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What 2.5 Years Of Te Looks Like- With Photos

Discussion in 'Tell Your Story' started by patient_flower, Jul 31, 2017.

  1. patient_flower

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    Hello ladies!
    By request I've uploaded a few photos of where I'm at.
    Good news if anyone else is going through this, you probably won't be bald at 2.5 years. So I hope that brings relief!

    My loss shows no signs of stopping and I've honestly given up all treatments now (except for good diet and vitamins.) I've been told that I have the "wrong" type of loss for a topper so I'm just waiting for the rest to fall out then I'll transfer to full coverage.



    20170731_174145.jpg 20170731_173810.jpg 20170731_173930.jpg 20170731_174228.jpg 20170731_173855.jpg
     
  2. mcat11

    mcat11 Established Member

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    Your hair loss is not bad yet at all, i would say very beginning stages. I would NOT rush to get a wig or a topper...i do not even think you need concealer yet.
     
  3. Sunnyday

    Sunnyday Member

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    Hello flower
    My hair loss looks a lot like yours only my temples are a bit worse :( my hair has thinned all over but the temples and sides are the worst. It's been 18 months for me ! The last year thought i didn't pay a lot of attention to my hair because i thought it was getting better ( i always had regrowth and i ve cut it short).
    Did you get a scalp biopsy in these 21/2 years?
    IF you have CTE you hair will get better, it could take years (from 1 to 7 years) but usually it stop and hair grow back. And the only way to differentiate between CTE and Androgenetic Alopecia is a good scalp exam and/or biopsy. Unfortunately for me they don't do biopsies in the country where i live ( france) and real hair specialists are let's say very rare. So if you have the opportunity go ahead have a biopsy it's the only wAy you'll get peace of mind
     
  4. Phoenix

    Phoenix New Member

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    I have always had thin fine hair but it was never see-through and I never felt aware of it. After a year and a half of high stress and a long recovery from a knee injury, I noticed slight hair loss to a lot of hair loss and then within six months my hair went from a slightly noticeable part to a large part much like yours. All over thinning, in fact in an overhead light you can see right through my bangs to my scalp for the first two or three inches. The hair loss has slowed but the regrowth is minimal which is the part that worries me now. What may have started as TE is perhaps now CTE or Androgenetic Alopecia but the dermatologist won't biopsy because it's "not that bad". I agree that toppers are still a ways away for you as they are for me but when I am having an insecure day I will use the hair concealer to minimize the size of my part. I have tried Rogaine - which dried my scalp and caused sores, 6mths of Spironolactone - that I just recently weened off of because of insane weight gain and muscle fatigue, and now I am trying laser therapy which will take 6 to 8 months before I wil see any results. Doctors and Dermatologists don't seem overly concerned if nothing shows on blood tests but I know how devastating it is emotionally and how it affects your life socially. I have been all consumed for the last year trying to find "the cure" after all I am sure I know part of what caused it. I am taking vitamins that make my nails and skin feel and look amazing, not sure that it is helping my hair, but 2 out of 3 isn't bad. I exercise regularly and do yoga while trying to keep my stress levels manageable. After laser therapy the only other treatment I think I can save up and afford to try would be PRP, after that I will shave my head and sport some awesome wigs. I don't think Dolly has ever had a bad wig day . Stay positive, stay strong, stay healthy.
     
  5. eggplant

    eggplant Established Member

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    Same here! Although it's weird because the intense shedding at the temples (and my hairline starting to recede) has only been for the last six months whereas the more diffuse thinning was all I had previously.
     
  6. Sunnyday

    Sunnyday Member

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    Me too in the last 4 months ! What's your diagnosis eggplant?
     
  7. eggplant

    eggplant Established Member

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    Welll ... that's the tricky part. I had a scalp biopsy near the start of the hair loss that said TE, but I'm highly skeptical because it was taken from the top of my scalp which at the time wasn't really affected yet (I have mainly diffuse loss but it started at the front and worked it's way back). Also when I read the full report it seems to have based that diagnosis off the fact that there were few vellum hairs. So I think it was just wrong place wrong time for that biopsy.

    I'm pretty sure that I hava Androgenetic Alopecia. I have the diffuse loss mainly in the crown area, and now this receding hairline business. Then again, I have had zero results from minoxidil, switching to a "hair friendly bcp" (yaz), and going up to 200 mg Spironolactone (I was already on it for years due to a condition that causes excess androgens and that may also be a factor).

