandma! My dad is just now starting to thin in his 60’s. But no receding or bald spots.
    Help?! What do I do now? Doctors are no help. I had one not even look at my head and just said to start Rogaine
     

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  2. Simona1986

    Simona1986 Established Member

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    Look like TE but a lot of TE are with Androgenetic Alopecia.
     
  3. Simona1986

    Simona1986 Established Member

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    Uhh... i can't edit the post... for mistakes
     
  4. grace90

    grace90 Member

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    Looks like TE to me. How long have you been shedding hair?

    I would go to another dermatologist if you can (preferably a trichologist). Always a good idea to get a second and even third opinion.
     
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  5. tula

    tula Member

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    I started shedding almost 3 years ago. I was shedding really bad the first year until I stopped the DIM and then it slowed down right away. But never fully stopped. I also have seborrheic dermatitis and my scalp always feels grainy and itchy. I tried the Keto shampoo and it did nothing to help. Now I control the itching with apple cider vinegar.
    My concern is that it was TE and now it is turning into Androgenetic Alopecia. Or it is CTE. I feel like the doctors I have seen shrug it off and as soon as I say my mom had some thinning, that is the end of the conversation. She had SOME thinning after a full hysterectomy in her 50's, nothing like this.
    I will look into a trichologist in the area. It seems like some will do it over the internet, but that seems shady??
    The last time I had very nice hair, the thickest of my life, was when I went to a Chinese Medicine doctor and had herbs with acupuncture. I might try that again too. But it gets very expensive..
     
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  6. tula

    tula Member

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    Simona, that is my biggest concern! I have been thinking lately it might be both. I am getting closer to trying Rogaine. I am just terrified of the "dread shed" that so many women get.
    I want to try a couple more options first.
     
  7. grace90

    grace90 Member

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    I don't have any personal experience (knock on wood) with Androgenetic Alopecia, so I can't say for sure, but it looks like CTE to me.

    I'm sure you have already done this, but definitely involve your PCP if you can. Demand to have your hormones and blood taken to see if you have any deficiencies or anything else that could be a possible explanation.

    I wouldn't see a trichologist over the internet. They need to see your scalp in person! I found mine through a regular dermatologist who recommended the trich to me. If you can afford it, I would definitely suggest seeing a new derm who will actually take the time to address your concerns.
     
  8. tula

    tula Member

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    Thank you for your input! It really helps. I honestly think I have CTE with some Androgenetic Alopecia. Either way it seems like CTE is not something you can easily stop/reverse and from what I’ve read Rogaine is still suggested
    I have to get a referral to go to a dermatologist, which doctors don’t usually want to give. I will go and get a new iron panel with vitamin levels. My hormone tests came back all normal.
     
  9. KayJane

    KayJane New Member

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    Hey just wanted to give you a little encouragement. I have had CTE for a little over two years and have lost a TON of hair. I even bought I wig. My temples looked way worse than yours. I started a lot of dietary changes about 6 weeks ago and while I am still losing way too much hair I have noticed the area around my temples filling in. It’s not always CTE with Alopecia Areata. It isn’t for me. Also the seb derm can make hair loss much worse so definitely try to get that under control. I also have seb derm and I can’t seem to get rid of it completely but I have significantly reduced the amount of dandruff. Here’s what I do: wash with Jason’s dandruff shampoo (other dandruff shampoos didn’t work for me. Leave on your head for a couple minutes before washing out), then I rinse my hair with a combination of diluted apple cider vinegar and a drop each of rosemary essential oil and peppermint essential oil. For me it has helped ALOT
     
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  10. losing_it

    losing_it Established Member

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    Your issues sound a lot like mine. I had massive shedding for 3 years, then it stopped and literally all my hair came back. Two years later it started again and it's been shedding this second time for almost 2 years now. I also worry that I may have a combo of CTE and Androgenetic Alopecia. That is possible, but everything I've read about the combo is that it is imperative to stop the shedding, because the Androgenetic Alopecia is expressing itself due to the follicles shedding constantly. So the genetic hair loss will slow down if the shedding stops. If only it were that easy, right?

    When my shedding stopped I was also taking Chinese Medicine herbs! However, I started Chinese med herbs again about 8 months ago and haven't seen any major improvements. I also had seb derm on the back of my scalp a few years ago, and it flares up every once in a while. I apply Clobetasol to it as soon as I feel it flare up. But I use apple cider vinegar every couple days to control the graininess and itching. I also use keto shampoo every few days, just in case there is a genetic component to my hair loss.

    Sometimes it feels hopeless, but then I remember that literally all of my hair came back (and looked just as healthy as it did prior to ANY issues with hair loss). So I stay hopeful that that could happen again. I'm sorry you're going through this :( You aren't alone. It has been the biggest challenge in my life thus far, and I assume the same for any woman going through hair loss.
     
