Ladies with FRONTAL FIBROSING ALOPECIA. I attended a patient support group meeting on 23 November 2013 in London. I met a super doctor who is doing research into the cause of this condition. He needs samples of our saliva to do his DNA research. Dr Christos Tziotzios, Academic Clinical Fellow & Specialist Registrar, Genetic Skin Disease Group, Guy's Hospital, London, UK. Please email him and he will telephone you to take a few details of your condition, he is very nice and friendly, then he will post a saliva collection kit to you. email address: firstname.lastname@example.org Any ladies with FFA do please get involved in this research. There is now what doctors are describing as an epidemic of FFA and we need to find the cause to have some hope of having a reliable cure to use in the future. Love to you all.