Dismiss Notice
Welcome! Please read this announcement regarding the new Forums: Click Here"

My Experience With Frontal Fibrosing Alopecia

Discussion in 'Success Stories and Positive Outlook' started by EllaUK, Apr 25, 2022.

  1. EllaUK

    EllaUK New Member

    Apr 25, 2022
    Likes Received:
    Dislikes Received:
    My hairline has receded approximately one inch over the last ten years (an inch and a half on one side) from Frontal Fibrosing Alopecia (FFA). I have the tell-tale patchy hairline and lone hairs, including intermittent itching and red patches. Hundreds of articles about FFA are stored on my smartphone and computer.

    What I've learned thus far:

    First described in 1994, FFA is a new and poorly understood autoimmune condition that attacks intermediate hairs on the scalp, but spares vellus and terminal hairs. A combination of genetics, hormonal status and environmental factors may trigger FFA. A long list of suspected triggers includes titanium dioxide* (found in sunscreens* and make-up) and certain foods: buckwheat* and millet*. Vitamin D is problematic as it may improve or worsen the condition.

    Hormones play a big role, in particular androgens and DHEA etc.

    Conventional medicine hasn't helped my situation much so I've researched the topic myself, as best I can. (I usually skip to the 'Conclusion' section of a scientific article.)

    What helps me:

    I take one Dutasteride* capsule (off label use) per month. Dutasteride has a long half-life of approximately five weeks. (This is simply to save money. Once a week may work better.)

    When I feel itching or if I experience a flare-up, I apply a mixture of jojoba oil and peppermint* Essential Oil (EO) directly to the scalp using a cotton bud. (In a small glass dropper bottle of 30ml of jojoba oil add 20 drops of peppermint EO. Lavender* EO works too but may have a sedative affect.)

    I try to avoid dairy and gluten, which cause flare ups.

    I try up manage stress, which causes flare ups. (Sensitivity to certain foods ie. tyramines etc, may cause stress too.)

    I try to eat an anti-inflammatory diet.

    I avoid all make-up and sunscreens that contain titanium dioxide. Instead, I've made my own concealer powder (videos on YouTube) and I try to expose my scalp and my hairline (without sunscreen) to direct sunlight/UV* for a few minutes each day.

    I drink green tea* with a little turmeric* powder mixed in.

    Some new things I plan to try:

    Reishi mushroom* capsules along side, or instead of, Dutasteride.

    Regular vigorous exercise for DHEA* levels.

    Avoiding buckwheat and millet, which may be triggers.

    What's helped me most is applying topical jojoba/peppermint oil and Dutasteride.

    * mentioned in scientific literature pertaining to FFA and general hair loss issues/remedies.
    The Chook likes this.

Share This Page