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Symptoms of diffuse alopecia areata?

Discussion in 'The Undiagnosed' started by Paulina, Apr 9, 2010.

  1. Paulina

    Paulina Guest

    Hi mythreeboys...I just wanted to tell you that the stress of getting only 3 hours sleep a night AND having a colicky baby is huge. Stress can be emotional AND physical too. What I mean is that I learned that even if you don't feel stressed, your body can be stressed...just not your emotions...if that makes sense. So 3 hours of sleep a night can physically stress your body while the colicky baby can emotionally sress you out. SO, telogen effluvium is a real possibility. Are you getting a lot of self care now? Relaxing, guided imagery, hot baths, etc? We moms forget to tend to ourselves sometimes. As far as the mattress goes, I can only say that it won't hurt to get rid of it and go back to a regular mattress and can only help. I once bought expensive down pillows because they were SOO comfy and I got little bumps (rashes) on my back and chest....was so weird. lasted for months. I asked myself what I did differently and the answer was the pillows. I got rid of them and never had the problem again. SO, I can't say it WAS the memory foam mattress and I don't know anything about them, but if this was one of the few changes you remember back then and your hair loss persists, it cannot hurt anything to try getting rid of it. But remember it takes 3 to 6 months before hair grows again after trigger is removed. I am praying for a beautiful outcome for you...for us all! Was a great group of women on this board! Big hugs to you. :)
     
  2. Paulina

    Paulina Guest

    Hi RubyRoo,
    You have classic symptoms of Mycotoxicosis. I URGE you to call in a mold specialist and have your house / air tested for mold. The wheezing, the sore throats, ALL of what you said are signs of mold poisoning. I don't want to scare you. But I have to tell you my daughter and I lived in toxic mold for 1 1/2 years and got VERY sick and had no idea why until I found mold in the kitchen. Had air tested to confirm large amounts of toxic mold. Was not terribly expensive. We both had sore throats, burning throats, burning lungs, out of breath easily, I had vision problems and a constant brain fog....short term memory totally shot! My daughter had extreme anxiety, chest pains, choking sensations...she is very young and slept with me every single night because she couldn't breathe well and / or felt choking sensation and feared she would die in her sleep....near panic attacks for her many countless nights...and she is only 10! Was 8 and 9 at the time. We both are experiencing severe hair loss as well STILL. Mold CAN cause hair loss but many docs will tell you it can't . You need to find a doctor that specializes in environmental toxins and is educated about mold or you will hit a brick wall. I cannot tell you how important it is to get out of the house and get the air tested. Our symptoms ...90%...went away within 2 months of leaving. 2 weeks may not be long enough to guage whether or not mold is causing these problems OR recover from them. Often times mold is like an iceburg...there is a little on the surface (what we see) and a TON out of sight...behind walls, etc. So, you might think it is gone, but it is likely not gone at all. Just that one spot. Mold needs moisture and darkness to grow. Is there a leak in the wall behind your bed? You must find out. When you hire a guy to test for mold, ask him to bring a moisture sensing device to look for moisture in your walls. Mold doesn't come out of nowhere. My prayer is that you do what I am suggesting as soon as possible. My daughter now has an impaired immune system...IgA, IgG, IgM all below normal. Sick all the time when she almost never used to be. Doctor says it is from mold exposure. Toxins (mold or otherwise) can trigger alopecia areata if you are susceptible...I believe that is what has happened to me and possibly my daughter. 7 months gone now and we are still losing our hair (me about 90% and my daughter abut 60%). I was diagnosed on Friday of last week with rare diffuse alopecia areata. The fact my daughter is losing all her hair too, and at the same time, is NO coincidence. I pray for you my dear, and I hope you will find a way to let me know how you are doing. Please see a doctor and get a mold tester to your house ASAP. Sending big hug to you as well!
     
  3. RubyRoo

    RubyRoo Guest

    I don't still have those symptoms though, the wheezing, sore throats, headaches etc, none at all. Plus my hairs stopped falling out. I'm not debating that this hasn't effected me, I'm sure it did but we got central heating installed in January and our house has dried out completely since, until then it was log fires and standing electric heaters. There are def no water leaks anywhere, esp near my bedroom and the walls are paper thin, it's just a case of a living in a wooden house with no proper heating, esp over a very snowy and wet winter! Is it possible then that the higher exposure in Nov effected me. I've lived here for 22 years with no probs until recently. I will of course look into this properly, eeek!
     
