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Finally - my derm appointment *PLEASE READ - SO SCARED*

Discussion in 'The Undiagnosed' started by kitkatkitkat3, Mar 31, 2009.

  1. Re: Finally - my derm appointment *NOW WITH SORT OF DIAGNOSIS*

    I saw a random derm at Guys St Thomas' in London, I wanted to see Dr. Fenton but got a different derm...I may ask for a referal to him if this proves inconclusive.

    I had my biopsy this morning - it was okay. The injections were the worst part but even they didnt hurt - when she was halfway through taking the first one, I felt really faint and dizzy and had to lie down, I thought I was going to fall asleep, but I felt better once I lay down and she carried on. She took one from the top right of my head, and one near the nape on the same side - she wanted to get a mix as she felt the hair near my nape was thicker than the hair further up. It just feels a little bit sore now, but not bad - I do have 2 big blue stitches sticking out and my hair is quite bloody - and I can't wash it until tomorrow morning, ew!

    I just hope this gives me something...she did say they often come back inconclusive which would really suck....am keeping everything crossed for an actual answer.
     
  2. Re: Finally - my derm appointment *BIOPSY NOW DONE*

    Well done on being brave. I had two punch biopsies done and had to lie down too. The cutting noise was too much for me, I thought I was going to vomit.

    Because I'm on warfarin, I was bleeding everywhere and had to have 6 stitches. Ew. I was in pain for days as they wouldnt heal, but at least you can take solace in the fact that this is THE test to have.

    Wishing you good luck.

    ;)

    Bride (aka Thinning Wife now!)
     
  3. Re: Finally - my derm appointment *BIOPSY NOW DONE*

    Yay, you're back!!! Congratulations on your wedding, I'm sure you looked beautiful :)

    Oh I know what you mean about the cutting noise, how gross! I really felt sick too but I'm never sick...I just felt incredibly weak all of a sudden.

    Did you get an answer from yours?
     
  4. sadlady

    sadlady Guest

    Re: Finally - my derm appointment *BIOPSY NOW DONE*

    Hi KitKat!
    Im checking in to see how things are, and hope youre fine. For me, it was really hard to wait for the answer when i had my biopsy done, hopefully you´ll soon get an answer to yours. I kind of dreaded knowing what was going on with my hair, at the same time as i really longed for an answer. Its sucha rollercoaster having hairloss - a good day/week, when you shed less, youre happy thinking that things are finally getting better, and on a bad week its hard to belive that things will ever be better. My hair is better, i think rogaine helps a lot, but i still have weeks when i shed more, and those weeks are always harder. Anyway - i wanted you to know that im thinking of you, and that i youre doing well.
    /sadlady
     
  5. Re: Finally - my derm appointment *BIOPSY NOW DONE*

    Hi sadlady - oh my gosh! So weird, I was just about to start replying to your post about your shedding, I was so sad to see it had started again as I was so happy for you that it was better :shakehead: I hope it's been a bit better today?

    Thanks for being so sweet, it is hard to wait but am trying to forget about it...results are only a couple of weeks away. I just hope there's a real answer in there!
     
  6. Tifflady

    Tifflady Guest

    Re: Finally - my derm appointment *BIOPSY NOW DONE*

    Kit Kat,
    I have my first derm appt on Monday. I am anxious to hear about your results. Please keep us posted. I may have some questions after my appt.
     
  7. hwag5149

    hwag5149 Guest

    Re: Finally - my derm appointment *NOW WITH SORT OF DIAGNOSIS*

    When I had the stitches in my head the first time, the Dr said "see look, now you have 2 new hairs!" and i couldn't stop laughing
     
  8. kiara

    kiara Guest

    Re: Finally - my derm appointment *BIOPSY NOW DONE*

    kit, please keep us posted as i'm just as curious as you are to know what your dx is!
     
  9. Re: Finally - my derm appointment *BIOPSY NOW DONE*

    I am so scared - going out of my mind with worry.

    My appointment to find out biopsy results is on Tuesday - all good.

    Today, I come home to see a letter from the dermatology clinic. It says they have also scheduled me an appointment for Friday. I think - that's weird, so I take a closer look. Next to the "Under the care of" box, where it usually has my derm's name, it says "Skin Cancer Assessment Clinic".

    Of course I immediately started panicking, crying and shaking. I thought it had to be some kind of horrendous secretarial error and immediately called them up. Unfortunately it was already nearly 5pm on Friday and hardly anyone was there. I managed to get through to a nice receptionist who totally understood why I was so upset, and she looked on the system. She said that although nothing in my records suggests anything like cancer, the doctor who did my biopsy did request that I be seen, and this sometimes happens as they want to just rule it out, rather than because they are concerned. I was hysterical saying I didn't understand and what on earth was going on - they have tried to bleep her and email her to get her to call me, but an hour later, I haven't heard from her. Now I face the whole weekend not knowing what is happening. I can't believe this.

