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Still shedding...but it's down when washing hair for the past 2 days!

Discussion in 'Success Stories and Positive Outlook' started by JenVoy, Dec 10, 2015.

  1. JenVoy

    JenVoy Established Member

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    IMG_1085.JPG I don't know if I should even post this, as I don't want to jinx myself. Anyone that has endured severe TE and has a decrease in shedding probably knows what it feels like to get your hopes up too soon!

    I've had TE for 5 months now. Started in early July a month after taking trazodone, which was my trigger. Along with low ferritin of 24 that was raised to mid 40's in September. I had severe scalp pain, itching, along with bad SD, and scalp tenderness. It was so bad several months ago, that I often wanted to shave my head and be done with it! My hair loss is diffuse, but the crown was hit first, followed by my temples (which are awful right now!) For the past 2 weeks the scalp pain has lessened to where it was only slight tenderness on certain areas. This was giving me hope, but while washing my hair I would still pull out clumps of hair, along with more hair throughout the day. I was hoping the lessened scalp pain the last few weeks was leading me in a positive direction.

    2 days ago I woke up and walked solemnly into the bathroom...knowing it was a hair wash day is always depressing. I lathered up my hair and as I always do, drag my hands along my hair waiting to pull out another clump of hair, only to find that I pulled out 3 strands of hair! I thought maybe I just missed tons of hair falling down the drain, and did it again...this time 1 hair pulled out. Then after the shower I checked to see if more would come out and another 2-3 strands fell out. Throughout the day 1-3 strands would fall out if I attempted to run my hands through my hair, or they just randomly fell out. I am not counting, but I'd guess my shed is now 70-100. I was shedding 150+ daily before, and probably 200+ on wash days.
    IMG_1085.JPG
    I hate even trying to guess what the shed is now, since I'm wondering if this is truly a decline in shedding. I truly hope this is a sign of TE recovery. Perhaps the 6 month mark will be it for this dreadful shed!

    Please cross your fingers (toes, eyes, :p) for me! I'll keep you all updated as I don't see many recovery stories!
     
  2. DisTressing

    DisTressing Established Member

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    I would hope this is the end of it. That's is how the major shedding ended for me. Suddenly I noticed a significant drop in the amount of hair coming out when I shampooed it. That was in early October. Fingers and everything else crossed for you and me and all of us to be at the end of this shedding nightmare!
     
  3. Distraughtshedder

    Distraughtshedder Established Member

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    Congrats! my shedding seemed to stop quickly as well and has been steady now for a couple months .. I hope the same for you!! #fingerscrossed
     
  4. JenVoy

    JenVoy Established Member

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    Thanks ladies. I do truly hope this is resolving. I guess I won't know for a month or two. It seemed like my shed was getting worse, and not better the last month. It was crazy how much hair I was pulling out when I washed my hair. Then throughout the day, more hair would come out. Then all of a sudden less hair. Crazy. How long did it take before you ladies saw any new hair growth after the shed was down?

    IMG_0986.JPG

    View attachment 17095
     
  5. Distraughtshedder

    Distraughtshedder Established Member

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    I have been seeing a steady increase in scalp coverage since week one of using rogaine/latisse ... Its been 3 months and my hair is starting to feel heavier as well. I'd say its been 2 to 2.5 months since my shed has "stopped" or more accurately.. Returned to "my normal".

    Thats a big difference in the pics :). I would save the little nests of hair in the corner of the shower throughout the week so I could compare lol. Crazy what we resort to during this mess lol
     
  6. JenVoy

    JenVoy Established Member

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    Well that was short lived. I pulled out a lot of hair this AM. :( I have no clue what the last 2 days were about. It seemed to be better, but now it's back to where it was last week.
     
  7. Wolf924

    Wolf924 Experienced Member

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    Actually this is an EXCELLENT SIGN. The shedding fluctuations are what I experienced at the beginning of my recovery. Do not let them get you down. I think this is the beginning of the end for you--congrats!

    What I did was write down in a journal the days that were good--then bad, and soon, I began to see that there were more good than bad days.

    Thats a big difference in the pics :). I would save the little nests of hair in the corner of the shower throughout the week so I could compare lol. Crazy what we resort to during this mess lol

    Ha--That sounds like exactly something I would do!
     
  8. JenVoy

    JenVoy Established Member

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    That's good to know! Thank you for sharing! Today was hair wash day, and I counted about 35 strands after my wash! That small amount compared to my ball of hair that I was collecting before, is amazing! I told my husband yesterday I was going to throw a hair party once this awful shedding was over! I'm looking forward to it decreasing as the weeks progress.

