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Discussion in 'Women's Alopecia Areata' started by AAat39?, Jul 2, 2010.

  1. AAat39?

    AAat39? Guest

    I have noticed that when my Alopecia Areata is active, I my allergies are inactive. Completely inactive. Anybody else experience this?

    Today should be an "allergy day" with storms blowing through, and other people at work sneezing, and such. Me, nope. Nose, sinuses are both perfectly clear.

    Also, my leg hair barely grows, but that is obviously related.
     
  2. AAat39?

    AAat39? Guest

    Found some new information on the allergies from my certified nutritionist, seems the head shots of cortisone suppress them. Must mean they are working and are systemic... Seems when your body is fighting the inflamatory response, the allergies are suppressed.

    Even IF this new discovery on my part has no hair growth response, I am satisfied that there is something huge going on with my body and the supplements with the no allergies.

    I also picked up some higher concentration colostrum. Isn't even called that on the bottle. IgG 200 DF product that regulated your immune system. Also bout a tumeric product that is suppose to reduce any anti inflammatory responses.

    I hope this sparks some curiosity in some of you ladies with the Areata.

    I'll post any results. Right now still have the growing large mostly BALD spot, one smaller spot and rest of hair is hugely new growth, causing any style to be crazy and need sunglasses to hold it off the face.
     
  3. kat1979

    kat1979 Guest

    I have had asthma half my life, hay fever most of it, and eczema since I was born. The Alopecia Areata began in July and I am almost bald :(

    Because of my eczema, my skin, especially that which is on my face, has been a very difficult, sometimes painful combination of severely dry and dehydrated. I wake up winter mornings and have dead skin in bed and pillow. Really gross. But since the hair began pouring out, I noticed a complete change in my skin type. Frustratingly, no doctor seems to be able to comprehend this. It went from cracking and dry to almost oily and very comfortable. So so strange. On the plus side I don't use nearly as much skin care (that costs a fortune) as before.

    It almost feels as though my immune system has moved on to devastatingly attack somewhere else on my body.
     
  4. AAat39?

    AAat39? Guest

    Kat, is there any history of rheumatism in your genetic family?
     
  5. AAat39?

    AAat39? Guest

    BTW, after I read more, I quit all immune boosting supplements, and my hair started to fill in like mad. I don't know if it was the shots or the timing, or a combination. But feeding the immune system with areata was probably not he answer. No idea.
     
  6. kat1979

    kat1979 Guest

    No, there is no rheumatism in my family. Lots of allergies, eczema, and hay fever though.
    I recently quit all immune boosting supplements also. Hair is still pouring out, it's going to be time to shave my head soon :(
     
  7. AAat39?

    AAat39? Guest

    sorry to hear this Kat! hang in there! I was right where you are when everything turned around. Friends and family convinced me not to shave...
     
  8. karamy6

    karamy6 Guest

    Kat, Don't give up. Don't shave. I'm new to this forum as i just found out a week ago that I have alopecia. I try not to cry about the hair loss but it has left me devistated. Stress/ menopause are not my friends. :badmood:
     
  9. kat1979

    kat1979 Guest

    Ladies, thank you for the words of encouragement. However, I got my boyfriend to shave my head last night. Very traumatic, but kind of a relief too...I lost 80% of my hair since July this year, and am so tired of having handfuls of hair everywhere. I am surprisingly loving my new wig, so it is allowing me to go on with my life. I am trying not to think about summer though, I am such a beach person :(
     
  10. karamy6

    karamy6 Guest

    Kat, What a brave person you are to cut your hair. You must have a wonderful boyfriend! Like I said, I'm new to this. I found a new little spot this afternoon. Funny how my friends at work check my hair for coverage. I hate it if the wind blows. My major spot on the top of my head is a little over four cm's. I have another one that is about 1/2 cm and now this new one. I got my hair cut this past Saturday. My hairdresser had so many questions as he has discovered his mom suffers from alopecia.

    I had my first set of injections a week ago. Did you have this? If so how did it work for you. Thanks! Pamela
     
  11. kat1979

    kat1979 Guest

    I cannot imagine having to go through this without the love and support from my boyfriend.
    Anyway, when I started losing massive clumps of hair in July, it was evenly distributed. Multiple doctors said they could not diagnose me, so no one administered any shots. By the time I got a confident diagnosis, Alopecia Areata, it was November, and I had lost 70% of my hair. This specialist started me on DCP therapy, I am on the third week now. Shaved my head on Monday.
    Good luck with your treatment!
     
  12. AAat39?

    AAat39? Guest

    Hey Kat, You are so lucky that you have the loving support of your boyfriend. However, I am sure you would be fine if you did not have that. Part of the stress in my life during the onset of my alopecia was the total breakup of my family and a lot of other events in a short period of time. Although I was dating, I can't say I really had a relationship either...
     
  13. therese527

    therese527 Guest

    Kat-your story is very similar to mine. I started losing hair in February and by June I had lost over 80%, so I shaved it off. I have been wearing a wig ever since. I live in Australia and I'm a total beach person. I guess I'll have to get used to wearing hats :(
    The good news is that I'm starting to see new hairs sprouting up all over my head. The regrowth is VERY slow, but for the first time I am seeing growth over 50% of my scalp. The hair has no pigment (yet), but I'm hopeful. I was going to try the DCP therapy a few months ago, but I decided against it. Let me know how it goes!
     
  14. karamy6

    karamy6 Guest

    Theresa, what is DCP treatment? I'm doing injection treatments and would like to find someone of this regime/treatment.
     
  15. therese527

    therese527 Guest

  16. karamy6

    karamy6 Guest

    Newbi, Not sure if the injections are working yet. I have only had one treatment which was 17 injections. I do see new hair but at the same time I have a couple more sites of hair loss. This is only what I can see. Sorry, I hate losing my hair. Tired of taking showers and see my hair float away. I don't mean to be vain. I feel I'm blessed to be otherwise healthy. I have had stress in my life that is now taking its toll on my hair.
     
  17. AAat39?

    AAat39? Guest

    Karamy,

    In my experience, the injections started to work after the second full dose treatment, then I had a third (not full amount) and then the spot filled in. My derm says there is a maximum dose she can use once a month. One time I delayed the second set of injections, that was a bad move, it took much longer to grow again.
     
  18. karamy6

    karamy6 Guest

    So how is your hair now?
     
  19. Filipinaako

    Filipinaako Guest

    I came from philippines almost 2 and half years ago. When i arrived here in kansas i had hives as in super hives... Evrytime the weather changes , hives attacks. And now i have Alopecia Areata. Does hives have something to do with Alopecia Areata? Before knowing my Alopecia Areata last saturday i noticed that my scalp itches so much but so far for 3 days now its not itching. Just cant help looking in the mirror again and again.
     
  20. karamy6

    karamy6 Guest

    I go in today for my second set of injection. Although I have lost a bit of hair it seems in the past week the hair loss has subsided. I didn't sleep well, last night. I had a dream I was trying to get to my appt. I was late. Somehow I ended up in the house where I grew up. I was talking to my mom and then told her I was late for my appt. Somehow I ended up on a bicycle trying to desperately ride it. I couldn't peddle.

    I guess Iam just dreading the injections today. To me, they hurt like hell! I have never liked needles with the exception of sewing. lol I need to keep my humor.

    I need to find out what hair products to use. Shampoos? Can I still color my hair? These are questions I wil have for my Dr. today.
     

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