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so.... here I am. hair loss/pain

Discussion in 'The Undiagnosed' started by DonnaL, Jun 4, 2012.

  1. The numbness I am experiencing at the top of my scalp and forehead isn't like a cold feeling, like my scalp was suddenly more like leather than my skin. A loss of sensation. Last night I supidly tried to apply minoxidil and a topical steroid to the one spot that burns the most when it burns (thinking if it is a hairloss burning maybe stopping the hairloss would stop the burning) and made my pain 10x worse. I felt my heartbeat in that area for some time and now I feel intense nerve pain. I think I just made the inflammation much worse, which would make sense because minoxidil is a vasodilator. Now the pain I was feeling before seems like childs play.

    I got my biopsy report back from UCSF. The previous report on the same specimen from anther lab said TE. This report says I have follicle miniaturization which is typical of Androgenetic Alopecia and a "non scarring alopecia" a "rage telogen follicle" no idea what that means. Follicle miniaturization?? I had absolutely no hair thickness issues prior to the hair extensions last November. Now suddenly I have Androgenetic Alopecia? My parent's have great hair. What is happening. Can miniaturization be caused by anything else?
     
  2. Losin it

    Losin it Guest

    Donna,
    I want to throw a possibility out to you- you mentioned that you've been on birth control pills for years. Have you considered that long term ovarian suppression by the pill could be causing your hair loss? When progesterone production, a natural DHT inhibitor, is shut down by the pill hair loss can occur in susceptible women. You have some family history of hereditary hair loss, and I think you might want to consider coming off the pill and let your ovarian function resume. Yes there will be a telogen effluvium 3 months later, but if you can tough that out your hair may start getting better over time! You shoukd have a hormone profile to see where your levels are on the pill- I bet you have very low levels of all your natural hormones. Many women report that their scalp pain goes away (women without PCOS or hyperandrogenicity problems) when they stop the pill and find a non-hormonal method of contraception. The pill has caused many, many women to lose their hair! Good luck- hope you find the answers to your problem soon! My hair looks exactly like yours and I too have the horrible scalp pain :(
     
  3. Dr. Badger from Stanford believes I should try Effexor (her first choice was Cymbalta but that was expensive) because of the side effects of Tricyclic Antidepressants one of which can be TE hairloss (!). However I have seen numerous documents mention Doxepin (for itch as primary concern) and amitriptyline (for pain as primary concern). I am not sure there are many choices for scalp neuritis, Peripheral neuropathy, Dysesthesia, burning scalp syndrome whatever this may be. I read a part of Hair Growth and Disorders
    (2008) By Ulrike Blume-Peytavi which discussed this condition and the role of substance P

    http://books.google.com/books?id=pHrX2- ... &q&f=false

    and another study done earlier by Diane Hoss, MD; Samantha Segal, MD

    http://archderm.jamanetwork.com/article ... eid=188885

    I met with Zhonghui Guan , MD, UCSF pain medicine, http://www.ucsfhealth.org/zhonghui.guan who was the first available specialist. Although he had never seen a painful scalp before he felt I exhibited the symptoms of nerve damage (itching, burning, tingling, numbness) and said the numbness could be the situation worsening, but it was hard to tell. He suggested amitriptyline and Lidoderm but he does not write scripts, merely suggests.

    Dr. Maibach suggested I see John Koo or Martin Steinhoff, MD, PhD UCSF.

    This pain is at emergency levels so I have an appointment with first available neurologist Gary Belaga MD
    http://www.belagamed.com/curriculumvitae.php

    Yes birth control pills can have hairloss as a result.

    I suggest searching Google BOOKS through dermatology manuals. I have been doing this and it's more informative than my doctor visits.

    I feel as if I am starting to have pain in my eyebrows too, which would indicate not Androgenic alopecia.

    I have read that Androgenetic Alopecia miniaturizes the follicles possibly via inflammation. If we have inflammation then we are getting the same results. I have read so far that Androgenetic Alopecia and Alopecia Areata are the two causes for miniaturization. I have not found something - yet - which says it reverses any other way than by Minoxidil, where, the more I read about that, the more I dislike THAT drug.

    My scalp is also excessively dry since the biopsy with white flakes. My theory is that the inflammation has prevented sebum from being manufactured and released.

    I am creating an online photo gallery with screen shots of the information I have been gathering. I will share the link soon. Also, I plan to go to UCSF library and research this using the computers that doctors use to see studies we can't see. If any of you want me to look for something I will do so. Please give me search terms or your question. I won't promise results, but I can try. I am familiar with research as a UCLA grad. I intend to share everything I learn with you all, as useless or helpful as it may be.

