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Need Some Advice On My Hair Loss Journey Please!

Discussion in 'Women's General Hair Loss Discussions' started by gracek21, Oct 3, 2020.

  1. gracek21

    gracek21 New Member

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    So I’m 21 and my hair has been thinning for about 3 years now. I have Lupus and PCOS. I finally had enough of it since my hairline is awful now and I have about half the hair I used to. I started Rogain 5% once a day three months ago. Two months ago I went to the derm who told me to go up to twice a day, which I’ve done. He’s also started me on 50mg Spironolactone which we will work up to hopefully 200mg since I have heart problems and had to start on a low dose. He also tested my Ferritin which was a 7 so I’m on iron as well.
    So it’s been two months since that visit and I’ve been doing everything religiously aaaaand I’ve seen no results. In fact my hairline even looks a bit worse. I know it all takes time but I’m very stressed. I’m a senior nursing student and hopefully getting engaged soon and would really love my hair back hahahaha! Does anyone have any advice or encourage of any kind!? Thanks!
     
  2. MommaBear79

    MommaBear79 New Member

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    As someone who has been battling hairloss since my teens, my advice is to stick with your current regimen. Both of the medications you’re on work, but it does take time. The reason your hair looks worse now is because with rogaine, you shed first and then start to see new growth 3-4 months later. Until your hair starts to improve, try topikk. I use it everyday and it makes a big difference in how your hair looks and it’s undetectable, if applied correctly. I don’t put it directly on my part. I make a part directly to the left and right of where I part my hair, shake the topic to cover those parts, and then part it in the middle of the two. This makes my part look smaller, but I still have a part. In the back, I shake the toppik right over the thinning areas, lifting sections of hair as needed to cover then. The other cosmetic thing I can suggest is color your roots. The hair that grows initially is colorless. If you color it, then you can see it and it gives your hair more density. Hope this helps! Good luck!
     
  3. MommaBear79

    MommaBear79 New Member

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    Oh and one more thing, it takes 1-2 years to see significant improvement. It’s a long time but it’s worth it. Try not to get discouraged. I am in my 40s now and still have a significant amount of hair. With the cosmetic tricks I’ve learned along the way, most people don’t suspect that I have hairloss. If I didn’t stick with rogaine, I would probably be wearing a wig by now, like my grandmother, who I inherited my hairloss from. Also for your wedding, make sure you get someone who can work with clip in extensions! They’re your best friend :)
     
  4. alomom

    alomom Member

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    Please take it from a mother whose daughter lost her hair while attending college. You can always have hope that your hair will start to grow again and it certainly might. Alopecia is a big guessing game. We took our daughter to all the specialists, even the Mayo Clinic to be sure it was nothing else that was causing the hair loss. Then we took all the treatments, shots, gels, Rogain etc. Unfortunately, her hair did not grow back. She too was 21 years old at the time.My heart was broken, but my daughters took it like a champ. This is why she took it so well, she had the support of all those that loved her and my desire to find her the best human hair wigs possible. This learning about wigs took me to China so that I may understand everything I could about wigs. I needed to understand what type of hair is the best, which caps worked best for those with alopecia. It all worked and we transitioned to wigs when her hair got too thin. She lost all of her hair in 4 months. By that time we had found a great wig that looked like the hair she lost and off she went back to college after xmas break. There is so much more to write and I am a NAAF phone support person so it would be great to speak with you if you so desire. A wig or a topper is not a bad thing. It gives you time to adjust to what is going on and does provide confidence so that you can live your life to the fullest. Our daughter graduated college, started her career and found a wonderful husband. Many people are very comfortable not wearing wigs and that is what suits them. My daughter did not want to go without hair and we were there to support her. Please let me know if you need any guidance or support, that is what this website is here for as well as the National Alopecia Areata Foundation of which again I am a phone support person. My email address is Lisa2157@gmail.com
    I wish you the best in all that you do, Hugs
     
  5. gracek21

    gracek21 New Member

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    alomom:
    Wow that is so inspirational to hear about your daughters attitude! Crazy that it all went so fast for her. I hope I don’t have to wear hair but if I do I hope I have her same outlook.
    MommaBead:
    Thank you so much for your reply and insight! I know it’s early on and I will for sure keep plugging away. It’s hard right now I feel like every day is worse. Really just in the hairline. It’s like all of my long hair has fallen out and I’m left with hair that’s about 2-4 inches long. Very strange. And my fear is that those hairs will fall out too and then I’ll be COMPLETELY bald in my hairline. It’s just discouraging the rate at which my hair is getting worse, before this it had always been a very slow progression. I also I’m so so stressed about my friend’s wedding. I’m a bridesmaid and we are all having our hair done by a professional in a low bun... I’m worried because I have to do my hair in specific ways to make it not look awful hahaha.
    Sorry, just a lot of stress about this situation right now. Thank you!!!
     

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