  4. Paulina

    Paulina Guest

    Dear RubyRoo, that is GREAT news that your symptoms have subsided! :) I am so happy to hear that! I would get the house tested anyway because it does not cost too much and is a great idea to be on the safe side, but sounds like things are much better and that is awesome!!! :) That just made my day! :) XOXOXOXO
     
  5. RubyRoo

    RubyRoo Guest

    Paulina you are such a sweetheart, I don't think I've ever 'met' anyone as generous with their kind thoughts as you!! And yes I think you are right it would only be sensible to get things checked out. I hope everything turns around for you and your daughter, it sounds like you've had a really rough time of it you poor things. I hope your little girl isn't feeling as anxious now? I know the panic about dying she felt only to well, it's horrible, but mums always make it better, I know mine did! I don't know anything about impaired immunity but I hope very much it can get better for her (and you of course)! xxxxxx
     
  6. Paulina

    Paulina Guest

    Dear RubyRoo,

    Thank you so much for the beautiful compliment. :) I just really appreciate wonderful people who are willing to put themselves out there and share their stories...even if anonymously...I just think we have so much to offer each other by way of information and so why not offer some kindness and encouragement to boot? If it is genuine it is a beautiful thing! :) ...and of course I have so much compassion for all here on this board. I know we have all been through so much. Thank you also for your well wishes for me and my daughter. I pray every day for a wonderful and happy outcome for us as well. I am not sure how things will turn out for us, but it truly does make me so happy to know that others have great news and have gotten better...from whatever ails them (Pain is pain. Worry is worry, no matter the cause). So thank you so very much for sharing that wonderful news with me. :) Always feels really good to smile! :) I hope everyone will get on the boards when their hair starts growing back and they get better also so that we can all can see the GOOD outcomes also. Keeping hope alive for others is such a gift...my prayer is that we are ALL in a position to do that one day soon. :) Wishing you the best always RubyRoo. :)

    BTW, I am happy to report that my daughter's anxieties all went away when we left the mold too! Poof...gone! :) She stopped feeling that choking sensation and she could breathe again well so she did not have the fears of dying in her sleep anymore. She is back to normal now. However... now that her hair is so getting so thin, she is getting a little anxious again about that, but nothing even close to like before. Must have been related to mold because it all began when we moved in and it all went away when we moved out. Is the craziest thing! I am so sorry you know that fear of dying....whatever happened to you I am so happy that you were ok! I bet your mum was wonderful! :) Thank you so much again for your well wishes! XO
     
  7. Paulina

    Paulina Guest

    You are very welcome mythreeboys and thank you so very much for your well wishes. I am deeply grateful. Yes, it IS devastating to see this happen to her too. :( She used to be a child model for Ford and was known for her thick, beautiful hair...even graced the cover of a magazine. :) But to those who KNOW her, she is known for so much more than that. She has the most beautiful, loving, giving, compassionate and kind spirit. She is such a blessing and such a good, wise soul. I am confident that hair or no hair, we will continue to grow together and find joy and happiness in life. But that doesn't mean it doesn't break my heart for both of us. I am just recently divorced from an incredibly abuse marriage of 13 years (I finally left!...my misfortune I moved into an apartment with toxic mold when I did) and to lose all my hair when I have a chance at life an a healthy love again is beyond devastating...then to see my beautiful daughter go through this too...well, words cannot describe the pain. When I told my ex what was happening to us his words were...and I quote: "all very tragic." That's it. So you see, I know cruelty in people and so I all the more appreciate the beauty in people. Just wish I could do it with our hair still on our heads! :) But, I am glad I am going through this if SHE is because now I can be there for her to comfort her and love and support her in a more profound way that I wouldn't be able to otherwise. Thank you and everyone else for your well wishes. I am trusting in God to take good care of us. :) Have a fantastic weekend mythreeboys! And thanks so much again! XO
     
