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Steroid injections did nothing--what next?

Discussion in 'Women's Alopecia Areata' started by sudsie, Sep 22, 2006.

  1. sudsie

    sudsie Guest

    Hi, I just joined the list (and posted my story in the approprate place--thanks to those who wrote back!!!) i have newly diagnosed Alopecia Areata with a large bald patch in back plus diffuse thinning. After 2 1/2 months and 3 steroid injections I have had NO regrowth and the derm thinks I should try something different. (I'm still on 5% Rogaine which so far has only succeeded in growing hair on my FACE :x ) and topical steroids and just started Eladil. Luckily the shedding appears to be slowing, altough not stopped.

    2nd line stuff includes sensitizers like anthralins, DCP (yes, Joann, I read your post VERY carefully!), squaric acid, etc. A derm near me says she's had some good success with squaric acid and I'm considering starting that. Any other suggestions?
     
  2. Joann

    Joann Moderator

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    Hi Sharon, :)

    I just wanted to let you know that it can take awhile to get results with the cortisone injections. I have a friend who didn't see results with the cortisone injections until she had been having them for about six months. She lost about 90% of her hair. With the injections she regrew her hair and was able to ditch her wig this summer. Her Alopecia Areata is in spontaneous remission at this time.

    At the medical question and answer session, at the NAAF conference this June, the question was raised about how long a treatment should be tried before deciding it didn't work. The answer given by the panel of specialists was 4 months.

    I would like to add that although the sensitizers do grow hair back for some people there is always a risk of losing any regrowth when their use is discontinued. So it would possibly be a treatment that would have to be ongoing.

    Of course there is no treatment that prevents the hair from falling out so even with the injections there is the possibility of losing regrowth .

    Personally I found it easier to have the injections than the DCP treatment as you already know :roll: The side effects of the injections are minimal.

    Ultimately it is your decision. I just wanted you to have this info.
    Good luck with whatever decision you make. Hugs. Joann
     
  3. megsdoo

    megsdoo Guest

    Sharon

    I have Alopecia Areata also - I was also using Rogaine 5% and grew hair on my face - when I told my derm about it - she asked if I was using at night and I said yes. Well the Rogaine was getting on my pillow; hence the hair on my face. Try switching it to morning and late afternoon if you can.
     
  4. sudsie

    sudsie Guest

    Well, the latest update! On the positive side this morning I shampooed and didn't notice any significant shedding for the FIRST time since mid June! Yeah, it's only been one day but at least it's some hope this is slowing down!

    I'm still trying to figure out what to try next. The Derm who uses squaric acid has been unreachable for the past week. I spoke with another who thinks I should go on systemic steroids. And I have a LOT of bald spots.

    Have an appointment with a wig guy in 2 weeks. Hopefully before then I'll continue to pass with the Derm match. It does work but leaves me with dark ring around the collar plus dark stuff on my pillow. And my facial hair is still growing faster than anything else!

    One day at a time, Sharon, one day at a time....

    You folks here are helping me get through this!
     

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