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It’s One Of Those Kinds Of Days (struggling)

Discussion in 'Women's Alopecia Universalis & Totalis' started by Sophie C, May 25, 2018.

  1. Sophie C

    Sophie C New Member

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    hi friends! So I am a 15 year old struggling with total hair loss and I recently got my new human hair lace front wig. I realize how lucky I am to be able to get this, but I’m just having one of those tough days. I miss in a sickening way the way I used to able to part my hair any way I wanted. Summer is coming up and I want nothing more than to get my hair wet and not have to worry about it. I dream of having super long hair. I miss being able to wash my hair every day because I hate the scent tha5 develops on the wig after a week. I want to put my hair up in a bun or a ponytail. I want to be able to dance with the same hairstyle as all the other girls in my ballet class. I feel so ugly when I don’t have it on and it has been causing me a lot of distress since summer is coming. I just feel like I somehow would be so much happier and my life would be just a tad easier if I had my hair.
     
  2. Anita

    Anita New Member

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    Hi Sophie,

    Oh my heart goes out to you. You are so young to have to go through total hair loss. For this I am truly sorry. I will say this though Sophie, that if I had to choose between let’s say blindness, or going deaf or hair loss, I would choose hair loss. I could still see my loved ones beautiful faces, and hear their laughter, join in sing-alongs...I guess what I am trying to say is that there is so much joy that can be found in life....and guess what, hair is really just an accessory. You can change your look with different wigs...Maybe even have some fun with different looks. Think about all the wigs that Kyle, Kim and Khloé wear unabashedly. It wigs, bang clip-ons and extensions are good enough for them, then we can make them work too! You know what? I lost my outer eyebrows too, and now they are tattooed. My eyelashes are got really skimpy—-so I wear fake eyelashes. I even had eyeliner tattooed on....and you know what? I feel better about myself. Now when I get up to go out early, I can put on some lipstick and blush, and I am out the door.....At some point I’ll need a wig, like my mother....Funny thing though, my Mom wore wigs, and she just said she had thin hair and a high forehead. No one mentioned that she had such extreme hair loss. Who knew? I never caught on until a few years ago, when I started losing my hair. (I’m 58)...I will tell you this though- Every day before I got up, she was dressed and made up. She always (and I really mean this) looked beautiful. So find what makes you feel beautiful and confident and be the best you that you can be : ). There are too many good things to look forward to in life to let wearing a wig get in your way....I sincerely wish you the best Sophie.
     
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  3. Sophie C

    Sophie C New Member

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    Thank you so much for your kind words! I really appreciate it❤️
     
  4. DontWannaBeBald

    DontWannaBeBald New Member

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    I know exactly what you're going through. I got my first wig last week and spent hours crying over it, trying to get it to look "natural". Life has not been kind, or fair, to us. More power to you! I hope you stay strong :(
     
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  5. Iyyi

    Iyyi New Member

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    Hi there! That’s how I felt too. I’ve been wearing my wig for 3 weeks now. It’s really depressing but life must go on. Been shedding for more than a month.
     
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  6. Sophie C

    Sophie C New Member

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    It’s just been getting harder instead of easier. I would give anything I have or will ever have to get my hair back for even one day.
     
  7. Tara49

    Tara49 New Member

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    Hi Sopie
    I'm so sorry that you're going through this at such a young age. It's horrible but its not the end of the world.
    I truly do not believe that you have this for life as a cure is very close and trials ongoing.
    But for now we have to get on with it.
    I have a hair system called a Freewear which might suit you better than a wig.
    It is quite expensive but for me it's worth it. You can also get good discounts if you model for them.
    My system is made of human hair and built with mesh onto my head. It's very comfortable, I can't feel it. I wear it all the time 24 hrs a day. I shower in it, sleep in it, tie it back, clip it up, whatever. It's NOT the same as having my own hair but it's as close as possible as I really don't ever like to see myself without it and I like to wash my own hair every week, my hair dresser knows and sometimes I got there which is nice.
    I also have my eyebrows tattooed which is very fashionable so that's fine - I have some cute eyebrow wigs from headcovers which are actually amazing but I hardly ever bother.
    I wear fine natural looking lashes on the top and smudgy liner on the bottom so you don't need bottom lashes, keep the top lashes simple so that your upper and lower eyes look balanced.
    I was so very very depressed, I used to wake up every day and my heart would sink as I remembered but It does get better.
    I believe there is a facebook page for alopecins which might attract more people your age and if I could choose one of us to grow our hair back. it would be you. I promise you'll adapt - it's not an eye or a limb you've lost - its just hair.
    Tx
     

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