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Mirena - Out or In?

Discussion in 'The Undiagnosed' started by Adi, May 1, 2012.

  1. Adi

    Adi Member

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    Hi,

    I am 32 yr old, and my hair loss started about 10 years back. I got Mirena in 2009 and by 2010 I had increased facial hair(I didnt attribute it to Mirena then, am wondering now). I have worsened hair loss in the past 9 months and want to take concrete steps.

    I recently heard that Mirena causes hair loss and I am wondering if the worsening over the last year is due to Mirena. I have had it 3 years now. It has been very convenient using Mirena, but if this is the cause, I want it out. Anyone else have issues with Mirena??

    Please help - any thoughts would be nice to hear. My Doctor didnt mention this as a side effect and she has been aware of my struggles with hairloss - she just says this is due to genetics and there is no recourse besides Rogaine.
     
  2. SabrinaLouise

    SabrinaLouise Senior Member

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    Oh Jezus. Get it out! It started my whole hairloss mess--I had it 2.5 years and that's when my hairloss/weight gain nightmare began. Too, I was told by a knowledgeable person that the the hormone in it is causes hypothyroidism.... It caused extra body hair for me--saw the hair on my arms and abs getting longer and darker.... If you haven't yet, search "Mirena and hairloss" on the internet. Especially CUREZONE and you will see women complaining up and down about hairloss with Mirena.
     
  3. SabrinaLouise

    SabrinaLouise Senior Member

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    I do have to also add that it is taken me a very long time to straighten out my hair loss situation, in spite of getting it removed. Got it out when I was 38 and I am almost 45 and just in the last 6 months got my hairloss under control with minoxidil and folligen.
     
  4. Adi

    Adi Member

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    Thanks for responding SabrinaLouise!
    Few more questions - Is your hair loss completely due to Mirena or from before as well? What treatments are you taking - do they have any side effects?
     
  5. SabrinaLouise

    SabrinaLouise Senior Member

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    Adi-My hairloss started after I had mirena in for about a year (or maybe even less) but I am 99.999% sure it was the catalyst--I never had a problem before that. First I got fat--went from 5' 7 1/2 and 155 lbs. to 202 lbs--I kid you not, then my hair started pouring out of my head. I have since lost 22 lbs and really struggle trying to lose weight and am on natural thyroid. My treatment is 5% minoxidil liquid after washing my hair in the am, waiting one minute and then spraying ontop of the minoxidil with hair signals and folligen. Other than that I take multi vites and some antioxidant-type supplements, but I'm not super stringent on that--meaning I probably do that 5 days a week and skip the weekend. I was really desperate last October and I was so thin in the front that I could see scalp and used brown dry shampoo to hide scalp. I stopped doing that a couple of months ago b/c the minoxidil provided enough regrowth so that I don't have to. Too, my progesterone was low and I take compounded progesterone drops. They help keep my period normal. At 40 I was have irregular periods--45, 50 and 60 days out and was a real mess. The progesterone helped normalize all that and I have been pretty regular b/c of it.
     
  6. Adi

    Adi Member

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    Wow.. I am really glad to hear of your regrowth. I am thinking of starting Rogaine as well. One more thing, do you wash your hair every day? I am washing every other day as of now, but it get really oily the second day.
     
  7. SabrinaLouise

    SabrinaLouise Senior Member

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    I wash my hair every single day and I have been using Joico's clinacure for 3 or 4 months--it's pretty easy on my hair but leaves it clean. The folligen spray also helps it stay cleaner feeling and rather acts like a volumizer.
     
  8. Adi

    Adi Member

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    Does all the hairloss after mirena come back? or some of it is permanent? Anyone else have more oily hair and mroe facial hair with mirena?
     
  9. Adi

    Adi Member

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    I found a very interesting post on Mirena and wanted to share:

    http://community.homeandhealthtv.co.uk/ ... /897107522

    See the response from txjuliebee. All of her reply makes perfect sense for my case. I have the increase facial hair, very oily hair, acne on and off and the hair loss!!
     
  10. Adi

    Adi Member

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    Now I really want Mirena out asap. However, I am travelling overseas for 2 months(mid June to mid August) and am worried that I will be hit with the heavy periods and possible other side effects while travelling. :(

    What do I do... now knowing that it is probably the cause of so many things, especially a lot of my hair problems. Every day with it seems like a burden that I want to get rid of.

