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Gradual Thinning And Receding(pictures) And My Experience With Hair Loss

Discussion in 'Women's General Hair Loss Discussions' started by smile967, Jan 18, 2020.

  1. smile967

    smile967 Member

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    Hey everyone! i've been looking on here for many years but never felt brave enough to post. My hair loss started when i was 22 and i'm 26 now.

    Long story a switch in birth control triggered very high levels of shedding hair, decreased growth, receding hair all over the edges including my neck and general thinning i am still experiencing now. I was quite upset for a long time going to doctors, hiding out from friends and trying every product out there. At some point i realized hair loss was consuming me, and i was really missing out. Even though i was very depressed at the time and rarely left the house, i forced myself to make plans and always be around people and at some point faking happy turned in to genuine happiness. I even met my long term boyfriend AFTER the hair loss started and made amazing friendships with people who i knew would never care about it.

    The repetitive cycle of hope when going to the doctors, getting tests, or trying things like rogaine, vitamins and Spironolactone only to not see any results started to effect me more than the hair loss itself. I've let go of finding a solution and am focusing on living my life and finding support more in dealing with it then fixing it. I'm lucky because the loss is moving slowly so i have time to mentally prepare and plan for steps like wigs, toppers ect down the line.

    I've attached a picture of my hair now. It is hard to tell how its thinned out elsewhere, but my temples use to be mostly covered and the sides show the general thinning happening all over. The little hairs you see that look like regrowth progressively fall out and the hairline keeps receding. It isn't terrible yet and i'm ok with any loss to come, but i would love to hear from others experiencing similar loss, or just anyone who needs a bit of support themselves. I really feel as much as this has sucked i also gained so much going through this all. Sorry for the long ramble this post was many years in the making!!
     

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  2. RoxyT

    RoxyT Member

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    I'm glad you shared your story. I find it helpful to read how you are striving for acceptance of what's happening and finding positive aspects of your experience along with the negative.

    Like you, my loss/thinning has been relatively gradual. When my shedding increases, it doesn't feel so gradual, but it's nothing like people who have rapidly progressing alopecia areata.

    I've been to four hair loss specialists and had three inconclusive biopsies. With every treatment has, as you said, come a sense of hopefulness.

    The only thing that has made a difference is oral minoxidil. It seems to keep the hair at my hairline grow faster and stay in longer. The same with my eyebrows, which had become quite sparse.

    You have a great attitude. Thanks for contributing to the conversation!
     
  3. alexia35

    alexia35 Member

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  4. alexia35

    alexia35 Member

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    hello Roxy, I understood that you suffer from a fibrosing frontal alopecia? it's not that? Thank you for your reply.
     
  5. Sandy

    Sandy Established Member

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    I had posted elsewhere on this site, i am a lot older than you and my loss started only at menopause and only with center front loss. I still had a lot of hair so endured but gradually it worsened moving to temple areas and volume in general. About 1-1/2 yr ago the front got worse and i had a biopsy in that one dr thought could be frontal fibrosing alopecia but it came out negative. I dont know if these biopsy results can come out wrong. At any rate i have been to 3 transplant drs and all recommend transplant. My husband says if course they do, that is their business.
    At any rate dr donovan in canada suggested trying finasteride 2-1/2 mg for 3-6 months first. I dont like taking meds so i resisted but a few weeks ago i noticed the front had worsened so i bought the meds, when i am they only come in 1 mg pills so i am taking 2/day. I thought to try for 3-6 months and if doesnt work to proceed with transplant if i can find a dr i feel confortable with.
    My hair overall is thick, just front/temple areas so i have good donor area. I read that 60% of women do have regrowth on 2-1/2mg (none on 1mg) so i will try. I dont know if oral minoxil would be better?
    It is very disheartening and my moods each day depend on my hair, how depressing is that.
    I have also started using a small amount of topik to that front area sometimes but i hate using it and dont really like how it looks.
     

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