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Thinking Of Starting Rogain. Te/cte/Androgenetic Alopecia , I Have No Clue

Discussion in 'Tell Your Story' started by Sunnyday, Jul 27, 2017.

  1. Sunnyday

    Sunnyday Member

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    Hello everyone,

    So I think I’ve reached a point on my hair loss journey where I don’t want to keep hoping it’s just a TE and my hair will start growing back on its own.

    A little background and timeline:

    Am 30 years old with medical background (and believe me it doesn’t make things easier, in the contrary).

    June 2015: started a new BCP, a lot of stress, crush diet.

    December 2015: That’s when I noticed my hair loss. At that point I’ve lost already 50% of my hair and it all happened in two months why I didn’t notice before, I have no idea. I was shocked looking at the mirror one day, I had long hair, and the ends were so thin that’s practically my pony tail was inexistent. I’ve been losing 150-300 hairs/day.

    What I did: I booked an urgent appointment with a dermatologist. He wasn’t specialized in hair loss but then I didn’t know much. He diagnosed me with acute TE, said it was stress, he didn’t believe it was my bcp. (I did). My ferritin level was 30; he said it’s normal and started me on a multivitamin just to help my growing hairs. And that’s it.

    January 2016: At that point I started my research on hair loss, I was confident that yes it was consistent with TE. I cut my hair very short; it was cute actually and got me many compliments!

    I forgot to say that since day one I had a lot of regrowth, and I still do. Seeing a lot of healthy growing hairs gave me more confidence, I was reassured that it’s going to be fixed. My ends were thin but the hair on my scalp was better, thanks to all that regrowing hairs.

    May-June 2016: the shedding stopped/slowed down! I was losing 50-80 /day YEY I was very happy. Got back to my hair dresser for another trim. He told me that my density was way better especially on my scalp (My ends were still pathetic). And that’s it: I stopped counting hairs. I stopped looking at the mirror all day. I stopped taking dozens of pictures of my hair per day. I wanted to live my life normally and I was reassured. Also I had a lot going on in my carrier and I needed to focus on that. Needless to say that I stopped taking the vitamins and went back on my crappy diet.

    MAY-June 2017: Yep one year letter. I become obsessed with my hair again. Why? I don’t know maybe because I broke up with my boyfriend and I was self-conscious again. My hair was better in fact. It’s getting better I guess, but my hair is not back at the way it looked prior to all this, it’s not even close. and I noticed that am still losing a lot of hair, no idea since when because I wasn’t counting but now it’s 100-120/ day which is a lot for me. And am losing a lot of the regrowth and some thinner hairs. And my hair is so thin, I can see my scalp. The temples were the most hit, I’ve read that it’s seen in TE and CTE. But I have a severe recession in my right temple!

    What I did : blood test ! Ferritin 22, TSH normal, hormones normal. I saw three dermatologists since june 2017. No one was able to help me. The first one said it is Androgenetic Alopecia at first but he’s not sure, he then after examining my hair up close, told me that no in fact it’s probably CTE! And that I’ve already lost 30% of my hair. He was the most unpleasant person I had to deal with, insensitive and just horrible and I hated him and will never go back to see him The second dermatologist told me it’s probably CTE and that she’s not seeing signs of Androgenetic Alopecia; she didn’t’ perform dermatoscopy. So I didn’t’ believe her obviously and went to see a third dermatologist who wasn’t much of a help neither. He told I had nothing but still prescribed rogain. Well he was the only one to prescribe it but he didn’t even believe I am losing hair!

    NOW I am lost. I’ve been taking vitamins, iron tablets since first of June 2017 and am on jasmine since May 2016. I’m still losing hair. My part in the back is getting wider. I have a cowlick and it it’s much visible these days. But all my hair is thinner even in the back. Am losing shorter hairs and thinner short hairs but from all my head even the back! This is odd but who knows, in female hair loss nothing is sure!

    I want to believe it’s another TE or CTE or TE with multiple triggers that it’s my crappy diet and ferritin level but I can’t. I am so scared, I barely sleep, am looking to my hair all day long. I hate this. I hate that for the last year i didn’t keep track of what’s happening. My hair some days looks good and other days looks horrible. Even the pictures, it depends on the light and the angle of the picture so I don’t know how bad it’s getting. And what scares me most is that am not doing anything to stop it.

    That brings me to today, I decided I will start rogain and see what happens. I don’t know if I should start it now or in September when I get back from my vacation ( I am afraid it will get a lot worse with the initial shed and hence more visible and I don’t want that to happen on my vacation L).

