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New User - my story

Discussion in 'Tell Your Story' started by lmuk86, Oct 27, 2015.

  1. lmuk86

    lmuk86 New Member

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    Hi All,

    I came across this website by accident really looking at ways to dye a hair system… And thought I’d share my story.
    I’m based in the UK and I developed Alopecia Areata when I was 5 years old, I had steroid injections and the ointment you rub on your scalp but nothing worked and by 6 years old Id lost all my hair. Luckily it grew back and I spent most of my teen years with just the odd patch carefully parted to avoid detection! The doctor said it was caused by stress but I don’t recall being stressed by 5... My further research uncovered it to be an autoimmune issue and the more I think about it I’m lucky enough to only ever experience illness in a yearly bout of the cold – Ive never had chicken pox or tonsillitis, measles etc. even when others at school had it. Hopefully it is a sign for things to come… if my body can protect me from my hair follicles then hopefully I can scare off any further illnesses!
    Unfortunately aged 20 at university it all departed me and I developed Alopecia Universalis, I lost all my body hair including my eyebrows and eyelashes. From the neck down it’s a godsend… Id have it all back though to just experience normal hair again.
    I’m now 29 and I wear a hair system – I have my eyebrows tattooed (semi-permanent - which I would really recommend – it adds shape to the face which I never realised how much I missed when I pencilled them on – and as a massive needle baby it was relatively pain free!) and I also use false eyelashes which last me approx. 1 month which I re-apply every day.
    Regarding my hair system when it initially fell out I went to see a specialist who fitted me for a hair system and I decided on length and colour – it took 3 months to arrive (and INITIALLY cost the earth) but Ive not looked back since. After I had seen how they measure your scalp and hair line I ordered my own system online and I now pay a monthly fee (half the initial price) to receive a new system every quarter (due to the long length I have it only tends to last 3-4months). The lining is pretty much invisible and I wash and refit the system once a week (more if needed). It works perfectly for the gym etc and although its not my own hair I treat it very similar. It can be tied up and a lot of people in my daily life don’t know its not real. I cut and style my hair myself from fear of hairdressers cutting it too short and it works fine for me.

    I’m lucky enough that it no longer gets me down – I don’t have to worry about greys and I can get away with never shaving.. If I hang on to the positive points it helps me cope.

    I wondered if there were any other hair system users who have any tips/experience of hair systems and long term maintenance? Including dying a system?

     
  2. dancer

    dancer Experienced Member

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    Hi

    Welcome:) Sorry to hear you progressed to Alopecia Universalis and glad to hear the positive points help you cope, I can relate to that totally!

    I use to wear FLW but have changed to other wigs for various reasons.

    I do dye my own wigs and ( I did my FLW) when they are getting a bit tired. At first I used dyes that lasted for so many washes until I got more confident, but never use one with ammonia ! I never leave my wig for the full length of time recommended as it can turn the colour too dark, usually I leave it about 10 mins. I always sealed the cap with Got to be glued holding spray so the cap doesn't stain, avoiding the cap with the dye is essential,( however mistakes happen as in my first attempt and I found shampoo and gentle rub got it out!) If you still have an old wig it is a good idea to practise, firstly to find stop yourself from panicking if it looks wrong and to test if the hair is ok to dye, I can make one dye do two wigs. Make sure you rinse the wig really well, I use the shower head and run the water through the hair to help keep it from tangling

    After it is essential to condition the wig, seal in a plastic bag and either put in an airing cuboard for a few hours or ping it in the microwave for about 30 seconds, or use a hairdryer just to get a little bit of heat into the hair to take on the conditioner.

    Sealing the knots helps to stop the wig shedding and I bonded daily which really lengthened its life!

    Hope this helps :)
     
  3. bc2005

    bc2005 Established Member

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    You are so awesome for staying so positive through your journey! Your hair system sounds amazing. I guess a little extra effort and a little extra $ goes a long way! It sounds so worth it. Would you be willing to share a pic?
     

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