  8. Paulina

    Paulina Guest

    Hi Everyone,

    I have to share the great news with you all! My biopsy came back last Friday and was NEGATIVE for Diffuse Alopecia Areata! I have Chronic Telogen Effluvium likely caused by some toxic agent in my apartment that I left a month ago. I could not believe it! The dermatologist looked at the exclamation point hairs I had under a microscope...plus I have other symptoms as well. But the biopsy is very clear and even sent back a picture of what it looked like under a microscope! CTE can cause loss of eyebrows and eyelashes and body hair as well! And the burning, itching scalp. All of it! I just feel SO blessed right now! Now that we are gone a month, the burning of my scalp that started about two months after we moved in to that apartment is almost completely gone....I would say 85%! The derm recommended I go see Dr. Vera Price in San Francisco who he went to med school with...says she is the best of the best...but I think I will not do that. Would be easy since I have family there (my home town) but I have read really horrible things about her and her bedside manner on this website and others so I will skip it, thank you very much. I will see where my daughter and I are in 6 months. Still will keep my wig appt because hair so thin and still coming out, but very hopeful it will grow back sooner rather than later. I don't know if we will ever figure out what exactly has caused this in me and my daughter, but I will post again when I see our hair re-growing again....and since it is CTE and I believe we are out of the place that had the trigger, I fully expect that to be in the not to distant future! Thank you all again for your tremendous kindness and support. Hope I gave some back! XOXO
     
  9. RubyRoo

    RubyRoo Guest

    Wahey!!! :) Paulina this is such good news! I couldn't be more happy for you! I hope this is the beginning of a very positive start for you and your daughter, it seems like you've been through it big time and finally your prayers have been answered! Right, fingers crossed, now you're completely removed from the cause those little hairs will kick start back into action!! xxx
     
  10. Paulina

    Paulina Guest

    Thanks SO MUCH RubyRoo! :) Yes I am SO happy about this! I AM expecting to see those little buggers growing, en masse, in the next few months for me and my daughter. :) I am still going to be praying for everyone here to have great news to report SOON also! Be blessed and thanks again! ;) XO
     
  11. Paulina

    Paulina Guest

    Hi Mythreeboys,
    Thanks so much for the kind words! :) YAY is definitely how I am feeling right now. Yes, it was odd that me and my daughter had it at the same time. I know we were living in a very toxic environment but also do have A.A. in my family and read that it can be triggered by severe emotional stress and toxic environment...both of which I had last 2 years so I really thought I had this! I am so thankful to God for answering me and my daughter's prayers. :) Am letting us detox and taking N-Acetyl Cysteine to help that along. Supposed to be a miracle amino acid...not to grow hair but to detox the body and many, many other wonderful things it does for you. Our hair not regrowing yet..hear it will be several months from the time the trigger is removed... but the burning on my scalp mostly gone so AM encouraged! So you saw a top derm too and she thinks it is not Diffuse A.A.? Well that is good news but I do understand it is so frustrating to not know what is going on. Hang in there sweetheart. You will have your answer one day and your hair will grow back! Everyone's will! I am calling it out right now! :) There are going to be some really happy stories posted in this thread! Until that day...be blessed and know I am praying for ALL of us! XOXO
     
  12. mythreeboys

    mythreeboys Guest

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  13. Paulina

    Paulina Guest

    Thanks so much Mythreeboys! :) I can FEEL the positive vibes for sure!!! Sending LOTS right back to you! :) Wishing you all the very best too and I think the things you are doing are a GREAT start and hoping you find the trigger soon! I am having faith that you WILL indeed! :)

    I don't know whether it is chronic TE or Alopecia Areata you have, but both can be triggered by some kind of toxins so I am glad you are doing those three things. I can tell you that I get a tiny burning in my eyebrows too and my scalp as well. I also get a pin prick feeling in my scalp too but since I left that apartment a month ago, it is mostly gone...not all, but most. It started 2 months after I moved in. I also am losing hair from other parts of my body like my arms...left arm more affected than right arm...weird right? Hair on left side of my head thinner than the right side too. My doctor was even a bit surprised. And I don't have Alopecia Areata. Apparently Diffuse A.A. can mimic Chronic TE. I wonder if there is any way you can get a scalp biopsy? Sometimes knowing for sure one way or the other helps a lot. It sure did help me. Brought my anxiety level way down even though hair not re-growing yet and still coming out.

    I just KNOW you will solve this mystery SOON my dear. :)

    Please keep me updated as to how you are doing. I will let you know when those dark brown cuties start a'growin' too! :) BIG hug to you! XO
     
  14. emrob0

    emrob0 Guest

    I was just wondering how you had gone on with this? My whole family started losing hair last year. I am devestaed, especially for my 2 daughters.....
     
