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General question about recovery from CTE

Discussion in 'Women's General Hair Loss Discussions' started by md., Mar 19, 2012.

  1. md.

    md. Guest

    I have a low shed on my scalp currently 50-100daily and lots and lots of regrowth
    However, when i shed hair i get a lot of thinner hairs that are about 10cm long fall out (that could probably be about only about 6 months old) along with my longer healthier strands,

    Because my shed has lowered and im losing these weaker hairs that are about 10cm long, is it possible that my hair is cycling through, recovery and thus falling out to be replaced with healthier, thicker and stronger follices?
     
  2. Din

    Din Established Member

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    Hi md.
    Congratulations on your recovery!! I hope that you completely recover from this. From whati hear it is normal to lose those thin strands and often they give room for healthier thicker hair.

    I have a few questions for you,,
    How much were you shedding during your cte? How many times a wek did you wash your hair, what did you lose on wash days and what did you lose on non wash days? What do you lose now in recovery?? On wash days and non wash... And for your recovery, did it just happen or it was gradual? And .. Did you have a revovery during the cte and then it started again , or was it a continous shed???how thin did your hair get??

    Thank you so much for any answers, you give all of us hope!! And dont worry!!looks like you will get your hair in no time!!
    Hugs to you,
    Din
     
  3. md.

    md. Guest

    Hi Din,
    Thankyou but im still borderline unsure as to whether i'm in full recovery because my brows shed every now and then and my overall hair doesn't look very full despite all the regrowth I have.
    But i'll answer what I can...

    How much were you shedding during your cte? At the worst times I lost about 10-15 hairs every 'pull test' and this lasted for almost 2 years. So probably about 200-300 a day.

    How many times a wek did you wash your hair, what did you lose on wash days and what did you lose on non wash days?
    I washed my hair everyday when I could, . I believe that the sporadic non-wash days had no difference in loss compared to the days when I did wash, I was fortunate enough to never have the 'drain clogging experience' more than perhaps 3 or so times.

    What do you lose now in recovery?? On wash days and non wash...
    I lose about 50-100 sometimes under 50. (for both)
    And for your recovery, did it just happen or it was gradual?
    I believe it was gradual, I think that my low ferritin was addressed within a few months and my shed lowered from that, plus I committed to remvoing my trigger (stress) which is still very hard, hence why I'm fence sitting on whether this is true recovery.

    Did you have a revovery during the cte and then it started again
    I'm almost certain this has happened because I kept prolonging my stress and my sheds would increase

    how thin did your hair get?
    From what I had almost 3 years ago, I've lost about 60% of my hair and I have see-through bangs in harsh lights, but I notice little hairs here and there but it has taken months, on months for that to happen and they have not made a general improvement yet. Also, i'm at the stage where I have to brush my hair to make it full, whereas I never had to because it's so limp and lifeless right now, once more, despite this regrowth.

    I'll be updating when I can, so that I can properly indicate whether I feel this is a certain recovery and if so, what's working.

    Thank you and I wish you all the luck in the world xx
     
  4. Din

    Din Established Member

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    Hi md.

    I dont think you have to worry about the brows shedding. I know a girl who lost hair and recovered, but her brows and lashes were still shedding. I think that your cte is in recovery, but your brows may still be in the te phase, but that will also stop eventually. You just cant worry about it and dont stress over it. You are on your way to recovery;)

    I am still in the cte phase, but i hope that i will go into recovery. You give me hope. I wash my hair three times a week and lose around 75-100+ per wash. I lose 4-10 hairs on non wash days, but for me, that is a huge shed. My hair is getting thinner by the day and i am so scared. There is just no sign of it getting better, and it really messes with you..if i color my hair, i wil lose over 250 hairs easy, and if i use a medicated shampoo my hair will also double, so i have no idea what is going on. I wish it would just stop. I am so tired of this all.
    Din
     
  5. md.