    So far I have seen these doctors.

    Dr.Joanna Badger, MD, Stanford (he is not their hair guy, Anthony E. Oro, M.D., Ph.D. is.) At the beginning she thought my case was open and shut hair pulled out from extensions and I should expect complete recovery. Pain neuropathic and not related to hair loss she said. Said hair loss doesn’t come with pain. Didn’t think I had TE or contact allergy. Advises Effexor or Cymbalta after suggesting Neurontin.
    Dr. Richard A. Strick, MD, Los Angeles He did the biopsy. I went to him after seeing some positive reviews online that mentioned him as a hair specialist. He had availability immediately, which was rare. He was quick to diagnose TE even before biopsy. Biopsy report stated increased number of catagen hairs. My experience was not entirely positive.
    Renata H. Mullen, M.D., Palo Alto Medical, she was one of a few that seemed to have a little more hair experience. Said hair density is great despite my insistence I have lost hair. Said I should take an antidepressant for pain and everything will be fine. I liked her.
    Zhonghui Guan , MD, UCSF pain medicine Said he never heard of my problem before and knew nothing about hair. But said my symptoms sound like nerve damage. Could be months or years of recovery if at all. Suggested Amytriptaline, Lydoderm. Said these medicines mask the pain but are not a cure. Didn’t know about substance P and hairloss. Was honest, took time.
    Howard Maibach, MD - UCSF, He is their contact dermatitis guy but also has some experience with hairloss he states, and neurology. I am still in communication with him and unclear about his diagnosis. He seemed to think it could still be a contact allergy with the dye. Suggested other doctors. Didn’t see active shedding.
    Dr. Peter Panagotacos, Union St. Dermatology (was my first stop) He is more of the guy you see for hair transplants. He sells a minoxidil formula I used before which has BV and is less irritating. He always thought it was just traction damage until recently when he admits it is nerve pain and thinks I would be better off seeing other doctors.


    I am not sure I have seen anyone who has actually seen THIS. Mullen and Strick claim they have seen hair pain/loss patients. But Strick was confused by the level of my pain and various aspects of it. Makes me think that maybe the hairloss pain is not the same.

    Paradi Mirmirani, MD who is now Kaiser is supposed to be hairloss expert but impossible to see.

    PLS go to Google Books girls and google medications and hairloss or TE or alopecia as keywords and there are lists of drugs which may cause hair loss. I will try to get that posted too.
     
  4. DonnaL

    DonnaL Established Member

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    My PCP suggested that if my neuro can't pinpoint anything obvious as the source of this pain, that they may suggest having me go off my birth control. All I can say to that is I hope by then I've found a decent wig!

    I don't know what to do anymore. I feel like information is being sandblasted at me at such a rate I can't even take it all in. This is seriously a needle in a haystack situation. I went for bloodwork on Saturday and am waiting results for Lyme, full thyroid panel, and inflammation.

    much- that really sucks that the Rogaine caused you more pain... that's why I haven't touched it yet (and in fact was a little appalled that the derm suggested it).

    I just started increasing my neurontin, so I hope that helps with the pain. Other than that, I guess I better start reading the forums for what kind of artificial hair everyone likes best :/

    I just cannot believe that no doctor knows what the story is with this pain and hair loss business. I will not accept that pain with hair loss is normal, because it's not! I know bald men.... they haven't been plagued with chronic pain.... This is not NORMAL. Ugh. Would doctors take it more seriously if there was no hair loss and just the pain present???
     
  5. So today has not been a good day. Pain has been worse since the Minoxidil application. I emailed all my doctors yesterday. One of them thinks the pain is psychosomatic (in my head) and dismissed me. The other said I should talk to the doctor I just saw who was a complete waste of money because he said nothing and I paid out of pocket (I have no insurance). That doctor wasn't sympathetic about my insurance issues and doesn't answer any questions via email or phone even questions such as "what did you say my diagnosis was"? Not only do I not relish making another appointment for $600 at his clinic but the likely fact that they will tell me I have to wait a month to see someone. The medications that were suggested by pain management I can't seem to get anyone to prescribe so I can get started. And the doctor at the other clinic, who I liked, (her charge was $600 for 25 minutes) doesn't even have availability till the end of July.

    So I paid $$$$ to get a pathology report that nobody has the courtesy to read to me and explain.

