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Still shedding...but it's down when washing hair for the past 2 days!

Discussion in 'Success Stories and Positive Outlook' started by JenVoy, Dec 10, 2015.

  1. labellavita1985

    labellavita1985 Experienced Member

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    The 100 per day number is based on the fact that most people have around 100,000 hairs, and at any given time 10% of them are in telogen (which is perfectly normal) and the telogen phase lasts around 3 months. 100,000 times 0.1 (10%) = 10,000 ÷ 90 (3 months) = 111.

    I also believe the notion that losing 100 hairs a day being normal due to personal experience. Back before I had any kind of hair loss I used to lose a noticeable amount of hair. I have no doubt at all that I used to lose that much, and maybe even more on some days. Also, a few days ago I was running my fingers through my boyfriend's hair, and in 5 minutes I counted 70 hairs. He has no hair loss whatsoever, in fact, he has the thickest head of hair ever, it seriously looks like a white afro.

    The following is how one of my doctors explained the hair cycle, shedding and hair loss to me:
    If a person is losing around 100 hairs a day, and they're experiencing visible/progressive hair loss, it's probably not due to excessive shedding. It could be because the hair lost is not being replaced as it should be. This is most often due to Androgenetic Alopecia.

    The only exception would be if a person doesn't have 100,000 hairs to start with. In that case losing around 100 hairs a day may make a difference after a while.

    This explanation makes sense to me.
     
  2. Wolf924

    Wolf924 Experienced Member

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    I logged in to update and I saw this thread. I totally 100% agree with you LBV- I am shedding now about 30-40 hairs a day but my hair is getting thicker, which indicates to me that its replacing itself. Before I had hair loss I would shed loads--my hair was really long, but I never had thinning. I think during my CTE, I was shedding massively and not replacing fast enough. NIH classifies CTE as shedding over 100 hairs per day with less than 10% of them being less than 3cm long. If these are over 10%, then then classify it as CTE with underlying Androgenetic Alopecia. If you are shedding under 100 hairs per day with 10% or more being 3cm or less, than its likely Androgenetic Alopecia. (I think I wrote this correctly, but just in case: http://www.ncbi.nlm.nih.gov/pubmed/16230561)

    I found this to be pretty accurate in my own hair loss experience. I have also spoken with friends who have had CTE and TE due to various triggers and they mentioned recovery is never complete in TE unless its acute, meaning TE that ends within 3 months. So, I am expecting not to regain all of my hair. But I have regained such a good amount that I am no longer concerned.

    Thanks for your post LBV.
     
  3. labellavita1985

    labellavita1985 Experienced Member

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    Wolf, I'm glad you found my remarks accurate. I was a bit worried that I might get some backlash. I really wasn't trying to minimize the OP's shedding. If she's not used to shedding 60-100 hairs a day I understand she's concerned. I simply wanted to point out that that amount is technically totally normal.

    I'm truly trying to be helpful. I think when a person has been affected by hair loss, any real or perceived excessive shedding is traumatizing. However, we as hair loss sufferers MUST remind ourselves that shedding is completely normal. I honestly can't ever imagine shedding just 10-20 or even 30 hairs a day. I don't think it's realistic, at least not for me, nor is it desirable. Shedding is just new hair replacing old hair. It's totally fine, as long as it's not truly excessive (more than 150 hairs a day,) the hair is being replaced as it should be, and no more than around 10% of the shed hairs are miniaturized.
     
  4. Wolf924

    Wolf924 Experienced Member

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    I found your comments to be very comforting--so I didn't think you would get backlash--I think there is MUCH to be hopeful for for the OP--but that's likely because I am in a different place with my hair loss, and can look back with a more analytical view right now? I could NOT do that 6 months ago. I think you were totally helpful (and you were to me personally many times with your knowledge). Yes, we must remind ourselves that shedding is normal and healthy--but that's hard to do after your scalp dumps half your hair!

