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New here, don't know what to do anymore , please help (bloodtest results)

Discussion in 'The Undiagnosed' started by myr90, Nov 16, 2015.

  1. myr90

    myr90 New Member

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    Hi!

    I am a 25 y.o woman with extreme hairloss , which started slowly around may this year. Since august/septembre it went downhill, extremely. I almost lost all my hair :(

    Some background information;
    I also did not have my period anymore for almost a year (just came back due to hormonetreatment) because I was underweight and too low fat %. I had an extreme (raw) vegan diet en did a lot of sports. (Eating disorder)

    Okey, fast forward to now I learned a lot about hair loss , deficiencies etc. I started eating 'everything' and enough (!) again in the beginning of October. My ferritin started at 24, I got it back up to 41 and I am still taking Iron daily to get it back up to the 70-ish range.

    I was "hoping" my hairloss was due to lack of fats, proteins, being underweight , lack of ferritin, etc. But it is still extreme and im terrified! I even need to wear a wig, no fun at my age. (at any age actually)
    Now I am scared that maybe it's due to hormone imbalances/Androgenetic Alopecia :( I am so scared that this is more serious than just my underweight status, lack of nutrients and stress..

    I have some bloodtests , can some one please take a look at this? The doctors say it's normal, but I want to know if the results are in good balance..


    Ferritine: 41
    Hb : 8,2
    Oestradiol: 146
    Testosterone : 1.5
    Free Testosterone : 0,019
    LH: 20
    FSH: 7

    Please help!! I want to know for sure that my hairloss is due to TE and not something else. So I know I have to be patient, keep eating enough , taking iron and wait untill I will experience regrowth.

    Thank you so much in advance.

    :broken:
     
  2. Lily

    Lily Senior Member

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    Have you thought about seeing a nutrionist ?
     
  3. myr90

    myr90 New Member

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    Thanks for replying and yes, i thought about this.
    But also did a lot of research about nutrition and hair related nutrition. I make sure I eat salmon 4-5 times a week, a lot of green veggies, good fats (flax seed oil etc) and ofcourse a lot of protein in general...

    Also taking supplements etc.

    But I just want to know for sure this is due to lack of nutrions/underweight etc (TE) and not something more serious which needs a treatment.. :(
     
  4. DisTressing

    DisTressing Established Member

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    is your hair loss diffuse? Or does it look worse in some places? What about your family background -any history of Androgenetic Alopecia? Did your hair come out in clumps? Looking at the timeframe you are talking about, with a rapid loss of hair and the possible underlying nutritional issues, it certainly could be a telogen effluvium. The shedding can go on for months, and with some people even years. What percentage of your hair is left? Androgenetic Alopecia would probably not start with that much hair loss in such a small time window. And your health suggests serious trigger factors for TE, and seeing improvement once you address the triggers takes a long time. Many months, at least. Have you had a dermatologist (ideally one with a specialty in hair loss) look at your hair?
     
  5. myr90

    myr90 New Member

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    Thank you so much for your response!

    My hair loss is diffuse, all over. The weird thing is that my parting (in the middle) is not getting thinner, it's kind of the same?
    I don't know any cases of Androgenetic Alopecia in my family. My (western) mother used to have pretty thick hair in her younger years too, but has very thin hair now. But she had a lót of stress in her life. Pretty bad lifestyle/diet too. (Smoking, drinking alcohol etc) She never went to a docter to check tough. My dad has extreme thick hair, family of my father too (Thick, curly arabic hair, like i used to have :( )

    It was since may, so in a short period of time i lost a lót of hair. It was almost down to my waist, but i had to cut it. Almost nothing left :( I think i lost about 80% , which is shocking!

    I hope you are right and it ís TE, i will have to wait and see what time does. I had a lot of docter appointments for bloodwork etc. They did not seem to take it too seriously, I had to do a lot of research by myself, that's how I found out about ferritin levels etc. I have a appointment again this wednesday so she can send me to a derm. I want to know for sure this is TE. So I can sit back , "relax" and wait.... My intuition tells me it is due to deficiencies and stress. But you never know!


    ps. excuse my bad english by the way.
     
  6. DisTressing

    DisTressing Established Member

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    You lost a lot of hair very quickly and your center part looks the same -- these sound like GOOD things believe it or not. Much more like TE than Androgenetic Alopecia. I don't blame you, it's good to check with a derm but remember that so many of them don't even look at your hair and decide you have Androgenetic Alopecia. But with your symptoms and your nutritional history and the periods that were missed, plus starting a hormone treatment which could also have caused sudden shedding, I doubt Androgenetic Alopecia would be the first suspect. Keep us posted! Good luck! :)
     
  7. bc2005

    bc2005 Established Member

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    Growing hair is a slow process and yes you should give it time. It sounds like your body has some recovery to do so being patient will be important.
    Eating healthy is def important for hair and many other reasons of course, but I worry it sounds as if you have gone from one extreme to the other in a short time...And your hair needs time to catch up, too. :) BUT if you are still very worried that it could be Androgenetic Alopecia, then please get a biopsy. For me it helped to ease my worry a lot.
    It is SO easy and worth it! You cant even tell where I had mine and my doctor was very careful with stitches, etc.

    I wanted to add...sometimes stress, trauma, extreme body changes, nutritional deficiencies and hormonal imbalances reveal Androgenetic Alopecia...and yes sometimes earlier in life than we had hoped! My mother is almost 70 and has some thinning hair but still has enough hair to not wear a wig or concealer. Her hair did not begin thinning until her 60's. Unfortunately mine started in my 30's due to birth control and shifting hormones...which revealed Androgenetic Alopecia. Boo!
     
  8. mommybetts

    mommybetts Established Member

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    Hi!! I just wanted to share what happened to me in hopes that it will give you a bit of hope. My hair loss started this past January. It was like somebody turned on a switch that is how fast it started. One day not even one shed in the shower, the next day i could phsycially see hair coming out as brushed my hair. Super scary!! All of the doctors said I had TE until May, when I asked for a scalp biopsy. Shockingly they said the worst words a women could hear, its Androgenetic Alopecia!! However, I can say that I am on the right treatment plan and my hair has slowed down with the shed and my hair seems MUCH better. I raised my iron levels from 19 to now 50. The doctor also put me on BC (endometirosis is what we expect) and Spironolactone. I am using Diatomaceous earth and gelatin as well. Has anyone suggested a scalp biopsy to you? That is how I got my diagnosis. Today, I feel like its not the end of the world and that I am a road to recovery. I hope you find your silver bullet. If it is Androgenetic Alopecia, there is still hope and treatment available.
     
  9. DisTressing

    DisTressing Established Member

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    mommybetts, were you shedding excessively at the time you got the scalp biopsy? I was having this discussion with someone on another thread who suggested the results of a biopsy are inconclusive if the individual is shedding at the time.
     
  10. mommybetts

    mommybetts Established Member

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    Really? Yes, I was still shedding during that time. Would the results say that they are inconclusive?
     
  11. DisTressing

    DisTressing Established Member

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    The biopsy results may yield an erroneous conclusion and and/or the results might have been misinterpreted. I haven't corroborated that anywhere and I am not sure an average dermatologist could answer that question. A hairloss specialist would likely be a much better source. I don't have much trouble believing that as I have had a skin biopsy in the past which came back as cancerous, and I did not have cancer. I think I answered a post in another thread about your particular case. I could not understand where they came up with Androgenetic Alopecia. If strictly from the biopsy result, that is something you should be skeptical of, especially in light of your overall hair loss experience. It seemed out of step with your background. Everything you went over sounded like TE.
     

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