    If this is inflammation then why don't they prescribe anti inflammatory drugs? Should I try prednisone again? (steroids are terrible)

    mythreeboys I am sorry if you already stated this but can you list everything that you have tried, medication and otherwise.

    What I forgot to state was that my burning is at the nape of my neck too... can you say where yours is exactly?

    I also noted that last year I had a case of uveitis of the eye which lists many of the things that are listed for hair loss concerns such as lyme, etc. I wonder if there is a connection. Maybe the hair extensions and the dye worsened an already existing neurological issue.

    I have wondered about Alopecia Areata too in my case. I wonder if losing all the hair from the hair extensions caused an increase in some sort of chemical in my scalp which triggered something else.

    mythreeboys... your words seem dire... I really hate to imagine that this won't get better. But I empathize with you and congratulate you on your strength. Whatever suggestions for reading you have I will go over.

    Donna- it seems like minoxidil is the only drug in the arsenal of hair loss they ever suggest. One trick pony. Sad. But if that drug made my pain worse by dilating the vascular structure and increasing inflammation then inflammation is likely the issue, indeed.
     
  6. Yes and if it was all in my head it wouldn't get worse after I died my hair, or put minoxidil on my head, hopeful to feel better. And, I might have felt this pain at other times in my life when I was under more stress! It is inflammatory.

    One of my docs just wrote this:

    "I think that your hair loss began initially as hair breakage from extensions as well as increased shedding which was most likely caused by active pulling out of hair when extensions removed. There was further hair damage with frequent coloring and clip-on extensions. Later scalp pain that was probably initiated by the 2nd set of extensions as well as the last hair color with the resultant irritation, now with persisting scalp pain with normal scalp findings. Hair loss further exacerbated by episodes of telogen effluvium.
    I don't think you have chronic telogen effluvium, alopecia areata, nor anagen effluvium. You have no clinical nor biopsy evidence of scarring and therefore hair should regrow. However, will take at least 6 months. Your hair volume is still thinner become of prior hair breakage, telogen effluvium, and mechanical pulling out of hair when removing extensions. Your hair will regrow without problem, as we discussed, get adequate protein, iron, vitamin D.
    The main problem right now is scalp pain and I think rather than trying to figure out what is the best medication for you, you just need to go ahead and treat it. I think any of the medications you mentioned would be a good option, but you just need to start one. Go ahead and start one and follow-up "
     

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  7. DonnaL

    DonnaL Established Member

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    In regards to miniaturization.... while I think many women on here have greater problems with miniaturization, I thinks it's worthwhile to note that probably a high percentage of men and women will have some degree of miniaturization as they age. The 3 of us seem to have horrendous pain as our primary problem, in addition to the hair loss. I suspect at least for us, miniaturization is a moot point and has nothing to do with the bigger picture. Personally, when my hairs fall, I see a variety of hairs. Mostly they are long and the standard width I always have had, but I have some finer hairs too.. I bet everyone does have some variety in the width of their hairs. I don't see any more finer hairs (miniaturization) than I ever did. For me, the hairs are just falling out like crazy and most are not coming back, AT ALL. My doctor agrees that likely whatever is going on with the nerves is causing a bad environment for my scalp so hairs won't grow normally until some kind of homeostasis is achieved... or maybe they'll never come back.. I don't know. My derm, upon evaluation, said he didn't seen any signs of scarring.

    Do any of you have more pain after washing your hair? Lately I notice more pain on the days I wash my hair, and I think it could be from the contact/pressure of my shower :/ Because of this I've only been washing my hair about 2-3 times a week. It's short, so I can just keep it back... I style it that way anyways because it hides the thinning better.

    I've been trying to keep my anxiety and stress at bay and I think I'm doing a good job, though it's a lot easier on days when my pain is less. I want to get off the Paxil within a couple weeks entirely and will be trying to manage all my anxiety and stress myself. I think the worst thing right now would be to just throw in more antidepressants in the mix.

    I'm also trying to get my immune system in tip top shape by improving my diet- keeping processed foods, sweets, breads, pastas, etc at a minimum as these are known to be inflammatory foods. I'm already eating a meal of pills every day so I'm trying to get as much iron, calcium, B vitamins, C, D, magnesium, etc from foods. I've always eaten pretty well, but there are some food groups that I barely ever touched that are really important and really good for you (like legumes).

    For the pain, I'm still taking Neurontin. I just upped it to 300mg/day and will soon up it to 400mg/day as directed by my PCP.

