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Regrowth After 4.5 Years Of Cte With Mpb Pattern

Discussion in 'Success Stories and Positive Outlook' started by sunlit, Dec 24, 2018.

  1. sunlit

    sunlit Established Member

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    I was struck down by hair loss in 2014 after some traumatic personal events. I was only 20 at the time, my hair was coming out in handfuls to the point I was afraid I'd be bald within a year, and trying to deal with this on top of the awful events made me feel like the world was ending.

    My hair thinned out like mad, my hairline receded at the temples in the classic MPB pattern, I lost at least a centimetre of my front hairline, my parting widened, and the sides of my head appeared to have bald patches. This continued for 4 years and I gave up hope that it would stop or my hair would regrow. I worried about it continuously and lost all my confidence. I stopped going out much and became a shrinking violet. I did try spironolactone but it made me feel nauseous so stopped, and didn't want the facial hair or wrinkles you get with minoxidil, so thought there were no options. I think I probably read every page on the internet about hair loss.

    Blood tests and a biopsy both showed nothing wrong, but I thought it was early-onset Androgenetic Alopecia anyway because of the MPB hairline and because post-menopausal women in my family have Androgenetic Alopecia with the classic parting/crown thinning.

    About 7 months ago, I was sick of feeling terrible about the way I looked and worrying about my hair loss all the time, so I got tape-in hair extensions. I know extensions are terrible for hair that's weak and falling out, but I was at the end of my tether and did consult a hair loss specialist first who said that tape-ins are gentle and don't cause damage. (Not true, sadly!) Anyway, the result was...

    My stress levels reduced so much that my hair started growing back.

    I'm not exaggerating. Because of the extensions, I could no longer see my hair loss in the mirror, so I stopped worrying about my hair entirely. Gradually, hair regrew at the temples, my MPB-style hairline started to regrow (not a lot, but enough to notice), my front hairline grew back so I have a little fringe of regrowth, and a very noticeable amount of hair regrew at the parting and on the top of my head. The regrowth at the parting is normal hair growing to a normal length. A lot of it is grey, though, even though I'm only 24 (but early grey runs in the family!).
    The last 6 months have been the happiest time I've had in years, not because of this regrowth, but because I started doing all the things I enjoy which I used to avoid because I was ashamed of my hair loss.

    The downside - I have lost most of the hair around the sides and back of my head because of the weight of the extensions, despite being told they're ideal for fine hair. So I'll stop using the extensions and find a different cosmetic solution (ASAP, because I am dependent on covering up my thin hair). This lost hair may or may not regrow. I am very sad about it but I don't exactly regret getting them because I've learned something important...

    Find a cosmetic solution that makes you feel good, whether that's cutting your hair short, wearing extensions, a topper or a wig. Even if it's expensive, it's worth it if it'll make you feel confident again and stop worrying about your hair. I know a lot of women feel guilt about spending money on something frivolous like that even if you can afford it, but happy, confident people are much nicer for others to be around than sad, anxious people, and the less energy you're spending on worry the more energy you'll have to spend on things that are important to you. Log off forums like this and do whatever will allow you to get on with enjoying your life.

    So to reiterate, because I'm sure people will ask, the only factors have been:
    - stress reduction
    - taking iron tablets (not consistently)
    - taking the Yasmin pill (this won't be a cause as I began taking it in 2015, but it may have helped)
    - eating well and keeping a consistent healthy weight (had a low weight during time of stress)

    My 2019 resolution is 'don't worry so much, and embrace the fake'!
     
    hair of the dog and TinaM1968 like this.
  2. TinaM1968

    TinaM1968 Established Member

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    This is such an awesome inspiring post! Love it and happy for you! I also agree with it 1000% Gives me hope again. Do you have before and after pics? Stress is such a huge part of hairloss. I know it was/ is a major factor with mine.
     
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  3. sunlit

    sunlit Established Member

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    Thank you! Would have to dig around to find before and after pics.