  15. Paulina

    Paulina Guest

    Hi Emrob0....I am so very sorry for what you are going through. I truly understand exactly how devastating this is. I have not seen me or my daughter's hair re-grow yet. Both of us still losing our hair and what is falling out is not re-growing for the most part. I am almost in a wig and my daughter has lost more than 60% of her hair..but in a diffuse pattern...no bald spots or anything like that. We were exposed to Aspergillus toxic mold and that started it. We have been out of the mold for a year and a half and all of the horrible health symptoms we had are all gone but the hair loss remains and I have no idea why. Yes, it IS devastating beyond belief. To see this happen to ourselves AND have to watch it happen to our kids is pretty much almost unbearable at times. Please know that empathize and would like to help you in any way if I can.

    Can I ask you something? Do you know what is causing the hair loss for you and your girls? This is deeply troubling to me that it is happening to all of you. Is there something in your environment that could be causing this? For example...could you all be living in toxic mold? Have you had the air tested? Could you all be exposed to certain chemicals that cause hair loss or heavy metals like lead or others that can cause hair loss? I ask because for it to be happening to ALL of you, there MUST be something in your environment. I recently met an amazing woman who was losing her hair and so were her two kids...they were living in toxic mold...Aspergillus to be exact...also. As long as I do not name her I feel ok to tell you that she and her two kids are also losing their hair. Dramatic hair loss just like mine and my daughters. So sweetie, something is causing this is all three of you....have you figured out what it is? The most important thing is to determine what is in your environment causing this. You cannot remedy the cause until you know it. Sweetie, have you had your home's air mold tested?

    Please tell me more about what is happening to you all. Are there other health symptoms? I don't know if you have considered toxic mold as the cause but please google the symptoms of "mycotoxiosis" and see if you or your girls have any of these symptoms. Also, please look up symptoms of lead poisoning and toxic alopecia if you don't already know what is causing the hair loss. This can help you with the puzzle. I know people thing they are safe from lead but I bought dishes from Bed Bath and Beyond that I think had a glaze that contained lead. I did a lead test when all this happened and I was trying to figure out what was happening to my daughter and I (before toxic mold found) and I was found to have high lead in my body. The only thing I could think of was the dishes. I read that ceramic glazes on plates from places like China can contain lead. Sure enough, my plates were made in China! They are infamous for doing stuff like this and many kids toys have been recalled that came from China for this same reason. Anyway, don't think of ANYTHING as too "crazy." Trust me sweetie...I have seen crazy with my own eyes!! ALL of what happened to me and my daughter....totally crazy and unbelievable. So...don't rule out anything.

    Please let me know what are your other symptoms and look in to those things I mentioned. Also, if you have not done so yet, please please please have your home tested for toxic mold.

    It is very hard to cope with the hair loss. I have been dealing with it for three years now but that doesn't mean you will. Please don't let my situation discourage you. The causes may be totally different and you all may recover much more quickly than my daughter and I. Every situation is different. And I have not lost hope that our hair will start growing any minute now. The burning I had on my scalp and eyebrows is gone now. Two months after my last post, I figured out it was my shampoo causing the burning and even worse hair loss. I was using Avalon Organics Volumizing Shampoo with Lavander and Rosemary and THAT was what was causing the burning and increased shedding! I used it for almost 2 years without knowing it was causing the burning!! I only figured it out when I ran out and didn't use it for a few days and the burning stopped!!!! Shortly thereafter, my hair falling out greatly slowed down too!! I have a kind of "perfect storm" of hair loss I guess. :( So, again, NOTHING is too "crazy" when trying to figure this all out. Please let me know how you are all doing if you get a chance. Big hug to you!!!
     
