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Entering TE Recovery-Photos

Discussion in 'Success Stories and Positive Outlook' started by Wolf924, Aug 5, 2015.

  1. Wolf924

    Wolf924 Experienced Member

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    I think it was about 4 months.
     
  2. DisTressing

    DisTressing Established Member

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    wow and I am sure that felt like 4 years :) THANKS for the info and the rays of hope!
     
  3. Wolf924

    Wolf924 Experienced Member

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    It was the LONGEST 4 MONTHS OF MY LIFE. In actuality, this whole hair mess has been the worst thing I have ever endured. Most people to not understand it unless you are going through it.

    - - - Updated - - -

    Oh and I thought about shaving my head about 1,000 times just not to deal with the buckets of shedding.
     
  4. Ccc

    Ccc Member

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    Wolf924
    I just wanted to say a massive thank you for sticking around, giving us hope, and answering our questions etc. You're a star. Thank you! Hugs! X
     
  5. JenVoy

    JenVoy Established Member

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    YES! ^ That's all I've been thinking about is just shaving my head and wearing a wig, because of the continuous hair fall. I feel like at this point if the shedding stopped, and having thinner hair wouldn't bother me as much as the nonstop shedding. :(
     
  6. Wolf924

    Wolf924 Experienced Member

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    My hair is still improving! I have gotten brave enough to begin drying the front only, and when I do the growth is so easy to see--sprouts everywhere.

    The scalp has filled in so much that I got nervous I wasn't seeing enough visible improvement, but now that I blow dried it this morning is so blatantly obvious. Yay! I will do a photo update this week.
     
  7. mommybetts

    mommybetts Established Member

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    Wolf, that is soooo great!! Yes, post pictures to keep us all encouraged. :) So happy for you.
     
  8. DisTressing

    DisTressing Established Member

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    Great news -YAY!!!!!!!!!
     
  9. Barbarina

    Barbarina Established Member

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    May I ask you which antidepressant you were taking ? Most of them have side effect of hair loss and I am also afraid to gain weight.
     
  10. Wolf924

    Wolf924 Experienced Member

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    Hi Barbarina:

    I am only taking Klonopin as needed right now, .5 mg which literally kills my anxiety once it starts. If I can't sleep I do take Trazodone 100 mg. I have taken both on and off for years with never any issues with either weight or hair on either.

    I have actually taken pretty much every antidepressant on the books with no issues with hair with any of them at all. Here are some I have been on over the past 15 years

    Abilify: this one did have weight gain, and I do not recommend
    Trazodone
    Paxil
    Valium
    Zyprexa
    Nuerontin
    Klonopin
    Lexapro

    My father is a physician, and honestly I have to disagree with some women on this forum who think antidepressants have a high risk to make you lose hair. Its a listed side effect, of course, as it is with pretty much every medication, even nsaid use, but honestly most people do not lose hair on these drugs. BC is proven percentage wise to cause more hair loss than the above drugs, and I know that a BC change was what caused my TE. Of course, everyone is different, but if you need an antidepressant I think mental stability trumps hair, personally.

    I say this because I have been so depressed, anxious and upset most of my life and I would give anything to not feel that ever again. I have OCD/PTSD, and its hell on earth.

    Good luck to you <3
     
  11. JenVoy

    JenVoy Established Member

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    You are very lucky to not have had to deal with hair loss as a side effect with any of the above antidepressants and anxiety meds. I have had pretty bad anxiety most of my life and I've tossed prozac in the past, as I was fearful that it would cause more harm than good. I wish I had done the same with trazodone. Yes, it's listed as a side effect (rare for trazodone and most of the others) but if I had known that it was a risk to begin with, I would NEVER have taken it. I'm still loosing my hair as a result have haven taken trazodone. I'm scared sh*tless not knowing when this will stop. I'm just riding it out like everyone else here. When I tell people what's happening to me, and what caused it...they don't get how a medication could cause hair loss this severe. I personally see it has having accidentally poisoned myself and hair loss was the result. It's also sad to think the abuse I endured as a child more than likely has had lasting effect and caused a majority of my anxiety as an adult. But I personally wished I had never medicated with trazodone 5 months ago because of it. (Amongst many other regrets 5 months ago that lead me to this entire scenario!) The hair loss has severely depressed me, and caused me to be beyond stressed, bawling for the 1st 2 or 3 months it began. (I'm pretty sure it caused the constant nausea and upset stomach for those months as well).

    Here I am on month 5, and I think I've mostly come to terms with what is happening to me. It's still so devastating and depressing to constantly pull hair out of my head, washing my hair and collecting the clumps of hair after taking a bath. Seeing and feeling it fall down my arms and clothing. My hair is so thin, and I can now see my scalp in some spots. I just purchased a wig online to prepare myself for the worst outcome.

    I see most women who have had TE; have had it for 9-10 months. I find it hard to believe that what my holistic doctor is saying is completely true. She says my TE continuing has to do with my low ferritin in the 40's. I've been eating more red and lean meat, taken iron pills with vitamin C. I know what caused my hair loss, and it was NOT the ferritin. I also see many women who have recovery despite their low ferritin. I know it wasn't BC, as I've been on it for years on and off without issue. Perhaps it all depends on the individual...as with side effects relating to medications.