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  11. tula

    tula Member

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    Losing_it,
    Thank you for the reply! I really hope most of it comes back. My thinnest area is actually right in the middle at my hairline along with the temples. That is where I think the Androgenetic Alopecia has started, at the front. It’s awful. I think I am going to start with calling to make an appointment for a new blood test tomorrow to see where my ferritin is at.
    Then see if we can swing the Chinese medicine again. I am worried that if it is a combo I am just delaying the Rogaine and making it all worse!

    KayJane,
    I will try the Jason shampoo! I use rosemary oil every night but I will try it with peppermint.
    What dietary changes did you make?
    Thanks!!!
     

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  12. tula

    tula Member

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    I wanted to add something, I did have a biopsy done about 1.5 years ago and it came back as essentially within normal telogen hairs and the miniaturization was so subtle that a clinical history was needed. So basically, inconclusive and again I was told just start Rogaine.
    I keep reading that a biopsy is mostly just good for checking on inflammation and infections. I was negative to both.
    I have no trichologists near me. The doctor who did the biopsy was supposedly a specialist but said nothing when my ferritin was only at 17 and I read everywhere that is needs to be above 60 for good growth.
    I currently have basically zero regrowth. I get some new hairs along my hairline. I started Lysine with my iron because I read it is supposed to help. I hope so.
     
  13. llaa

    llaa New Member

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    Thanks for your post.

    I'm currently going through the same thing, It all started last year around the end of October I noticed my hair was shedding like crazy its like it literally started overnight..

    I went to my GP who did a blood test and put me on iron tablets even though another Dr said I didn't need them...hormones checked and have been told that everything is ok, 1st Dermatologist I saw didn't even touch my hair and just said its TE, 6 months later another dermatologist appointment and again didn't really look at my hair (No biopsy or pull test) and they said its Androgenic Alopecia... I know TE can set off Androgenetic Alopecia but I'm really hoping it isn't Androgenetic Alopecia and just CTE :( Can Androgenetic Alopecia really start suddenly..

    3 months prior to all this starting I had taken the MAP and moved house to a new town so had a lot of stress going on, I also split up with my husband and got into new relationship (not all at the same time)!

    Can anyone tell me whether they think this is TE or Androgenetic Alopecia, im only 34 and this is destroying me, I have no family history of Androgenetic Alopecia and have fine hair as it is so its starting to get noticeable :( there is some re-growth but its not enough to make a difference, also my hair texture has completely changed and is light and fluffy :(

    IMG_3272[1].JPG IMG_3270[1].JPG IMG_3271[1].JPG
     
  14. Simona1986

    Simona1986 Established Member

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    On the top of the crown i think it's Androgenetic Alopecia in early stages. Do you take or use something? You shed a lot or normal with no or little regrowth ?
     
  15. llaa

    llaa New Member

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    I'm currently not using anything, I'm trying to hold off using Rogaine there is a lot of shed which started very suddenly good days around 150 hairs bad days can be up to 400 but its more good than bad days, there is minimal regrowth.
     
  16. Simona1986

    Simona1986 Established Member

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    Maybe TE with Androgenetic Alopecia... unfortunately rogaine it is the only one who can help.
     
  17. Simona1986

    Simona1986 Established Member

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    Pictures of my hair... 16 years of Androgenetic Alopecia and CTE. Now i am on rogaine 5% and spironolactone 50 mg. (Spironolactone only from 1 month)
     
  18. Simona1986

    Simona1986 Established Member

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    Pictures
     

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  19. llaa

    llaa New Member

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    16 years ! I've struggled for only a year so I cant imagine how you are feeling but from the photos your hair looks good.

    I've just got the results from yet another blood test and my Ferritin is 25 I'm not sure this is effecting my loss in anyway, I just wish the shed would stop that's the worst part is finding hairs EVERYWHERE.

    I'm going to wait until Christmas to decide if I'm going to go on Rogaine, I'm terrified of the dread shed as I don't think ill have anything left if that happens :( I just don't know what to do and feel like all the doctors just want to shrug me off, in the UK Tricologists are not funded by the NHS, I'm nervous about spending £150 to go private and to be told the same as the Dr's which isn't very much :(
     
  20. Simona1986

    Simona1986 Established Member

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    I had better and worse periods in 16 years. A lot of doctors,analysis and treatments. Now i'm ok with me and in the day when will not work anymore this i will buy a wig. I am tired of fighting with my hair. I was crying every time I was washing my hair.
    I was in UK, i worked in UK. I know it's a clinic, Belgravia. I don't know the prices... but everything it's expensive there. And the medical system it's terrible.
     

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