    md. Guest

    I understand exactly how you feel.
    Some things I recommend are:
    -Iron supplements taken with a L-lysine supplement
    it allows for proper absorption and I take an iron that already has vitamin C blended.
    -B12, if you suffer from stress take it, it is also very essential for hair
    I added this 2 months ago.
    -MSM, apparently it 'lengthens' the anagen phase of your hair. I'm not entirely sure about this, however, I have had no bad reaction
    -Take Omega 3 oil, I take 2 spoonfuls daily of a liquid which tastes nothing like it, this is for general health because I do not get enough in my diet.
    -B6, I recently added this a month ago, I feel the B vitamins are essential in combating CTE. I read a thread that concentrated highly on B6, B12, Iron/L-lysine as must haves. < I agree on this.
    I also use the Folligen range, if you are concerned about loss, I genuinely believe that using the spray and the cream, daily before you go to bed, truly lowers your shed and are also somewhat useful in promoting growth. I just need to commit to using this like I had last year. The copper peptides are great healing agents for scalp inflammation if you have it (I never did) but also for minimising dreadful sheds and hopefully aiding regrowth.

    I will update more often and if you have any other question I am more than happy to answer, thank you so much for your belief in me, I hope that for the both of us we can finally put this in our past!
     
  6. sadness

    sadness Guest

    Din -I also know how you feel. I went through that not very long ago at all. It seems that right now things are looking up for me. I started shedding last fall and am finally starting to see SOME improvement. the problem is that I am not sure if this is recovery or just a slowed down shed for a short time. I especially understand the part of just being tired of it and not wanting to deal w it anymore and move on to something else. Im sure that youve posted it but can I ask...how long have you been shedding?

    Md- I also understand how you feel I think. Its hard too beleive that I might be in recovery. I am just waiting for the other shoe to drop. I have regrowth but I still hate to see any hairs fall. I realize that it is impossible not to lose any hair. I comb my hair in the shower and lose between 20 and 40 I suppose. Much better than it was, but Im scared all of the time, I lose hairs of different lengths. Some long ones, some that are about 7 inches long. I know that it is not time to lose them yet so I wonder why they fall. Maybe it is just part of the process. Im trying to be calm and not to think too much about it. Im nervous Ill put myself into a TE from worrying so much. Worrying doesnt help anything anyway. I know that I should just stop and be grateful and I AM grateful, but also fearful.

    Melissa
     
  7. Guest

    Guest Guest

    My hair is goin thinner and thinner day by day...Hope to find a good solution......
     
  8. Kelly7

    Kelly7 Established Member

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    md- I had hair loss since last May but it has slowed down for about two months now, although I've been losing eyelashes and a little bit of brows. My dermatologist said that my eyelashes are just falling out now because they are delayed. I'm hoping they stop falling out soon and my TE ends for good. Maybe this is the case for you too. I was losing about 250 to 350 on shower days, which was every other day and around 50 to 80 the other days. Now I lose about 100 when I wash my hair and less than 20 hairs are shed other days. I hope your CTE is over:)

    Sadness- I also lose short hairs. Some are over 12 inches as I have hair down to the middle of my back.....and others are as short as 1.5 inches, but I lose a lot of apx 3 inches. When I saw my derm and told him that I lose a lot of short hairs, he said don't even count those. I am still however looking at them because I check for exclamation mark haurs
     
  9. JeHope

    JeHope Established Member

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    md,

    I am so happy to hear that you're shed is so low now! Congrats!

    I am really looking into buying this Folligen stuff, but I wanted to ask you a couple questions about it. DId you try the Hair Signals line of Folligen? Did you have dread shed when you started it? If so, how long did it last? Also, do you use the emu oil that they recommend on the Folligen website?

    Thank you!!!
     
  10. md.

    md. Guest

    Kelly7, thankyou I hope it's over too. I'm having good and bad days with the brows lately, so just holding hopes that they will shed normally like my scalp. Good luck to you!

    JeHope,
    Yes I definitely recommend it. I bought and tried the spray and cream from Skin Biology so the Dr. Loren Pickart line. There was no dread shed, that I personally experienced, they recommend you use sparingly and that it will last for about 2-3months or so. But I used more than recommended and mine lasted about a month.
    I have tried the emu oil twice, it supposedly helps the peptides absorb, but you will find that you get dermatitis-like dandruff so it's not simple to keep it up unless you have time away from socialising to not worry about the flaking. Good luck!
     