    Not sure if pics of the regrowth would be helpful as I'm wearing extensions in them. You'd be able to see the thicker parting but not the overall density of the real hair (which I think did improve until the weight of the extensions pulled it out).

    Like I said in the post, the extensions have now given me bad traction alopecia on the sides and back of my head (hopefully not permanently), so if I took any new progress pics you would find them depressing! The tape-in extensions looked amazing and were very comfortable and easy to look after, but most of my hair being pulled out is a high price to pay for 7 months of great hair. If people are looking for a cosmetic solution for hair loss, I really recommend using a halo extension (hair on a wire) or a clip-in topper rather than tape-ins like I did.

    Thing is, regrowth aside (and my hair actually looks scruffy now because of the regrowth sticking up) I hope this is an inspiring post anyway because I became so much happier and calmer as soon as I accepted wearing fake hair could be fun and look good.
     
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  4. sunlit

    sunlit Established Member

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    Just thought of another thing. In the last 6-7 months, during the time with the extensions, my mystery scalp pain seems to have stopped. For the last 4 years I've been having a nasty intermittent pain on my scalp, sometimes for no reason, but particularly when I had my hair tied up. Having my hair in a ponytail or bun used to cause an unbearable pain. I can't remember the last time I've had the pain, and I've had heavy extensions in my hair for half a year.
     
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  5. TinaM1968

    TinaM1968 Established Member

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    Your story is inspiring! I had that scalp pain you talk about, crazy never had it before all the stress started in my life..it came and went no rhyme or reason to it, once I stopped obsessing like I was and stress was down, I noticed my pain is no more as well! Every dr would either not know why or say low estrogen dht ect ect but the thing is when I stopped obsessing it went away. My pain started about 4 years ago as well ( height of my stress and anxiety) oh this post make me have hope. I have the temples hairline all over as well with no definite diagnosis. Thank you and please keep us posted it helps!! God bless u for coming back to tell us and happy holidays! ❤️❤️
     
    #5 TinaM1968, Dec 24, 2018
    Last edited: Dec 25, 2018
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  6. TinaM1968

    TinaM1968 Established Member

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    Were you actually diagnosed Androgenetic Alopecia? Did you have any breakage? How is your regrowth coming along? I still wouldn’t mind seeing pics if regrowth. Sure could use more hope that things can get better my hair shed hasn’t been bad rescently but regrowth would truly lift ones spirits

    I don’t know if you still come back here ..I hope you do with your updates. I’d love to know how your doing you gave me hope again. My hair issues are a lot like yours and with everyone saying there’s no hope You have finally after my almost 5 year search have given me some. 4.5 years for me too same pattern same nightmare Thank you I’ll check back to see if you are still here. I hope you do see this
     
    #6 TinaM1968, Dec 28, 2018
    Last edited: Dec 29, 2018
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  7. sunlit

    sunlit Established Member

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    Just to give an update -

    I've been stressing over the traction alopecia caused by the extensions, and just like that, my scalp pain is back and my shedding is up. My scalp did not hurt at all while I wasn't worrying about it, and my hair went down to a normal level of shedding for a long time.
    What this tells me is probably when I find an alternative hair solution to cover this up and stop worrying about it again, my scalp will probably stop hurting again, my shedding will slow down and my hair may regrow more. The 6-inch regrowth I have at the parting seems to be staying put for now (touch wood) and it's mainly long hairs I'm shedding.

    @TinaM1968 - I was 'diagnosed' with androgenetic alopecia by a process of elimination by the dermatologist. I had a scalp biopsy which showed nothing - not androgenetic alopecia, not alopecia areata, not scarring alopecia, no scalp problems, etc. So the answers were either telogen effluvium or androgenetic alopecia. I had a typical MPB style receded hairline. My mother and one aunt both have post-menopause Androgenetic Alopecia. So based on family history and my MPB shaped hairline, he assumed it's androgenetic alopecia and prescribed spironolactone (which I only took for maybe 6 months because it gave me nausea as a side effect).
    For the record, I still have an MPB shaped hairline, but it has grown back a little bit compared to how it was at its worst. Most of my regrowth is at the parting / on top of my head. The longest regrowth is 5-6 inches. The regrowth in the parting isn't tiny baby hairs, it's normal hairs and noticeable enough that it makes me look scruffy because it sticks straight up. Most is dark, normal hair, but some is silver/grey, even though I only just entered my mid-20s.

