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TE or Androgenetic Alopecia? Please help! :(

Discussion in 'The Undiagnosed' started by Skylark, Mar 2, 2012.

  1. mycurlyhair

    mycurlyhair Experienced Member

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    Good luck with the trichologist. Please post about it when you see him. I have been looking and dont see any in my area! :(
     
  2. Skylark

    Skylark Guest

    Hi girls,

    I had a very interesting and reassuring visit to the hair specialist today. After an hour of questions and an examination, she diagnosed me with a TE (nothing new there) and Neuro Dermatitis (a type of dermatitis made worse by stress.) Most importantly, she did not diagnose Androgenetic Alopecia! She said that as I am shedding lots and losing most from the back, this is not concurrent with Androgenetic Alopecia (I don't think they can say categorically that anyone doesn't have it but she didn't write it on my diagnosis report.) She commented that my sides are thinning - but said this is due to the TE. And she said hair tends to be thinner on top generally and that my loss did not seem to be Androgenetic Alopecia - despite male pattern baldness in the family! She agreed with the general consensus in here - that derms are quick to diagnose Androgenetic Alopecia but that there's often much more to it.

    She said that a TE can indeed go on for years, but that once you get to the bottom of the cause, it WILL resolve. You just have to keep trying. :)

    So she thinks mine is mainly due to low ferritin and long term stress. She put me on various supplements - namely Florisene for ferritin. She said ferritin needs to be at least 90 and that a level of 41 can definitely cause a shed. She said that ferritin is a protein and that it is very important to have protein at every meal! I don't eat a lot of meat so have been told to increase that.

    She also gave me a mild shampoo for the dermatitis (designed by her in a trichology lab.) She didn't think it was really causing the hairloss but said shampoo should make scalp more comfy.

    So there you have it. One year, 2 GPs and 2 derms later, and I've finally found someone who actually cared enough to look into it properly. Luckily I took along my previous blood tests that excluded thyroid, Vitamin B, etc. It's quite a process of elimination.

    Anyway, I'm just so relieved that there is hope to stop TE. Who knows, there may be a little bit of Androgenetic Alopecia lurking under there but I don't think it's anything like as severe as the derms seemed to think - and many women have a little bit.

    I really needed a bit of hope and I hope this helps others too. No miracle cure as these things take a while to work, but fingers crossed I see an improvement with these supplements and eating more protein...

    For anyone in the UK, her name is Sara Allison and she has clinics in Berkshire, Essex and London. :)
     
  3. mycurlyhair

    mycurlyhair Experienced Member

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    Thats awesome news!!! :) Was it pricey?? I wonder if I have that too, I just goggled it and it can cause flaking/dry in the area and I have that in the front. I am going to use a PH balance shampoo because all summer it was really hot/humid here and i think the sweating did something to my scalp! So happy to hear that for you, thanks for posting! I want to see a one so bad but they are all like $300 a visit! :(
     
  4. Skylark

    Skylark Guest

    Hi Curly, yes it was pricey - £150! That was for an hour and a half though and I would say totally worth it. But she said that I shouldn't have to see her again - I wouldn't have gone if it meant ongoing appointments as I couldn't afford that.

    She said definitely avoid sweat - or wash hair asap if you sweat. I've noticed mine gets much worse when I sweat - really itchy, when normally it's only quite mild. Yes a gentle shampoo is best in this case.

    Anyway, it was a very positive experience (and I hate specialists.) And I don't think I'm unusually lucky - I have the same family history of mpd as many others in here (though no female baldness) and she still thought that it was a fixable conditon. TE doesn't necessarily equal Androgenetic Alopecia! It's a process of eliminating the cause and re-balancing the body.

    We'll see if it works - only time will tell....

    PS. She didn't just mention ferritin and stress as the causes - they are the primary ones. I'm also low in protein, Vit D and zinc and I'm dehydrated. So lots to do but at least I'm on the right track.
     
  5. mycurlyhair

    mycurlyhair Experienced Member

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    Thanks for the info, Yeah next summer here I am going to have to get some really good air conditioner and not care about the electric bill! You sound like me, I am always dehydrated/dry and also have low D and my ferritin is actually 17 now! :( I took iron and my iron went high but not my ferritin. Ugh! So I have to stop the iron.
     
  6. cbradley425

    cbradley425 Guest

    MCH - I've had problems with low ferritin and low d in the past. I saw a naturopath for this stuff and the supplements he prescribes are better than your average run of the mill iron pills. My iron is actually called "ferrous bis-glycinate" and the pill has folic acid and vitamin b-12 in it. I don't need the b-12 since my levels were SUPER high for no reason last time, but the iron he gives me has helped my ferritin tremendously in the past. Don't know what you were taking, but this improved my levels.
     
  7. mycurlyhair

    mycurlyhair Experienced Member

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    Thanks. I was just taking CVS iron pills. I will look into that after I talk to my doctor about it going down next month.
     
  8. hhickm21

    hhickm21 Guest

    My b12 has been super high (over 1200) too.. wonder if that has anything to do with my hairloss...
     
  9. cbradley425

    cbradley425 Guest

    hhick yeah, my b12 was ridiculous last time and i wasn't even taking a supplement. in fact, they tested me when i was going through a pretty bad bout of an eating disorder, so it wasn't like i was getting it from food either. i think this can be linked to crap like kidney disease unless someones taking supplements. it's definitely a problem. one of many that i have.
     
  10. hhickm21

    hhickm21 Guest

    Ditto on no supplements, etc.. What is also strange is that your body is supposed to rid itself of excess B through urine, so I guess kidney issues would make sense. I feel like my energy levels are not ideal, either.. Which B12 is supposed to "help"? haha.. It's just sitting in my bloodstream not getting used and building up, I guess.

    But all sarcasm aside, my doctor never seemed to think the B12 levels were the cause of anything until I pointed out to him just how high and unusual the B12 levels were.

    I'll see if I can find anything else out regarding B12 but I've been sick of the lack of help from doctor's so far.
     

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