    Like I said yesterday--I do not think I will regain all of my hair, but I am fine with what I have so far. It will do :)
     
  5. JenVoy

    JenVoy Established Member

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    Backlash? That's funny! :D I totally get shedding is normal. Hell, I'd shed tons before this all occurred. What isn't normal to me is loosing clumps of hair, as I'm sure everyone would agree. It's also not the norm to pull hair out while washing and have a clump daily, along with continuous hair shedding all day and night. I haven't counted ALL of the continuous hair shed all day, everyday throughout the day...that would drive one insane! I think my husband would check me into a mental institution if he saw me picking all of the hair off the living room floor, car, clothing, bed, and shower and count them daily.

    I still believe even if I'm (I'm guessing...who knows!) shedding 100 a day it's not normal For ME! Especially when it's not being replaced fast enough to contribute to any density that was lost. Therefore, it's still CTE. Trust me, I get what you're saying. I'm only stating the loss of hair while washing was 30-50. If I continue to pull hair out the entire day and night I have zero clue what the amount is. When fingers are run through continuously, I will always pull hair out. Again, only time will tell if it does decrease over the course of months. I hate comparing my TE to anyone else's. I'll just cross my fingers and hope for the best.

    - - - Updated - - -

    It's wonderful that you're now in recovery and it's always nice to hear a success story. However, keep in mind it's easier to feel such a positive outlook being on the other side. You no longer fear the unknown. Which is what causes the endless anxiety, worry and sadness.
     
  6. Wolf924

    Wolf924 Experienced Member

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    It's wonderful that you're now in recovery and it's always nice to hear a success story. However, keep in mind it's easier to feel such a positive outlook being on the other side. You no longer fear the unknown. Which is what causes the endless anxiety, worry and sadness.[/QUOTE]

    Actually I think I said exactly that in my post: but that's likely because I am in a different place with my hair loss, and can look back with a more analytical view right now? I could NOT do that 6 months ago.

    Also I DEF still fear the future as I have not regained all my hair. I do NOT know what the future holds for my hair. There is a lot of fear in recovery as well.

    - - - Updated - - -

    Also--I am sorry if you feel offended but my comments and LBV's were made to be hopeful. Hope from this forum is what got me through the worst of my two year ordeal. The intent is to help--not minimize your pain. No one understands what you are going through better than us. hair loss is evil--we really get it. I was just talking about this with a friend last night. Truly, we are on your side, so please, try to see the good intent.
     
  7. sarvnaz123

    sarvnaz123 Established Member

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    I agree labellavita1985, like you I used to lose noticeable amount of hair too before hair loss, but never thought much of it. However, after experiencing hair loss, now we are more obssessed with it and even a slight increase in our hair shedding freaks us out.
    I am on Rogaine now, but I still go through periods of higher shed. One thing we need to remind ourselves is that even if we didn't have hair loss, our hair will go through higher shed cycles just naturally. Some months we might lose more hair and some months we might lose less. I personally know that my shed is the highest in May and June in to July and it tapers of Mid July. It was always like this, but after hair loss, it still freaks me out when I see the increase.

    JenVoy,
    The fluctuating decrease in hair loss is normal. that is how it has always been for me. I never went from shedding a whole lot to not shedding anything. It always creeped up or creeped down. Hang in there.
     
  8. JenVoy

    JenVoy Established Member

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    Thank you, I wish I could say it was fluctuating. It's been the same since January.
    Only time will tell when this tapers off and eventually is over.
     