  16. emrob0

    emrob0 Guest

    Hi Paulina
    Thanks for your reply-I really appreciate it. It is a long story I'm afraid! I first noticed my hair loss end of Sept last year. Firstly I noticed my hair felt suddenly less dense then noticed hair all over the house, all over clothes etc. GP/derm ran blood tests-all ok really. It was blamed on stress. I had had an unexpected sudden bereavement in the Feb followed by a lot of stress as a consequence of the death. I was always skeptical to be honest, as the time line didn't seem right and I have been through bereavements & stress before and am generally strong & a good coper (except since this hair horror began). Anyway, was told it should recover in time.
    A couple of months later I noticed that all the hair around the house wasn't just mine-I am blonde so v distinctive. I looked at the kids car seats and was horrified to see they were full of hair, as were their beds/pillows. Their hair texture also started to go off, became fly away & more scalp noticeable just as mine had started. GP initially v dismissive, blamed on me being over sensitive about it all! I insisted on referral back to derm for us all. We had app in Jan 11. Was told all had clinically normal scalps, and that all had full heads of hair. I queried something fungal but derm refused to test/culture scalps/hair saying no indication for it. Did do Woods lamp test which was -ve, but I've since researched this would only show around 50% types of fungi anyway. To be honest I was made to feel like a complete nutcase-I even left the appointment wondering if I was? There was no convincing the derm that I am the mother of these girls and I KNOW that their hair is drastically different. Derm just kept saying they /I had full scalp coverage and that I was in a cycle of anxiety due to my own hair loss. Derm said childrens hair goes through cycles and not to worry about it. Ha! I can not tell you how much all of this has devestated my confidence. Derm did also suggest dietry factors-complete rubbish-we have a good diet and had not changed it.
    hair loss has continued, mine being the worst-possibly because mine seemed to start first? I went back to GP in March. At least at this appointment there was acknowledgement that this was real-that my daughters hair had thinned and the initial "stress" theory was a red herring as stress didn't affect kids in the same way as adults, and that all our hair shouldn't be falling out at same time. I said at this visit I was concerned about an environmental cause - GP agreed possible but said to observe thing til June to see if any improvement. We are now nearly in June & no improvement, in fact mine & daughter no 2 has worsened. I estimate I have lost over 60% of my hair. As I said tho am most devastated for my daughters. Daughter no 2 has gone from thick curly hair to thin limp and straigh fly away hair with scalp showing. Daughter no 1 keeps asking why hair clips/bobbles etc just fall out nowadays & why always hair on her at school- she even showed it to her teacher. Have another GP app next week....going to ask to be referred back to derm-possibly a different one?
    Meanwhile, I have begun to investigate things in the home. We did get carpets cleaned in July 2010. Afterwards I felt there was a v. strong chemical smell...I have often obsessed as to whether this has been the reason. Company have denied anything used could cause hair loss. 2 months ago my husband (who by the was feels has also lost hair but unsure whether related or just age-his hair def thinner than a year ago) said it was crazy to carry on worrying so got rid of carpets we had had cleaned, to try to eliminate a potential trigger for this. We have had water tested for everything-heavy metals, bacteria etc-all fine. We did change our family car end of May 10-but how a car could cause hair loss I'll never know?
    Finally, we had a leaking radiator in a room used as kids play room. Discovered this in Feb. Not sure quite how long had been leaking but I was alerted to it by a nasty odour, I have a good sense of smell. Carpet was saturated in one corner. We (possibly niavely) just dried it out & forgot about it but the smell never really went. Due to this I asked environmental health to come out, as wondered about mould spores. They placed an air quality monitor for 6 hours. When the results came back the plates grew "a lot" (they do not provide quantities unfortunately) of Aspergillus, Pencillium & 2 unidentifiable yeasts. Our cause???? I don't know. We have since noticed the carpet underneath is rotten, no visible mould tho. Have stopped kids going in there & plan to rip out carpet & clean with borax etc this weekend.
    Environmental health suggested getting more accurate testing done - something they don't provide. I am fortunate that I work in the same building at a regional mycology lab. I overcame my embarrasment & showed the report to one of the Professors who is due to come to the house next week to do some more precise testing. He said in his whole career he has never seen these moulds cause hair loss (he is a world expert), normally asthma etc.....but he said if it helped eliminate it as a cause he is happy to try to help. However he did say we could have become sensitised, and mentioned allergy testing for the kids depending on what levels show. 2nd daughter is allergic to Penicillin, and we are the 2 members of the house who are in the house most as she`s not at school. So that is where we are up to....I am v anxious to get the further tests done but goodness knows what the next few weeks will bring.
    I do have other symptoms - again all put down to anxiety-I know my own body and know it is not anxiety. I have had a burning tongue for months, burning scalp, pins and needles and crawling skin sensations, hoarse voice. My daughters complexions have gone off, with white flaky slightly spotty skin. I have developed greasy skin, eyelids and spots, I normally have good skin. Tonight daughter no 2 got very upset and said she felt like she had ants crawling on her legs (she has not heard me say anything like this). She has also an itchy scalp. Their development is great. I feel so sorry for my girls, I have always been a bubbly sociable and busy person....now I struggle to leave the house, see my friends & feel incredibly down. I'm sure the change in their mum is affecting them. I am worried my total current lack/loss of confidence will have a long term effect on their confidence, as I'm being a rubbish role model. Wish our lives would go back to how they were last summer......So sorry for you and your daughter too. Apologies my post is so long....I will let you know how we go on. Thanks for listening xxxxxx
    By the way-leaving our home is not an option. We don't have large families and would have no one to stay with & cannot afford rented accomodation as well as a mortgage. We are going away on 6th June for 5 days-I am interested to see if there is any change in my symptoms when I am away from our home. xxxx Take care & keep in touch xxx
     