    I actually have an appointment tomorrow with a specialist though so I'll provide an update.

    ETA: So I had my appointment and now that I think about it, it's weird because we never really talked about a diagnosis but I think she seemed to agree it was Androgenetic Alopecia. Sorry, that's probably not very helpful.
     
    #7 eggplant, Aug 6, 2017
    Last edited: Aug 7, 2017
    Sunnyday likes this.
  8. jump1

    jump1 Established Member

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    My hair loss after 18 months shedding is worse than yours. It can be worse. I hope that is some comfort but i know the only comfort is regrowth and no shedding. 2 derms told me 3 times i have te. Most recent 3 weeks ago. But she barely looked at my hair. Still said time to recover. I have diffuse thinnig everywhere arms underams legs pubix eyebrows head. Even the hairs on my fingers have faded. The hair all of the hair in my head individual hairs are all thinner not as thick or strong as they used to be. Not only the regrown hair but hair that hasnt shed all thinner. Individual eyebrow hair feels thinner. Regrowth is shedding too. It hasnt stopped. It hasnt slowed i wake in the morning and it falls around me. Part wider everywhere. Temples awful. Hair has no strenght. I am desperate to hear if anyone has had similar experience with the thinning of hair on the body and the quality of the hair being so thin. Dr refused to do full thyroid. I have gone private currently waiting on results. I lost a stone in a week before this started as well as month of severe stress before it. All bloods fine accoridng to dr. Ferritin is now in 70s. Was 16 for 7 months during the shedding. I am heartbroken. I wish my life was over or i could rewind time. What does this sound like to you. I am worried.
     
  9. jump1

    jump1 Established Member

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    I should have also said my hair growth has slowed down. Body hair growth sparse and takes a week or 2 weeks what would have grown in 2 days. It is weaker and thinner the regrowth. What has happened to me. I am 37.
     
  10. Joann

    Joann Moderator

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    Welcome to Her Alopecia. The 2 factors that stand out in my mind are the weight loss & severe stress. This could possibly be a TE shedwhich will correct itself if that is the case.

    I have witnessed this type of loss firsthand when my neighbour's MIL experienced it. She had been under quite a bit of stress because
    her husband was very sick. In her case the shedding was quite severe but she recovered within about 6 months and regrew all her hair.

    Here is some info I found on TE:

    Telogen Effluvium
    When your body goes through something traumatic like child birth, malnutrition, a severe infection, major surgery, or extreme stress, many of the 90 percent or so of the hair in the anagen (growing) phase or catagen (resting) phase can shift all at once into the shedding (telogen) phase. About 6 weeks to three month after the stressful event is usually when the phenomenon called telogen effluvium can begin. It is possible to lose handful of hair at time when in full-blown telogen effluvium. For most who suffer with TE complete remission is probable as long as severely stressful events can be avoided. For some women however, telogen effluvium is a mysterious chronic disorder and can persist for months or even years without any true understanding of any triggering factors or stressors.

    I'm including a picture of TE type hairloss.

    I know firsthand how heartbreaking & stressful hairloss can be as I've had hairloss from Alopecia Areata on and off since the age of 4.It's very difficult not to let it consume you but having been there & done that putting all that stress on something I had very little control over caused me unnecessary grief.

    Take care,
    Hugs, Joann
     

    Attached Files:

  11. jump1

    jump1 Established Member

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    Hi yes that looks like my hair everywhere. I have a part now. I never did before. It gets wider too as the months go by. My body hair has stopped growing nothin grows to the length it used to in the time it used to anymore. Hair eveywhere seems weaker. My shedding hasnt slowed down any. It is stillf alling as long as i touch my hair hair comes out. I have to tie it up. I cannot even put my hands on my hair without comig away with a hair. This has broken me. I am not the same person anymore. If it is te why is it still going on 19 months since the trigger. With no regrowth? I cannot understand if it is te because of weightloss amd stress why has it not fixed itself. Everything says after 6 to 9 months for weightloss it corrects itself. I have no stress since then other than this. Had cortisol measured and it is fine. So cannot be stress. My weight is steady and improved. My iron is high. What is going on?
     

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