  9. DisTressing

    DisTressing Established Member

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    Let me jump in here, as at least one derm I've presented the details of my hair loss situation to believes I suffered either one acute TE or multiple acute TEs. Acute TE is not defined as a condition that ends within three months. According to Dr. Jeff Donovan, a Toronto dermatologic hair loss expert, acute TE can last up to twelve months. This may be debated by other experts as most other points regarding CTE and TE are, but I think we need to be careful to avoid definitive statements about the progression and duration of TE or CTE when not only is everyone's experience likely to be different, but the medical community still debates this poorly understood group of conditions. I know this first hand, having posed 30 questions to some of the top hair loss specialists in the United States participating in Realself.com forums online. One might know several people who had CTE or TE, but likely not a large enough quantity of sufferers, and almost certainly wouldn't have followed their progress for 5-15 years to be able to verify that they never fully recovered, which is the amount of time that Dr. Donovan believes it can take to regain lost hair and density. Sometimes recovery is partial, but there is no evidence whatsoever to indicate that TE or CTE never fully resolves in most people. Anyone who is interested in learning more about what the experts have to say about certain aspects of TE and CTE from both highly specific answers (related to my case) and general questions I've posed, please PM me and I will share a variety of responses I've received from a number of different doctors. Or if you like, go to Realself.com and ask questions yourself! You can post pictures and go into detail, and you might get some very helpful responses. You will quickly see for yourself the extent to which they contradict each other when it comes to established "facts" associated with TE and CTE.

    Wolf, you've only been in recovery less than a year now, and showing good progress. I think you'll see continued progress and you will likely make a complete recovery but from what I've learned, it can take many years.
     
  10. Wolf924

    Wolf924 Experienced Member

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    Thanks Distressing for your hopeful and educated commentary.

    I really really reallyhope to make a full recovery- I'm just not seeing that happen in many other people so I'm trying to emotionally let go of that possibility. Recovery as I said- is full of emotional ups and downs.

    I'm accepting that I won't get all my hair back but it would be awesome if I did. In October it will be a year into recovery. Fingers crossed.
     
  11. DisTressing

    DisTressing Established Member

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    I'm crossing my fingers for you and for all of us! If you stopped shedding for a year that is cause for celebration. Don't be overly concerned if by October your hair is not where you want it to be. Recovery, as you probably know, doesn't take a linear path in CTE.
     
  12. alexa_

    alexa_ New Member

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    I agree with you, JenVoy

    I've been shedding for 14 months now, due to having taken Plan B (evil, evil, evil pill) in Dec 2014.
    Before this began, I was shedding very few hairs, like JenVoy mentioned - maybe 10 a day and 5-6 when washing. This is normal for me.

    After my shed began, at the beginning I used to shed ~100 hairs when washing, just horrible, pulling whole strands when running my fingers through my hair in the shower.
    And then another carnage the next day post wash when I combed/styled my hair - another 50 hairs came off. Ugh!
    During the past 1.5 months I am losing less in the shower and sometimes very few, sometimes same (~50) hairs the next day. I see quite a lot of regrowth around my temples which are starting to fill in, and in the front of my hairline (loads of short hairs there), all of it is very thick and healthy. I do see some of those short hairs shedding - in the sink, on my keyboard, it's so hearbreaking. From what I've read here this is common with CTE.

    During the day, on non-wash days I fluctuate between (10-20!!! That was last month when I thought I was improving) and (40-50 :( - what I've noticed during the last 2 weeks).

    So yes, I am still shedding loads of hair, based on what was normal for me. Most of it seems to be from the back/nape/behind ears area (I can tell based on the length). I know that these numbers are low compared to what other ladies on here are reporting, but this is too much shedding for me.

    I am SO TEMPTED to just cut my hair really short and get a wig until this whole sh*t storm is over.
     
  13. JenVoy

    JenVoy Established Member

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    Hi Alexa, sounds like we are in same boat.
    Although, I keep my hair up all day, everyday so I don't 'see or feel the hair fall. Hair wash days are 30-50 daily with continuous hair fall.
    :(

    I'm now emailing a woman I found on YouTube that uploaded a recovery story about her CTE. It's been nice to connect to someone who is going through the same thing.

    I bought a beautiful wig from a woman I've seen do gorgeous work. She's Kim zolciak's wig maker. (Reality star on Bravo). If you'd like her contact info let me know! I'm going to post my photo in wig section once I get it and try it on!
     

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