  11. JeHope

    JeHope Established Member

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    I just ordered folligen and should get it by Thursday. I am excited to try it! How long were you on it before you saw results?
     
  12. md.

    md. Guest

    Took about 3-4weeks for noticeably less shed and i'd say 2-3 months for new regrowth to poke through, whether that was attributed to the use of folligen or not. Re-ordering some again too, ran out over a month ago and really want to get back to using it regularly!
    Let me know how it goes for you!
     
  13. md.

    md. Guest

    Well, I evaluated my hair today. It's thin, probably miniaturized, appears that way, dead, limp, and the regrowth is that way too. So regardless of the shed on my scalp being low...i'm not recovering.
    I've been suffering for 3 years now and i'm only 19 years old. I've been suffering this for too long, it's beyond the extent of recovery.
    I looked at my hair in the sun and it's more see through everywhere, i'm sickened. I just feel numb, and don't feel obliged to say any kind words because I've learnt that nothing can save me from this. No vitamins, treatments, or moods that I go through have helped me. It's been a long and tormenting fight. The only thing I have left in me now is probably to summon the guts to put my mind and body to rest. So I don't have to carry my life in fear and being disgusted in myself. I didn't think i'd ruin my life so young but hey, I did it.
    Sorry for getting your hopes up on this thread, because in all honesty, once you hit a few years with hairloss without any improvement, I think you're doomed that way. Well atleast I am.
     
  14. Lost

    Lost Guest

    Oh md. so sorry your feeling so bad right now,I know the feeling I've been at this 1 1/2 years now and even though I have regrowth I shed it along with hair of every length on my head,and I too am just getting thinner and thinner and more scalp showing. mine is not from cte though could be somewhat since it started from te but I was told te uncovered Androgenetic Alopecia I hate it!!! I get sick everytime I look i the mirror,hang in there your not alone!! D.
     
  15. Din

    Din Established Member

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    Hi md.

    Listen sweetie, i know how hard dealing with cte is. Its a death sentence, at least that is what i feel too. But.... You cannot despair. NOTHING happens over night. The fact that your shed is lower now, well be thrilled!! Imagine what you would feel like if you were stil shedding?? You would be in pretty bad shape. You will recover and just because you had cte for three years doesn not mean it is too late for recovery. Cte to be done in three years is actually awesome because it can take 10 years or even more to stop. There was a postr here by the name of NIKI, she had cte for five years and she recovered and got all of her hair back. I pm'd her not long ago and she was kind enough to write to me and give me hope. She found my message by fluke, she hasnt posted here since 2006 and i was so happy to hear that she recovered and got all of her hair back after 5 years of shedding. So we have hope too, and you are already on your way. Just give it time. It takes a long long time to recover. You are so young, 19, i really feel for you, but because you are so young your chances of full recovery are very high!!
    So please, put your chin up. You survived the worst. It will only get better from here. Please feel better ...you will be ok. Dont let a bad day defeat you. You are a survivor and you will beat this and life will be good again. Never give up hope!!
    Hugs,
    Din
     
  16. md.

    md. Guest

    Din,
    Thank you for that. This is what is troubling me, others day recently like today i've lost like 7 brow hairs at just a light touch, I don't have patches and don't understand how that is possible since they have been falling out irregularly for almost 3 years. They have gotten immensely thinner and I barely have days where they don't shed.

    So despite my scalp hair how can I feel that i'm recovering if they don't follow through and stop shedding, regrowth is helpful and some regrows but the high shed gets me so discouraged!

    Help?
     
  17. Din

    Din Established Member

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    Hi MD.

    You know, you can have te on brows and lashes even though your scalp hair is no longer falling out. I know a girl who had a te, and at the same time also lost brows and lashes. Her hair stopped falli g out but till today, two and a half years later, her lashes and brows still fall out and her hair all grew back. So it means nothing that your brows are still falling out, as you know there are no rules when it comes to hair loss.
    Trust me, it is better to lose brows then to lose hair. Your brows will fall and grow back, but no one will ever know but you and you will not have complete loss, they will just thin out.
    Be happy md. You are on the way to recovery. Just like your scalp hair stopped falling out, your brows will stop as well. Dont worry!!

    Din
     

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