    Still struggling - Out now or Out later.
     
  11. waterbaby

    waterbaby Guest

    If it were me I'd get it out ASAP and get your thyroid levels checked just before you leave so you can adjust your thyroxine dosage if necessary.

    Too much levothyroxine = hyperthyroid=lighter periods

    Too little levothyroxine= hypothyroid=heavy periods.

    Don't know if all the gobbledygook means anything to you but one of the papers I read last night was this:

    http://www.njmonline.nl/getpdf.php?t=a&id=10000331

    Basically what they found was that when women on fixed thyroid hormone replacement therapy get given estrogen they need less T4. When they get given androgens they need to take more T4.

    Interestingly this effect was only seen when women took sex hormones orally, not when they used patches.

    If the progesterone in your IUD is having an androgenic effect then you might need to alter your thyroid medication a bit when you get it out.

    At the end of the paper in the conclusion they say:

    And in another paper I linked earlier today they said this:

    Soooo....sooner rather than later. You don't have 6-8 weeks but I'd get your TSH levels checked just before you go anyway. Don't know where you're going but if you have problems while you're away thyroxine is available all over the world and they do have doctors elsewhere too!

    Hospitals in Bangkok are world class for example, way better equipped with the latest technology than any I've seen in Europe and you can get an appointment with an endocrinologist or a gynecologist very quickly too. Often you don't even need an appointment. Just wander into a hospital, register, and they often apologize profusely if you have to wait more than 20 minutes to see a US or European trained specialist! I kid you not. They can do any test you can get at home in Bangkok and prices are way lower than what you pay in the US as well.

    Only problem is that natural thyroid extracts like Armour aren't available everywhere in the world and levothyroxine tablets aren't always available in lots of different dosages. (eg you might have to cut pills in half). Cytomel (T3) might be difficult to get in some countries as well.
     
  12. Adi

    Adi Member

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    Waterbaby - I am going to India visiting family and both my parents are doctors. So I am not worried about medical care and can get the levoxyl in any dose, but I will be travelling to different places at different times, staying with parents and in-laws. My thyroid tests have shown results in the usual levels everytime, but my current doctor only tests the T4. I am trying to see how soon I can get this Mirena out.
     
  13. waterbaby

    waterbaby Guest

    India! Wow, hope you have a great time. :)

    Hey, the other day I was looking for natural home made shampoo recipes and the oldest known "soap" comes from India. It's made from the fruit of a tree that grows there.

    http://en.wikipedia.org/wiki/Sapindus

    Soap nuts are now sold in the west as an ecologically friendly alternative to detergents and they're used in some shampoos as well.

    I stumbled across a very old scientific paper (1979) while I was looking at this. Scottish scientists were testing the toxicity of Reetha on mice to see if it could be safely used as a shampoo. They used Sapindus trifoliatus, not the usual Sapindus mokorossi that is sold as soap nuts now.

    They got a very strange and unexpected result that they couldn't explain. They weren't even looking to see if the plant grew hair or not but they noticed that the Sapindus trifoliatus extract grew masses of hair on female mice and didn't have any hair growing effect on male mice.

    http://journal.scconline.org/pdf/cc1980 ... p00271.pdf

    Interesting result I thought, but unfortunately I couldn't find a single soap nut supplier selling Sapindus trifoliatus where I live. They all sell Sapindus mokorossi.

    I wish I was going to India ... it seems to be one of the few places you can actually buy Sapindus trifoliatus and I'd love to see if I could replicate that experiment on my head!
     
  14. Adi

    Adi Member

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    hi Waterbaby... yes I am excited about the trip too! :jump: I will be meeting family after almost 2 years. A bit nervous too, since it will be very hot(about 45C or 108F) in the monsoons and the heat, sweat and rains will make my hair loss more prominent.

    In India there is a lot of Ayurvedic and ancient medicinal remedies, such as Reetha, Amla etc which are recommended for hair. I will get some, but most of these remedies work after using periodically for sometime, and may not work for everyone. I will post here if i see any benefits :)
     

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