  17. Paulina

    Paulina Guest

    Oh Sweetie...
    I must tell you that mold DOES most certainly cause everything you just stated. I went through it personally and am in regular conversations with another woman who also has been made ill by Aspergillus mold and her two children all have had health problems too. In fact, she is a great and life long friend now!! We have all been through hell and still living in it due to hair loss. She is having neurological issues in her feet and she is also having burning scalp. I had a burning scalp when I was living in Aspergillus too. I think a shampoo I was using was contributing to that, but I think the burning started before I started that Shampoo. My burning scalp is gone now. Me and my daughter's hair has dramatically fallen out...I have lost about 90% of my hair (wish I were exaggerating) and the dermatologists all said to me the same thing at first....that nothing wrong and my anxiety..etc. Said the same about my daughter. Now they see it in both of us. Unmistakeable. My daughter has lost about 60% of her hair at this point. We both had Pohl Pinkus hairs throughout our head too. Only 3 things cause those...chemotherapy for cancer treatment, a major surgery, or a severe body sickness! Well, we did not have chemotherapy nor have we had any major surgery. The fact that we both got these rare and usuaual hairs at the same time along with the hair loss and sickness..and could prove we lived in Aspergillus...along with all the other health problems we had at the same exact times...helped us with the doctors. We had numerous other health problems all of which have gone away since moving. That man who says he has never seen any hair loss from mold has no idea what he is talking about I am sorry to say. Have him contact me and my other friend who is going through the same thing...we are ALL losing our hair!! Not just us but our children as well!!! We are ALL devastated!!! It is Aspergillus, specifically, that causes the hair loss. It is much more common than anyone knows because it is dismissed as anxiety or stress or nutritional problem...it is MOLD!! Aspergillus to be exact!! I wish doctors would believe us! We know our kids!! I had to practically FORCE my daughter's doctors to look in to the health effects of mold and show them the air test that there was a lot of mold in the house before they would admit we were sick because of it. They all do admit it now! They sent my daughter to see a psychologist for anxiety symptoms when she complained of chest pain and choking sensations and that she couldn't breathe well!! I insisted she was sick but they would not listen. I had to fight for her...be persistent. It is most unfortunate that doctors do not know about this! I am so sorry that you cannot move. My my other friend and her kids and myself both moved. All me and my daughter's symptoms have gone away except the hair loss which persists to this day...we moved out a year and a half ago. Our hair changed a little but my friend says that her kid's hair changed a lot! Was thick and curly and wiry...now is this and wispy and limp and very thin. I haven't named her and won't so I am sure she wouldn't mind me telling you if it is to help another person and her children who are sick like we are/were. I understand your worry and DO understand how totally and utterly devastating the hair loss is!! It has changed me and my friend forever and likely has changed you too...how you feel about yourself. If so, I am so deeply empathetic and so deeply sorry. I truly understand how you feel. Not only is it happening to us but our kids as well and it feels almost unbearable at times!! You really do have to find a way to either move or properly get rid of the mold. Aspergillus is a fine dust in the air. It gets in to everything. Please google mycotoxicosis and google aspergillus...get very informed about mold and how to deal with it. What to do. You will need to throw away anything porous....any upholstered furniture, all stuffed animals, pillows, bedding including mattresses...all of them... and all sheets and blankets that cannot be bleached, plants, anything that is porous! But don't bother doing this until the mold is remediated...totally gone...otherwise it will just recontaminate everything and it will have to be tossed again! After mold remediated and porous things thrown away (NOT given away) ....then everything else...and I mean everything down to the last pencil...must be washed down with a bleach and water solution...REAL bleach...not the "color safe" kind...that kind will not kill the mold. Because Aspergillus is a fine dust, it gets deep in to your lungs, your eyes, mouth...in to and on to everything you own. The mycotoxins produced by the mold is what is getting you sick but I suppose you know that by now. My friend's child has thyroid issues, she has neurological issues...the ants crawling thing with you and your kids...neurological. You have got to