    My pain has been slightly less in the last 1 1/2 weeks, but my shedding has more than doubled for some reason and I'm shedding more than 100 hairs a day (which is WAY too many for someone with my hair type).

    Still no word on my bloodwork from Saturday and no news on getting into the Neurologist any sooner.

    Do you guys keep a log of your symptoms? Maybe it's pointless, but I've been tracking what I eat, my pain levels, roughly estimated hair shedding, menstrual cycles, and any other relevant info like pills I'm starting or stopping. I feel like it's the best way to catch a trigger or find if something is helping. It is tedious though.

    Much- what medications is your doctor referring to that you want to start for the inflammation/pain?
     
  8. In case any of you were wondering, my name “muchwantsmore†comes from a Aesop’s fable moral I remember from childhood “Much wants more and loses allâ€. This has returned to me now as I wonder if I will lose my hair and my sanity (due to pain) because I wanted more, hair extensions, when I should have been satisfied with my hair as it was.

    Today I had an interesting scalp day, scalp friends. First I talked to a dermopathologist Timothy H. McCalmont, M.D. from UCSF. He was one of the highlights of my recent search for answers. He was not only an affable relatable person, but provided me with some science and useful suggestions. He was the one who read my slides from the biopsy that was taken by Dr. Richard Strick in L.A. Dr. Strick’s pathologist had said that my biopsy was evidence of Telogen Effluvium, but Timothy H. McCalmont, M.D. said that there was no way he would come to that conclusion from the biopsy. In the biopsy he saw miniaturization and suggested that it may be from diffuse Alopecia areata although usually there are more catagen follicles present in the slide. He said early Alopecia Areata can be hard to detect from the slide. I explained to him that I was on a high dose of prednisone 5 days prior to the biopsy so that might influence inflammation present. Amazingly, wonderfully, he said he would take another look at the slide to be sure there wasn’t any indication of scarring that he missed. I was a little worried that the steroid use had shot my chance to see a sign of scarring – scarring is rapidly progressive. Dr. Strick’s office which now is clear made an error in my diagnosis didn’t feel the prednisone was an issue… because they were looking for TE. (I thought it was important to check for everything. He didn’t agree.) Why his lab saw TE I don’t know, but that misdiagnosis has been something I told at least 3 doctors and now I feel like we were all barking up the wrong tree. There have been days when I have shed hair, a lot, not as you describe, but maybe 200 hairs in two combings. However those hairs never had a white bulb on the tip. I kept telling the doctors they must be anagen hairs…

    So, all this time I thought this terrible pain was related to TE and hairloss. Now I don’t know. The biopsy is a very small area, so maybe that area is not representative. Maybe it’s related to Alopecia Areata. He said that miniaturization can be reversed if it is caused by something other than androgenetic alopecia. But as far as I understand miniaturization it’s a progressive issue… the strands get thinner and shorter. It would be great if it was just a little…but I don’t know that it’s true that we all have some miniaturization… the biopsy was taken from an area of “baldness†from the hair extensions.

    Although I am not dropping hairs (yet) daily at the rate you describe my hair was thinned out over 50% by the hair extensions and it is still thin now 7 months later. I feel an improvement on the sides of my head but not in the back or near my ears where it is as thin as ever.

    He suggested I make an appointment with the UCSF hair clinic, which I will do…

    I also went to a neurologist. He suggested botox on the scalp! He said it can decrease substance P. He also suggested Lyrica, Viibryd and wrote the script for Amytriptaline. What should I try?

    I can choose.

    I mentioned your diabetes drug, Three Boys, and we think that may be because increased blood sugar increases inflammation.

    On the way home I met a girl at a coffee shop that has scalp pain too at the nape and she has a benign tumor in her head. So, that made me think that this neuropathic pain comes from a variety of inflammatory causes. We could all have different causing things but the same symptoms… nerves firing.

    I recorded my visit to the neurologist via Garageband on my computer, and the call with Timothy H. McCalmont, M.D.. I can put that on YouTube and send you guys the private links. I may not have mentioned everything that they said. Not that anything groundbreaking was said- on the contrary, but between the three of us soon we will have seen every doctor in the country.

    My scalp is burning more at the moment as I contemplate whether I actually moved forward in my understanding today, or whether I am just where I was.

    And if anyone is reading this long after I have stopped posting, I would not recommend Dr. Strick. For the reasons I have posted here, misdiagnosis, but for other reasons as well. I am too kind to put such things on the internet, but let’s just say I would say keep looking for another hair specialist.