    Any thoughts? Ideas? Similar stories? I am really lost

    I will continue to update my journey to help others and so I can receive some support and hear what you have to say!
     
    mcat11 likes this.
  2. Regina Maria Iriarte

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    I completely understand. I've also been taking vitamins, exercising, doing yoga, I've taken homeopathy and a friend recommended Brahmi oil, I haven't used it, so I don't know if it works. But I know what's it's like to look for alternatives. I'm also looking into getting a wig, for now I'm just sporting a bald head, so yeah... don't know which way to go.
     
  3. Sunnyday

    Sunnyday Member

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    Thanks for your reply. Just read your thread. Hope someone who tried brahmi oil will answer you soon :) i've read it strengthens hair but that all what i know Sorry i can't be of much help!
     
  4. mcat11

    mcat11 Established Member

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    I had dread shed and it was nothing--so I cant compare to other people...and no way to know how your hair will react so I would wait until you came home.

    I used it for two weeks, shed the following two weeks, then after that started to see some modest regrowth..its been a help and i use topical anti androgens from my Dr.

    try to find another doctor who specializes in alopecia---I live in NY so this was easy for me to do and i know some people live in more rural areas its not as easy to find specialists.

    You need a biopsy...I would try and get one of those doctors or the next one to do a 'punch biopsy' to send to a derma pathologist who will be able to tell from the follicles under the skin what is going on.

    Do you have miniaturized hairs? this is common in androgenic.
    Do you have family hair loss? both parents can pass it to either gender kids.

    I hope that helps.
     
  5. Sunnyday

    Sunnyday Member

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    Yep i have a new appointment with another dermatologist next week. no family history of pattern hair loss on both sides.

    I live in europe , in a country where even the specialists in hair loss doesn't understand much and where biopsies are not performed to diagnose/rule out FPHL. so i have limited options.

    I think am going to wait to start rogain until i get back from vacation. :( am so scared to start it

    as for miniaturized hairs, i don't really know. i shed thinner long hairs and short thin hairs as well as long thick hairs, the short hairs seem to come out mostly from nape/ behind ears areas so am confused. I always had regrowth, i still have, some are thinner but most are strong. i have also very short hairs growing, they seem thinner but i don't know if they will thicken up while growing. is there another way to know??some days am convinced i have Androgenetic Alopecia and miniaturized hairs and some days the opposite. i feel really lost :(
     
  6. mcat11

    mcat11 Established Member

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    You would see miniaturized hair in your front scalp

    Sit in front of a magnifying mirror

    Now--you will have normal hairs growing on head all the time so do not freak out if you see a few.

    but miniaturized hairs are like 1/2 long, they sometimes pull out really easy and have a whitish bulb...not always though.
    they are sometimes thick like normal hair but if more advanced they are very fine like vellus hair--like arm hair.
    do not get this confused with the 'baby' hairs on your hair line..this is going to be behind your hair line.

    I cant find a good photo but here is a microscopic view to give you an idea of the difference

    this is a tool your Dr should have dermascope to check for minimized hairs.

    You can actually buy this scope on Amazon pretty cheap if you get very desperate.

    hairloss-2.jpg

    see how some of the hairs i second photo are skinny and barely there?
    you can try and find this process i magnifying mirror.


    I am beginning to thin you have TE (shedding) hopefully you have this and not androgenic.
     
  7. Maasai

    Maasai Member

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    It's hard to decide which way to move forward when you don't have definitive answers.

    My hair on the top of my scalp looked more like figure 2 in mcat11's post. Lots of follicles with only 1-2 hairs in them and I could see little shorter hairs just like the ones in the picture. When I plucked them they came out really easily too.

    Good luck Sunnyday! I just started Rogaine and I hope it works for both of us.
     
    #7 Maasai, Jul 28, 2017
    Last edited: Jul 28, 2017
  8. pasbrillantebrunette

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    @Sunnyday Start rogaine (you could lose more hair in the beginning, don't freak out it means it works), and see a derm to find an appropriate oral anti androgen (or topical if oral does not suit you). Add nizoral shampoo and stemoxydine if you can afford. Do all that, trust me.
     