    Funny about collecting the balls of hair! I wished I had done that from last week until now, but my husband thought I was only making myself more depressed looking at all the hair I had lost! Whatever! lol :rolleyes:

    - - - Updated - - -

    I saw that latisse was helping some of the ladies on here. I mentioned that to my sister, as she owns a day spay and sells latisse as well. She was explaining that a small tube of latisse was pricey, and she couldn't imagine what the cost would be to purchase in larger amounts. Do you mind me asking how much you spend on the latisse, and where you're purchasing? I would assume latisse doesn't cause you to shed, as rogaine would?
     
  9. Distraughtshedder

    Distraughtshedder Established Member

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    IMG_20151211_105619.jpg
    IMG_20151211_105550.jpg

    I use the generic version. It is just easier to type latisse instead of bimatropost lol. I get it from alldaychemist.com ... 3 bottles is 36 bucks ... 6 bottles are 71. Shipping is pricey and takes a while so I orde a few at a time.

    I mix 3 of the generic latisse with one full rogaine/minoxodil and put it in a travel size spray bottle.

    I apply rogaine daily and the rogaine latisse mixture every 3rd day.

    I tried it every day but it made my eyes terribly bloodshot and gave me horrible dark circles. I toletate it well if I space it out.

    I did not experience a "dread shed" ... i cant say this is because of the latisse or if I just got lucky. In any event it has been working well for me. Not sure if you saw my post with photos so I'll add them here.

    The bimatropost/latisse bottles are tiny but 6 of them lasted me over 3 months (i still have a bit left probably 2/3 applications).

    Not the cheapest thing in the world ... But it worked for me... From my calculations ... It cost roughly 45 bucks a month give or take with the minoxidil/rogaine and latisse/bimatropost.
     
  10. JenVoy

    JenVoy Established Member

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    You are awesome Distraughtshedder for trying out the bimatropost to see if it work in conjunction with rogaine! I'm so glad it's working for you!

    So I have a question for those who are in recovery....perhaps Wolf can answer this too? I'm still shedding more than I usually have in the past. I'm assuming my TE is still occurring but I'm hoping it is winding down slowly. I have no clue when it will go back to my normal shedding pattern. I'm guessing I'm loosing a little over 100 daily. (I'm not counting). It seemed as though it was 70-100 last week. It's definitely not the huge clump I was pulling out when hair washing for the past 5 months. But I'll still wake up with random hairs on my pillow, on the floor, and clothing. How long does it typically take before it winds down to a normal shedding? I'm wondering if the 6 month mark in January will be it, but it's always wishful thinking with TE.
     
  11. JenVoy

    JenVoy Established Member

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    Today I went to see a lady who does custom hair toppers. I've been waiting for over 6 weeks for the topper to be completed. She started to play with the topper on my head and tons of hair was falling out. It was awful! This AM I pulled out a small clump.

    Was I just imagining my decrease while washing my hair? I don't know what to think.
    I was so sure this nightmare was starting to come to an end. It hasn't. Im so devastated.

    My scalp doesn't hurt as badly as it did months ago. I thought maybe this was a sign of something more positive, but I guess I'm wrong?

    - - - Updated - - -

    unnamed-2.jpg

    Decided to upload the before, last week's shedding day, and today's shedding day for comparison. For those of you that are currently going through recovery, maybe you can help me figure out if this looks anything like your beginning recovery shedding fluctuations? This is so odd. It was so much lighter shedding last week, and yesterday was awful! Today seems to be much more than last week, but less than it was during the high hair wash shedding days.
     
  12. JenVoy

    JenVoy Established Member

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    Update:
    I think it was wishful thinking on my part. I continued to pull out lots of hair after my hair wash this morning. I think because I'm keeping my hair up in a bun all day, It's still falling out, I'm just not noticing it because it's up the entire day. :(
     
  13. Distraughtshedder

    Distraughtshedder Established Member

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    Wish I could offer some insight but I personally did not really fluctuate drastically. If its any consolation your "larger clumps" I would have killed for at the beginning of this. Do you have any scalp showing? Thats what got me down the most ... i'll keep my fingers crossed for you doll :)
     
  14. JenVoy

    JenVoy Established Member

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    See, that is so interesting to me. Everyone is so different. I've encountered women that have a spontaneous recovery. Others like Wolf, have a fluctuating decrease. I have no clue which one I'll be. If this is a slow recovery than it sure sucks! lol I'm still loosing more than I'd care to lose. I was loosing 250-300+ daily when this started. I am only guessing I'm at 150+ now. You can see a little bit of a wider part on top, but it's not that noticeable to most people. It's just thinned dramatically, and diffuse.
    My temples have been thinned out and it's noticeable to me of course. If I point it out to people they'll see it. I had a sh*t ton of hair before this all started, so I'm sure that has helped. Thank you for crossing your fingers for me! Cross your eyes, and toes too! ;)

    It would be nice to be able to come back here in January at the 6th month mark and give some positive news.
     