    And Donna- I was thinking the log idea myself today. My pain changes so often I was wondering whether I could track what makes it better or worse. It's a full time job, tough. Maybe we should all make a private blog that we share with one another. Then the information could be something we could all access and compare.

    I don't know why my hair isn't growing back after 8 months... either... I think you're right that if I was a follicle I wouldn't want to plant roots on this angry scalp either. :badmood:
     
  9. My Three Boys- Maybe your pain got worse on steroids because "Short-term side-effects, as with all glucocorticoids, include high blood glucose levels" And your pain got better with a drug that lowered glucose.
     
  10. http://en.wikipedia.org/wiki/Hyperalgesia

    Hyperalgesia is an increased sensitivity to pain, which may be caused by damage to nociceptors or peripheral nerves. Temporary increased sensitivity to pain also occurs as part of sickness behavior, the evolved response to infection.

    http://en.wikipedia.org/wiki/Nociception

    http://www.helpforpain.com/arch2000dec.htm

    2. NEUROPATHIC PAIN - Examples include post herpetic (or post-shingles) neuralgia, reflex sympathetic dystrophy / causalgia (nerve trauma), components of cancer pain, phantom limb pain, entrapment neuropathy (e.g., carpal tunnel syndrome), and peripheral neuropathy (widespread nerve damage). Among the many causes of peripheral neuropathy, diabetes is the most common, but the condition can also be caused by chronic alcohol use, exposure to other toxins (including many chemotherapies), vitamin deficiencies, and a large variety of other medical conditions--it is not unusual for the cause of the condition to go undiagnosed.

    "Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. Nerves can be infiltrated or compressed by tumors, strangulated by scar tissue, or inflamed by infection. The pain frequently has burning, lancinating, or electric shock qualities. Persistent allodynia, pain resulting from a nonpainful stimulus such as a light touch, is also a common characteristic of neuropathic pain. The pain may persist for months or years beyond the apparent healing of any damaged tissues. In this setting, pain signals no longer represent an alarm about ongoing or impending injury, instead the alarm system itself is malfunctioning.

    Neuropathic pain is frequently chronic, and tends to have a less robust response to treatment with opioids, but may respond well to other drugs such as anti-seizure and antidepressant medications. Usually, neuropathic problems are not fully reversible, but partial improvement is often possible with proper treatment."
     
  11. http://en.wikipedia.org/wiki/Hyperalgesia

    Hyperalgesia is an increased sensitivity to pain, which may be caused by damage to nociceptors or peripheral nerves. Temporary increased sensitivity to pain also occurs as part of sickness behavior, the evolved response to infection.

    http://en.wikipedia.org/wiki/Nociception

    http://www.helpforpain.com/arch2000dec.htm

    2. NEUROPATHIC PAIN - Examples include post herpetic (or post-shingles) neuralgia, reflex sympathetic dystrophy / causalgia (nerve trauma), components of cancer pain, phantom limb pain, entrapment neuropathy (e.g., carpal tunnel syndrome), and peripheral neuropathy (widespread nerve damage). Among the many causes of peripheral neuropathy, diabetes is the most common, but the condition can also be caused by chronic alcohol use, exposure to other toxins (including many chemotherapies), vitamin deficiencies, and a large variety of other medical conditions--it is not unusual for the cause of the condition to go undiagnosed.

    "Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. Nerves can be infiltrated or compressed by tumors, strangulated by scar tissue, or inflamed by infection. The pain frequently has burning, lancinating, or electric shock qualities. Persistent allodynia, pain resulting from a nonpainful stimulus such as a light touch, is also a common characteristic of neuropathic pain. The pain may persist for months or years beyond the apparent healing of any damaged tissues. In this setting, pain signals no longer represent an alarm about ongoing or impending injury, instead the alarm system itself is malfunctioning.

    Neuropathic pain is frequently chronic, and tends to have a less robust response to treatment with opioids, but may respond well to other drugs such as anti-seizure and antidepressant medications. Usually, neuropathic problems are not fully reversible, but partial improvement is often possible with proper treatment."
     
  12. Mythreeboys-

    Thanks for the compliment. I am decent at research as it was survival in school, but now it's survival for real so I'm determined to connect the dots. You have been extremely helpful... I mean you're the expert having researched this and spent as much time on the forums. I appreciate every search term or piece of information you give me.