    If I am logical I don't see how they could have seen anything from my scalp biopsy - surely they were just looking at follicles?! I just don't know and I'm so scared.

    All I know for sure is that whether this was a clerical error, or a doctors precautionary decision, the way in which they approached it is totally unacceptable - you can't go sending letters to people referring them to cancer centres with no warning. I dont know what to do :sobbing:
     
  10. Blue Bird

    Blue Bird Guest

    Maybe the lab they send the biopsy to is the cancer clinic??? That is why it said under the care of??

    Maybe he wants you to come in because you have a certain dx that he wants to talk to you about (Androgenetic Alopecia, or whatever)

    Try not to worry, I am sorry!!!!!
     
  11. hopelina

    hopelina Guest

    Maybe this center has the best technology and experts for this kind of biopsies and it has NOTHING to do with why the biopsy is done. I know that I go to my endo in a fertility center but becase they have there very good endos, as I go only for hairloss there...
    Try to relax this weekend and call on Monday again.
    Big hug !!
     
  12. Nahh...neither of those things sadly.

    The clinic is a specialist dermatology clinic - one of the best in the country. I have had loads of those letters so far cos they keep rescheduling my appt, and they all say the same thing - my name, the fact that it's dermatology, the location of the appointment and then 'Under the care of' and all the previous letters have given a name of a specific doctor in the dermatology department. The appointment with my derm to discuss the biopsy results is still due to take place on Tuesday as scheduled. This is a new, totally separate appt they've arranged for me, and all it says is that its under the care of the skin cancer assessment clinic.

    I know that most likely this is just a routine thing, they just want me to go to rule anything else out. Chances of them having found something odd on my biopsy and using this method to let me know are just tiny.

    Once I find out, I will be lodging an official complaint about this - they have no idea what this is doing to me.
     
  13. iisara21

    iisara21 Experienced Member

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    Aw, sweetie...I am so sorry to hear they did that to you! Doctors (not all of them, but many) can be really thoughtless sometimes. I'm sure they don't think you have cancer, but it was VERY inconsiderate to approach ruling other things out in this manner! Your doctor should have just brought it up at your appointment on Tuesday. (shaking my head) Please, don't worry too much about this. :(

    I hope you hear good news at your appointment! (fingers crossed) :)
     
  14. GoodYear

    GoodYear Guest

    yes kitkat, please let us know as soon you have more information.
     
  15. alicat

    alicat Guest

    oh my goodness. i am so sorry they are approaching this in such a manner. ack.

    i am sure it's nothing, but still--just wrong to do this to you!

    *hug*

    are you ok?
     
  16. aries

    aries Guest

    As I walked through the hospital to my appointment I passed the cancer wards, then the bereavement offices and prayer room and it was a good reality check for me. This absolutely sucks, but it could be a lot worse.

    :agree: Thanks for the reminder.
     
  17. sadlady

    sadlady Guest

    Hi KitKat,
    Im so sorry for you, im sure its nothing, but still - i do understand that it makes you worried. I know how youre feeling - docs can be SO insensitive. Just wanted you to know, that im thinking of you.
    All the best to you,
    Sadlady
     
  18. michelesmith

    michelesmith Guest

    when they did a punch biopsy for me they also sent it and tested it for skin cancer , this could be a very normal thing for alot of clinics they have to rule out alot of things esp cancers etc so dont worry im sure it was routine like mine was!
     
  19. Thanks all - I am okay, but still quite uneasy. I've been trying to keep really busy and it's working but as soon as I'm not occupied my mind goes back to it. Really has been a horrid couple of days.

    Michele- thanks that's reassuring. But still, I dont like the fact they're calling me in for an appt - surely, if they sent it off to test for cancer and it was fine they wouldn't want me to come in. The whole thing is just really upsetting and more than anything I'm angry they've given me absolutely nothing to go on, it's just cruel.

    Only other thing I keep reminding myself is that I have no symptoms at all - aside from the hairloss I feel absolutely fine, my scalp is very healthy, no changing moles, no flaking skin - nothing, not there, or anywhere else on my body. Still - I will be on the phone first thing in the morning to find out what on earth is happening.
     
  20. snowflake

    snowflake Experienced Member

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    God K3, I can only imagine the hell you are going through. Soon as they tell you anything please post I am worried for you (I mean for what you are going through with the waiting).
     

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