  9. pasbrillantebrunette

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    Same here, have you seen a derm? Go to a hair loss specialised one and ask to do MORE than just rogaine. You have to push the derms. You need an antiandrogens (oral: diane, cpa, Spironolactone) or topical if you have sides or counterindications (weight, hormonal brestcancer, thrombosis history). Don't rely only on rogaine if you have the choice to take the appropriate meds girls! And don't lose time. Don't fear things, just try them under the supervision of a professional.
    Good luck to both of you
     
    Maasai likes this.
  10. Sunnyday

    Sunnyday Member

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    Tank you girls for your replies

    @mcat : it's hard to see those small hairs in a mirror :( but am shedding tiny hairs so i know they are there ! I just hope my next doctor will have the tools to check ( it wasn't the case for my other dermatologists who were hair specialists ! ). Am thinking seriously of buying a little microscope with camera.

    @Maasai : i wanted a diagnosis before starting the rogain but am starting to think that i will never get a "proper" diagnosis. They don't do scalp biopsies here in france, they don't even have dermoscopes ! Am waiting for my nExt appointment this friday with a new doctor and am starting rogain when i get back from vacation in one month.. i am so depressed and anxious that i don't even want to go on vacation anymore! Will update . Hope rogain works for you keep us updated !

    @brunette : i will start rogain first and wait a few months before adding an anti adrogen just to see what's working and what's not.. i dont know if it's the right thing to do.
     
  11. Maasai

    Maasai Member

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    I thought about buying a microscope with a camera but one day I had my husband take pics with his iphone 7 in bright bathroom lights. It did a pretty decent job of showing my scalp hairs and follicles! I'll try to upload and send it to you by pm so you can see the photo quality yourself.
     
  12. Sunnyday

    Sunnyday Member

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    Yeah that would really help ++ thank you.
    Our stories arr very similar! I too gad TE in nov/dec 2015, thought all is good after that and recently just saw my hair in a back mirror showing too much scalp and was shocked :(
     
  13. Maasai

    Maasai Member

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    I tried sending a private message but the system said I wasn't allowed to send it. Could you check your privacy preferences to see if you're allowed to receive messages? Thanks!
     
  14. Sunnyday

    Sunnyday Member

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    Hi maasai
    I checked my settings, im allowed to start conversations. Maybe you should check your settings? I tried to send you a pm but i don't know how to!
     
  15. Maasai

    Maasai Member

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    That's strange. I sent a private message to another member recently and didn't have any issues.

    If you go to the top right corner were there's a envelop icon you can hover over it and click 'start new conversation'. Hopefully, it will work!
     
  16. Sunnyday

    Sunnyday Member

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    I can't see an envelop icon, maybe i can't send pm because am new ?! Don't know
    Can you send me an email? Sophiemar8766@outlook.fr
     
  17. pasbrillantebrunette

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    It's a good plan ;) Hopefully you will be a good responder
     
    Sunnyday likes this.
  18. Sunnyday

    Sunnyday Member

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    UPDATE

    I had my appointment with a new derma friday, he's a hair loss specialist, published several publications on alopecia and Androgenetic Alopecia so he knows his stuff.

    He told me he dosent think I have Androgenetic Alopecia, that it's just TE... my hairs diameters apparently are of the same size around my parting, there's a bit miniaturization on my temples but that's nomal and can be present independent of Androgenetic Alopecia..

    so I think that's more of a good news BUT my hair is still shedding, my hair density is getting lower and lower and i don't know why.
    Don't know if i can trust him, maybe i should but am not capable. Also he doesn't think rogain is a good idea for now! So back to square zero :(

    What do you guys think?
     
  19. jump1

    jump1 Established Member

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    I feel your frustration. I have the same. Derms telling me te. But it not stopping. I have been on regaine 56 days and the shed hasnt slowed ans there is no regrowth. When applied its easy enough to apply. However it leaves my hair anyway tangly. It feels awful. Waxy. I am.at the point were i want to stop it. My hair is getting thinner hair loss hasnt slowed down. 19 months of shedding and no one can help or fix me. Is it just your scalp hair affected? All of my hair is affected slowed sparse not regrowing ans thinner. Eyelashes the whole lot. No other stress but this. Cortisol tested 2 weeks ago and by all accounts it is fine. So cannot be stress
     
  20. Sunnyday

    Sunnyday Member

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    Hello jump

    I totally understand what you've been through!! Did you find the trigger for your TE? For me am not sure, it could be stress, bad diet or low iron. The doctors who diagnosed TE they examined your hair and scalp up close? How many hairs you lose per day?
    Am on iron and vitamins, haven't started rogain yet.. And i do have less hair elsewhere but not so flagrant i didn't notice at first. My eyebrows are thinner, my pubic hair and legs is thinner too!
    lately i've been having tiny panic attacks in the morning, am so scared :( i did beleive i have androgenetic alopecia but now am not sure of anything anymore!
     

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