    I have found that these two supplements are linked to hair growth:

    L Cystene

    CYP-complex-based dietary supplement

    As for my hair loss... actually those photos I showed you were taken right after and a few months after hair extensions were removed. That damage was from hair extensions- I think- unless the hair extensions triggered a scalp condition like Alopecia Areata which I am still dealing with now. The doctors keep saying that my hair will grow back - well they said that 7 months ago- and my hair is still super thin close to the scalp with gaps, and now this terrible pain which set in May 3 when I had my hair dyed again. They say everything I have done, extensions, dye, minoxidil, maybe even the prednisone I was on for a month, was a perfect storm to cause inflammation. I have had about 4 episodes I noticed of hair fall, but usually I wash my hair too often to help. BTW for hair texture I stand by coconut oil and Bumble and Bumble Deeep conditioner and products for damaged hair. My hair was nearly not hair from all the coloring. Now it's sort of hair again. That's some relief.

    I am curious about that diabetes drug you mentioned but the neurologist said that the body will compensate for a drug that tries to lower blood sugar by raising blood sugar again because it wants to stay at a constant level. But since you said that I have been "watching" my pain and I think it did get worse when I had sugars. I am getting my blood sugar levels tested. What I am noticing about a lot of this reading I'm doing is that a lot of the same causing factors or terms keep overlapping.

    Patterns, and patterns lead to solutions. That drug you mentioned though has a new warning on it (added in 2010) you probably know... but it's good to always be aware of side effects. One drug I was using got a new black box warning years after I started using it and caused a tendon rupture in my case... Cipro. A antibacterial drug.

    We should keep in mind that we live the pain so we know more about this than any of the doctors can. They should be asking us for information, rather than making us feel unstable or insecure by insulting us with statements like what we feel "in our head" or cannot possibly be that painful. One doctor told me, "When I have pain I don't need to take anything I just go through it." Well, try this pain on for size, Mr., you'll be back to see me in a day asking to open my medicine cabinet!
     
  13. Also, steroids can cause anxiety and as we all know increased stress leads to inflammatory responses in our body which MAY even counter some of the anti-inflammatory effects of steroids. Who knows.
     
  14. DonnaL

    DonnaL Established Member

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    Sorry if I missed it, but did any of you mention wether you have flare ups of pain after you wash your hair? How about after sun exposure? It seems both tip the scale for me. I felt a little better yesterday and on the way home from work yesterday I had my sunroof open and within a half hour my pain was elevated a few decibels.

    Something that's been bugging me since this all began is a concern over metal poisoning from my well water. We just bought this house in November, and while our water was cleared as safe for drinking, the only heavy metal it shows on the report is lead (which was super low)- I don't know if that means they only tested for lead or if no other metals showed up (i doubt that). As I mentioned, I get flare ups after washing my hair, so I've always wondered if the water itself has something to do with it, or the pressure of the shower itself (which isn't that hard). My dad has neuropathy from heavy metal poisoning (he worked in steel plants) and takes Lyrica for the pain.. he says it doesn't help much though.

    Here's another cog to throw in the machine though... I've read that any kind of immune issues resulting in neuropathic pain can be caused by a bad infection. I think I mentioned somewhere in my first post that a month before the pain began (and never left), I had a horrendous urinary infection. I was in intense pain for a good 2 weeks before I figured it wasn't going to resolve on it's own. I was out on antibiotics for 10 days and didn't feel one iota of relief until about day 10. I sometimes wonder if this was the trigger for the nerve pain and exacerbated what was already going on with my hair due to stress, not eating right, depression/anxiety, alcohol...

    Also, I was looking up diffuse Alopecia Areata and what's the story with exclamation point hairs? Are these always short? I was examining my fallen hairs this morning (all of which were long btw) and I wasn't sure if what I was seeing was an exclamation point hair or something else?

    My little cannon was able to capture decent photos. Again, I'm still losing 100-200 of these suckers a day for no apparent reason. Don't even have to touch my hair, they just fall.
     

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  15. Lost

    Lost Guest

    The sun OMG!! and even if I just get hot my head will itch more and will get sore....thought it was just me...when I look up hairloss now I swear I have a little of it all going on Androgenetic Alopecia,TE,DIFFUSE Alopecia Areata,SCARRING it is so strange I don't think it is possible but I just get more confused I was told TE that uncovered Androgenetic Alopecia but with the itch and pain I get so scared that I my have some scarring like frontal fibrosing :dunno: As far as the pictures of hairs you have I can see they are thinner at root but I thought exclamation hairs were short could be wrong it is all so damn confusing is'nt it, I'm getting another biopsy done in the fall my first one was inconclusive but now its been 2 years so I'm sure what ever it is will show up this time( I Hope)Good-Luck.
     

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