  15. JenVoy

    JenVoy Established Member

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    I'm reading my old post and just leaving an update for anyone having similar issues.

    It was 10 months on May 8th and I'm still going through TE. I am estimating I'm loosing 30-50 on wash days.(I wash my hair daily because I'm tired of more hair shed when I don't). I continue to loose 30-50 throughout the day.

    I've lost almost 60% of my hair. I've given up stressing out about it, or wondering why it's still happening. I don't think I care to get a scalp biopsy either. I know what caused it, and that I have CTE. I can see sporadic regrowth here and there, but no where near enough to make up for the loss.

    It's sad, depressing. I miss my hair. I found Ayana Brown, who does custom wigs and she's made one for me. Waiting to receive it. I'm trying to look forward to that rather than waiting and crying over my CTE. i will post a pic of the wig on the other topic forum if anyone is curious to see! I hope there are others with recoveries soon. I'm not one unfortunately.
     
  16. mellie

    mellie Established Member

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    Hi Jen, I'm so sorry for what you're going through. I can relate to being sad and depressed and missing your hair. I've also been shedding for 9-10 months and I still have those WTF moments when I can't believe what is happening is real. I think I lost 60% of my hair too but people still tell me they can't tell! But for me, I just see it getting worse every day that passes.

    I did go see a specialist and they diagnosed me with 3 back to back TEs and now early Androgenetic Alopecia. So my options are Rogaine and Spironolactone. I have to make a separate post about, right now I'm still in shock. I think I would much rather have CTE! I'm sure your hair isn't as bad as you think. Hang in there!
     
  17. labellavita1985

    labellavita1985 Experienced Member

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    Jenvoy, you said you're losing 30-50 hairs when you wash and 30-50 throughout the day? That sounds totally normal. Are you sure you're not on the road to recovery?
     
  18. mycurlyhair

    mycurlyhair Experienced Member

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    How is your SD and scalp issues? Mine main issue is SD. I also had a ton of scalp pain w/ itch when this all started for me.
     
  19. JenVoy

    JenVoy Established Member

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    No, loosing clumps of hair every wash and falling out throughout the day, as well as waking up with hair all over my bed and blankets is not normal. "Normal" would be not pulling tons of hair out throughout the day or loosing clumps of hair while washing your hair. Anyone going through CTE understands what I mean. The morning I wake up, and not feel hair falling on my shoulders and arms, or loose a clump of hair showering I'll know I'm "in recovery." I've read loosing up to 100 hairs a day is normal. I do not agree. Think of loosing 100 a day every day. At some point your hair would be thinner. I would consider 100 a day TE. I am guessing i would loose 5 hairs during hair wash and maybe 10-15 if I styled. That was my normal.

    - - - Updated - - -

    I too have SD. I had SD before my hair shedding. I also had horrible scalp pain when this started last July until around late December/January. The throbbing awful pain subsided once my shed decreased at that time. I was taking photos of my hair clump after washing my hair and I can say that my huge clump is decreased, which I think had a lot to do with a lot of the pain going away.

    What are you doing to treat the SD? I had a prescription from a derm and he told me to switch from Head and Shoulders to Selsun blue. The funny thing is, they have the exact same ingredients!

    - - - Updated - - -

    Curious, What caused your TE? After seeing a dermatologist who was a kook and another supposed "hair loss specialist" also a kook! I do not believe a hair loss specialist exists. If anything I AM or many of us here are hair loss specialists. I've researched, read tons of studies, used rogaine (very briefly) black cumin oil, different shampoos, etc. NONE of this will stop a TE! If you have a specific trigger for TE, chances are better for recovering. I would not trust an opinion of Androgenetic Alopecia. I know that i would not be going through this had I taken Trazodone last June. I was freaking out when I hit month 6 and the hair loss specialist told me that it was possible it is CTE Or Androgenetic Alopecia. I sat there and realized I was wasting time & money listening to these kooks! They don't have a clue! Only time will tell! I'm fully preparing for this to go on another year or possibly 2. Another woman around my age recovered on year 3. It is what it is!
     
  20. Ccc

    Ccc Member

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    Jenvoy I agree with you about these hair loss specialists, drs etc they haven't got a clue. We know ourselves best and we should follow our own instinct. Best wishes to you. Ccc
     

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