    Given the state of my hairline, I think it's very possible I do have Androgenetic Alopecia underlying this and wouldn't expect total regrowth to the hair I had before, but I do have regrowth and think I may have more if I can keep my stress levels down.
     
  8. TinaM1968

    TinaM1968 Established Member

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    Yes I have figured out the scalp pain is associated with stress. Took me awhile to figure that out but it is true. I haven’t had issues is a very long time with scalp pain them about a month ago I had dental issues and severe anxiety, guess what? Scalp pain back! Hurt to even touch my scalp. Idk what to do. Anxiety is not an easy thing to fix believe me Im trying and thought I had a handle on it then life threw me another curve ball to deal with. Searching forums or the internet in general is NOT good for you and just feeds the anxiety. Keep in touch as to how you are doing. If you have any pictures of the regrowth it would be inspiring to see. Really could use a positive story about now seems life keeps handing me lemons lately
     
  9. TinaM1968

    TinaM1968 Established Member

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    What does your regrowth look like?
     
  10. sunlit

    sunlit Established Member

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    I'll take a picture when I can be bothered, as it would probably help people here feel better.

    It's completely normal hair. Thick dark hair*, not miniaturised at all, and growing long.

    (*when I say 'thick dark hair', I mean fully pigmented and not miniaturised, the same as my hair was prior to hair loss. My natural hair before hair loss was fine, silky and light-medium brown, which is the type of regrowth I'm getting).

    Some of my regrowth is 1in long so obviously new. I have grown a fringe at the front of my head which is thickish and 3-4in long. The longest regrowth I've noticed (which I hadn't noticed before) is as long as the bottom of my earlobes, so I'd estimate 8in long. I had only noticed the regrowth at the parting and front hairline, but now have seen there is new hair growing all over my head.

    I had my hair cut recently and the hairdresser said I have the hair of a new mother, because there's new hair sticking up everywhere.


    That being said, I am now shedding again, but long hairs, not the new regrowth. Since this new shed began, my temples and hairline seem to be the hardest hit.
     
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  11. TinaM1968

    TinaM1968 Established Member

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    I asked because I was looking at my hair the other day and I had a lot of 2 maybe 3 inch hairs on the sides of my head and across the top. They seem pigmented hard to say for me as my hair is naturally a golden auburn color so new growth for me I wouldn’t think would be too dark.. this hair loss journey has been so long I forget what normal hair looks like I guess I just need to keep my stress down and give it time.
     
  12. Iyyi

    Iyyi Member

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    I was diagnosed with alopecia universalis. I am just wondering when you say hair regrowth, how does it look like? Mine is light colored hair, some are white. Is this a positive sign? Because when I showed to my doctor, he is skeptical that those are regrowths. But I think those are regrowths because I didn’t see them before.
     
  13. sunlit

    sunlit Established Member

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    I had thin, pale hair at first, but now I have some normal-thickness dark hair regrowing and some normal-thickness silver/white/grey hair regrowing (I recently turned 25 so this is unexpected - not sure if related to hair loss).
     
  14. TinaM1968

    TinaM1968 Established Member

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    My short hairs hair always looked normal no miniaturized look to them they just don’t grow. They fall out instead
     
  15. Georgina

    Georgina Established Member

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    It was a telogen effluvium shed, not androgenic MPB. “Reducing stress” WILL NOT help those with genetic hairloss. I want to make that clear. Whilst I appreciate your advice, it’s misleading for those with actual hair LOSS not just hair shedding.
     
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