find a way to move or to very thoroughly remediate the entire house you are living in now and throw away anything porous that cannot be bleached. I had to do this and is the only way my daughter and I got better. It left me broke and in debt but was literally life saving. I am so sorry you are going through this. Please be persistent with you doctors....it sounds to me like you are just like my friend and I and our kids....all very sick from toxic mold...Aspergillus being at least one of them. Please Please read up on Aspergillus and mycotoxicosis. Please educate yourself on the health effects of toxic mold and what to do about it. Keep me posted too. My daughter and I had horrible symptoms...chest pain, choking sensations, vision problems, skin rashes, massive hair loss, flu-like symptoms, anxiety, night head and body sweats, itchy skin and eyes, sinus problems headaches a lot, vomiting, stomach aches a lot, acid reflux feelings...but antacids didn't help it so was something else...just felt like acid reflux...severe brain fog and short term memory loss/problems...bruising very easily (out of nowhere!) on legs....immune systems crashed...immunoglobulins all fell below normal (IgG, IgA, IgM) and my daughter who rarely got sick was constantly sick...on and on I could go honey. It only got better when we moved...and threw away anything porous and cleaned everything else with bleach and water. Let me give you a good example of how bad this stuff is...how pervasive...even after doing ALL of what I mentioned...I didn't realize at the time I had to throw away my mattresses until recently. When I heard from an expert that I had to throw them away, I did. But when I took a look around my room I noticed it was VERY dusty!! I had noticed this for a while....my windows in my room get fogged up every morning after my shower...I looked at my blinds and they were incredilby "dusty"!! IT was gross!! I walked around the house and guess what? NONE OF THE OTHER BLINDS WERE "DUSTY"...NOT A SINGLE ONE!! It was NOT dust at all!! It was Aspergillus that looks just exactly like dust!! Aspergillus needs the least humidity/moisture to grow of any molds also. I just spent thousands of dollars throwing away me and my daughter's mattresses, replacing the blinds, pillows, threw away blankets, stuffed animals (AGAIN) and sheets that could not be bleached, very expensive comforters...all bedding tossed!!! It has financially DEVASTATED me!! Again!!! I am broke to begin with!! But it had to be done. I spend every last penny and am so in debt, but there is no other choice!!! When living in the toxic mold, my daughter had near panic attacks every night because she thought she would die in her sleep...her breathing problems and chest pain and choking sensations were that bad!! She was only 8/9 years old!!! She didn't sleep in her bed for a year and a half...had to sleep with me because she really thought she might die in her sleep. No child should ever have to go through this!! This stuff is so bad!!! You have an uphill battle and I am so deeply deeply sorry to be the one to tell you. But it is one you MUST fight. You will have people tell you that you are crazy, that mold doesn't cause this stuff...they are all wrong. My aunt got sick from mold too...lost her hair...etc...I am telling you this is more common than anyone knows and with idiot doctors blaming it on stress or hormones..etc...no wonder they are just uneducated and stay uneducated!! I had to literally force my daughter's pediatrician to look in to symptoms of mold sickness before she admitted my daughter was sick from mold! It is horrible. It is almost criminal. But it is true. Believe in what you know honey. Insist doctors help you and your children. Like I said, it will be an uphill battle, but it is one you must fight. Please do let me know how you do and how your kids are and God bless you all and give you the strength and finances to fight this. I am so sorry if I have scared you or stressed you out but I have to keep it "real". I need you to know what you are dealing with. I will be praying for you and your children every time I pray for myself, my daughter and my new dear friend and soul sister and her children. Please contact me if you ever need anything. BE very hopeful honey! All of this will get better when you take care of the problem. The hair loss will take a while but it WILL get better too!! Big hug to you honey.
     
  18. hcrazy

    hcrazy Guest

    I have bad mold allergy's also. I was renting a house on the beach with horrible mold problems when my nightmare started. I was going to an allergist..with horrible swollen rashy eyes and lips. I also experienced some of the other symptoms Paulina had. I haven't been in that environment for two years now...so I would have thought my hair would have responded more positively by now. I definatly know that mold can be extremely toxic.
     

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