    - - - Updated - - -

    By the way, I just received an email from another forum I belong to...yet another woman who has hair loss as a result from Trazodone she's been taking for over a year.
    It DOES happen, and probably far more frequently than people believe. I'm seeing it first hand when doing research, and in responses I'm receiving from other forums. I hate that most physicians don't inform their patients of potential side effects of the drugs they prescribe. I'm still shocked that my internist told me my hair loss was due to "stress." Sorry for the rant. It's still shocking to me.
     
  12. Wolf924

    Wolf924 Experienced Member

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    It sucks that you are one of the rare ones it happened to. But TE absolutely can last 10 months- I'm living proof. I think it was 10.5 months for me when I saw things change.

    My point is if someone feels they need a drug for mental health or to get out of a dark place in their lives, I personally feel that's worth the hair loss risk. Having dealt with my own severe issues and watching my sister going through this very very dark time, I know in my heart some thing are simply more important than hair: being able to eat, get out of bed, sit at a table with your family, happiness. All these things in my opinion trump hair. I don't think scaring people into not taking antidepressants is helpful- many times they are already anxious and this just makes it worse. Sharing your experience is very important but as I said ALL medications- such as heart meds, carry this risk. So if someone needed to take heart meds in order to live, I think that's worth losing some hair. And I do think mental illness is on the same exact level as any other disease.

    I now my TE was caused by BC but I know that I'm In the minority- for many women on this forum- bc is part of their regime to recover their hair. So it's all very individual.

    As for you Jenvoy, don't give up hope. You are early on in your shedding. I shed for almost a year and now I'm regaining my hair and I do think you will as well. Do you have a family history of Androgenetic Alopecia? I do with the men on my moms side and I still am gaining my hair back. There's hope. <3
     
  13. DisTressing

    DisTressing Established Member

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    Jenvoy I also shed for 11 months - I think the number of people who only shed 3-6 months are in the minority, regardless of the trigger that produced the hair loss. If you lost your hair from medications that brought on your effluvium, or if this effluvium was triggered for ANY other reason except possibly Androgenetic Alopecia, it is entirely reversible so please do NOT think it is hopeless situation. I know all too well the terrible desperation of hating to look at myself for many months with paper thin, extremely dried up, rough hair and not knowing if it would look like that forever. After 11 months of shedding on and off and losing at least 50% of my formerly massive mane, the shedding came to a halt two months ago and my hair looks entirely different today. I can again look in the mirror and I have hopes of a full recovery. No, I do not yet have my thick head of hair yet but I expect that will take months, if not a year or two.

    Personally I don't like medications - however I DO occasionally take Xanax for anxiety and it never caused any side effects whatsoever. Have you ever tried that and/or is it available to you?
     
  14. Ccc

    Ccc Member

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    Wolf can you please advise how much you were shedding compared to now? Did it slow down gradually, was it up and down or just stop and when did it start thicking up please? Thank you.
     
  15. Wolf924

    Wolf924 Experienced Member

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    Ccc if you go through this thread I give really detailed breakdowns of my shedding patterns and time frame. But I would say I was shedding over 200 for a long time, then fluctuating, now shedding about 50 a day. Hair is just starting to thicken. I started my TE in Sept/Oct of 2014.
     
  16. Ccc

    Ccc Member

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    That's great I will re read it all, as may have missed it- thank you. I started shedding at the same time as you but I started taking the pill again as I didn't know it was that and the shedding stopped. I stopped the pill again in May so I'm trying to figure out when my hormones might settle down and my hair may stop shedding. It's so distressing, need some light at the end of a dark tunnel and your posts are helping. Thank you again.
    P. S. Does it go up on wash days please or is 50 a day the average?
     
  17. Wolf924

    Wolf924 Experienced Member

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    I think mine was caused by BC so I never went back on it on the advice of my gyno. He said it could take up to one year for my hormones to adjust after the pill, so I felt like it was too much of a risk for me to mess with BC at all.

    I think for me the shedding is less on non-wash day. Today I washed and I lost maybe 25-30. I would just say 50 on average over each day. The shedding has just so drastically reduced in the past 2 months. I realized that I needed to pretty much wash everyday, and that helped kill my seb derm.

    Also in this thread are photos that show the improvement. I think it helps to take these because sometimes you feel like you are not making progress when in fact, you are. How old are you? Do you have a family history of Androgenetic Alopecia? Have you gotten a biopsy?
     
  18. Ccc

    Ccc Member

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    Thanks for your reply. I'm 30, no history of Androgenetic Alopecia. It's definitely stopping BC that's started this. I've seen several specialists who mostly say TE but always say they can't rule out Androgenetic Alopecia, which scares me and makes me really anxious. My gut tells me it's TE. I've lost so much volume, handfuls of hair in a few months. It's diffuse loss, no widening of parting but very thin now all over. No biopsy because no one will do one at this stage in UK and I'm scared that a dermalogist will just pass it off as Androgenetic Alopecia when it's TE. I've lost trust in the professionals. I'm currently losing 50-70 a day which is a lot less than before and 220 wash days. I can't bring myself to wash it everyday. I'm 7 months in and just have to hope ive done the right thing by staying off the BC and it recovers like yours is starting to. I'm trying to use my periods as an indicator too. Before they were quite heavy but they've been very light but regular since stopping. I think maybe I'm not producing enough estrogen (Dr told me it was slightly low) but the endocrinologist I seen denied the pill causes hair loss and wasn't helpful . It seems an uphill battle. All my other hormones are ok so hope my estrogen picks up in time. Thank goodness for this forum.
     
  19. Wolf924

    Wolf924 Experienced Member

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    Ugh BC is such a culprit. The good news, with everything I am reading, is that stopping BC is like giving birth--your hormones plummet and then slowly rebuild to normal--its just usually TE. Plus you are younger than I am with no Androgenetic Alopecia family history--I have faith you will recover.
     
  20. JenVoy

    JenVoy Established Member

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    I agree! I wish these hairloss studies, and information about telogen effluvium would be updated to reflect a shedding period for acute TE as 3-10 months as an average...not 3-6! Although, I did chat with my sister's best friend who had weight loss surgery. She too had TE and it occurred over the course of 6 months. That lucky b*yotch! ;) It's been over a year and she is still SLOWLY recovering!

    Thank your for your hopeful words! When this first happened I was in a state of complete shock, and cried for weeks. Now I have a hopeless attitude towards the entire thing. I try to remain hopeful that this will resolve on it's own...but as the months progress I feel more and more hopeless that this will stop. It's disheartening to know this could possibility go on for longer than a year. I don't believe I have Androgenetic Alopecia. My mom has a crazy amount of hair, as did my grandmother on my mom's side, and her sisters as well. Both of my sisters have a lot of hair. One sister who is genetically similar to me in almost every way has A TON of hair like I did. I may have had more. ;)
    My father has patterned hair loss, and my brother has thinning hair. I wonder though if my dad's thinning wasn't caused by the medications he was prescribed over the course of 20 years. He's been on blood pressure meds, lipitor, etc. His father (my grandfather) still had a lot of hair, and his mother just had thin hair.

    Thank you ladies that are in recovery for coming back here and posting your stories of recovery, and giving us hope. I'm just telling myself that this will probably go on for a year, and I've already purchased a hair topper to prepare for even thinner hair. I envy women that are brave enough to shave their head! I have thought about shaving my head every single day. It's easier than dealing with the constant shedding and looking at my thinning hair. I also see hair regrowth sporadically throughout my scalp, and most of my hair loss is on my temples, and crown with very diffuse thinning...which leads me to believe it's very much TE.

    And yes...I am not a fan of medications either. I did take xanex occasionally when flying...or if I had an occasional panic attack. I wish I had stuck with xanex as it caused ZERO side effects. So yes, to answer your question....it's VERY much available to me! It's sitting in my medicine cabinet! :cool: After much research online I found that Benzodiazepines (Xanex, Valium, Klonopin) rarely have side effects...but they're also addictive. Tricyclic antidepressants (trazodone, norpramin, tofranil) are much more likely to cause severe side effects. Along with severe hair loss on trazodone I had memory loss, congestion, dry mouth, aggression, and lethargy. I also had withdrawal symptoms when I quit cold turkey after a month of taking only 25mg. I realize medications effect everyone differently...but is it worth the risk? I wished I had seen a holistic doctor before seeing that quack internist when I was going through an extreme bout of anxiety. My husband had just lost his full time job, and we were going through a terrible lawsuit. I was taking care of our 2 year old son, and also constantly trying to emotionally care for my husband's depression. He was prescribed buspar for his anxiety (which he stopped taking after a month, because he was also lethargic). We are now seeing a holistic doctor, and dealing with any anxiety we have by working out and eating healthier. We're both doing well...except for my severe hair loss. :(

    I hope to be where you are now Distressing! I'll take thinner hair in recovery over severe shedding and gradually thinning hair that's never ending...any day! Thanks again for your recovery updates! <3


    - - - Updated - - -

    Ccc, I saw that you're in the same TE boat. :( I have to say that if you're experiencing a loss of only 50-70 a day...I hate you! Just kidding! ;) I find that I am paying more attention to my loss and seeing a ton of hair shed on days I wash my hair. I'm guessing a clump of 160+ on wash days. It's awful! I just cut about 4 inches off of my own hair because It was more distressing seeing the longer strands falling everywhere and pulling out tons of hair in shower and periodically throughout the day.

    I hope this is a tapering off of your TE if you're only shedding that much when you wash! Keep us updated!

    - - - Updated - - -

    By the way...it amazes me that a lot of women are experiencing a tapering off when entering recovery, and some other's I've heard from just have a spontaneous recovery. How the heck does this happen? It's odd.
     

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