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What happened right before your alopecia started?

Discussion in 'Women's Alopecia Areata' started by Karen, Apr 25, 2006.

  1. Karen

    Karen Guest

    Can any remember - like a pinpoint of what they were doing, what was going on in their lives when your alopecia areata started?

    I remember being stressed out a bit right before my mom was coming in for a visit - then I got the flu. I'm trying not to panic because I know we all get colds, flu, etc. but I feel those same symptoms again and I'm freaking.....and now my head is doing one of those tingle things again.
     
  2. IONLYWISH

    IONLYWISH Guest

    Hi Karen,

    I was really stressed for over three months before I found my bald spot. It was regular everyday stress - mostly my kids (specifically my 11 year old who decided to rebel against all parental authority). It was everyday normal stress, but I wasn't handling it well. I'm ashamed to say that I seemed to be yelling at my kids for every little thing. I would blow everything out of proportion. For example, when my son would forget his math book at school I would yell at him. My family doctor suggested that I see a social worker who helps people learn to handle stress. I kept her number, but I'm working on it myself for the time being. I don't ever yell at my kids anymore. I may raise my voice a little for emphasis, but I never yell. It just makes my blood pressure and pulse skyrocket. I just tell myself that it's not worth losing my hair over. I won't let it get to me.
    I also have allergic contact dermatitis that I was finally getting under control. I believe that the two combined to bring on the alopecia. Your recent move (although a happy one) was a stressful event. Even good things in life can have certain degrees of stress involved. You have said that you have made changes in your life to destress and live healthier. Has any of that changed? Also, you have a coworker with alopecia - I wonder if there could be something about your work enviroment? Try to relax, destress, and know that we are here for you. None of us know what tommorow will bring, we can only do our best to take care of ourselves and pray. I know that you will be fine. You, Joann, and Kimby (along with others) have and continue to inspire me.
    God Bless, Twins
     
  3. Sissy

    Sissy Guest

    Karen, I already told you that I think that it is the cortizone that you got 4 weeks ago. This is the time when it starts kicking in and you know all of this but because your not feeling well you are getting paranoid and I wish you wouldn't. Just get some rest and enjoy NOT NEEDING YOUR WIG ANYMORE :!: :!:

    Twins, am I right in that you have Alopecia Areata as well as Karen and I? I went to the derm yesterday expecting to get 4 shots but he said that it would be more effective to give me one shot in the rear of a stronger steriod. I am going back in a month for another shot and then possibly a third in another month. He said that in doing this it turns off the Alopecia Areata but he can't say if or when it will turn back on. It could be 6 mo, 1 yr or never! Everyone is different ya know. Eventhough my Alopecia Areata is more mild in nature, I still have had it for 10 years and I doubt it if it never turns on again but to go 6 mos to a year without Alopecia Areata would be incredible! When it shuts off and all of my hair has grown back, the game plan is to treat immediately a new forming spot with either a shot directly into the spot or applying the cort cream on the spot. Are you having any luck with that cream?

    Sissy
     
  4. IONLYWISH

    IONLYWISH Guest

    Sissy,
    Yes, unfortunately I do have Alopecia Areata. I have one large spot on my neck. I have to wear my hair down so that it is hidden. I have been getting cortizone shots since about 2 minutes after my diagnosis. The shots seem to make a difference, but I can't tell if the ointment is helping or not. I promised myself and God that I would do all that I can to help myself with this disease and then the rest I put into His hands.
    Good Luck,
    Twins
     
  5. Guest

    Guest Guest

    So Twin, how long have you had it and when you have a bald spot does it fill in and then another one forms? Or do you have spots and are still waiting for them to fill?
     
  6. Sissy

    Sissy Guest

    Sorry, Twins that was me. I forgot to log on.

    Sissy
     
  7. IONLYWISH

    IONLYWISH Guest

    Hi Guest,
    First, welcome to the boards. I found my spot right before Christmas and was diagnosed on Jan. 4th. I received my first cortizone injections then and just last week had my 5th set of injections. It is one large spot and I do have a little regrowth. I pray everyday that I don't lose any more patches of hair.
    Twins
     
  8. Joann

    Joann Moderator

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    ((((Hi Girls)))) :)

    I'm really not sure why my Alopecia Areata flared up at 40 after being in spontaneous remission for about 20 years.

    At the time my children were very young , my mom was having a depression and my mother-in-law needed bypass surgery. So yes I was stressed.

    However if stress was a trigger for me then why didn't my Alopecia Areata flare up when I had severe post partum depression and my father-in-law was dying of cancer?

    I felt my trigger was being peri -menopausal. I had never lost brows and lashes in all my years of dealing with Alopecia Areata until this last bout either.

    When I voiced this opinion to my doctor and then my derm they just shrugged it off.

    Karen, the fear of losing hair again after regrowth is something that we can all relate to but it doesn't mean that it will be so. I used to get that feeling both when my hair was falling out and when it was growing back. I know of quite a few others who experience it with regrowth too.

    As Sissy said you have had the injections recently so that feeling is probably because of regrowth. :)

    Sissy, in case your derm didn't tell you, the stronger steroid given in your bottom goes right through your bloodstream. For this reason, the injections in the scalp, which pretty much do the same thing ,only slower are considered to be safer because there is less risk of side effects.

    The bottom line is that there is no cure available at this time which puts the Alopecia Areata into permanent remissison. You want to be very careful that the treatments you are trying have minimal side effects.

    Take care everyone. Hugs Joann
     
  9. maisydaisy

    maisydaisy Guest

    When I first got Alopecia Areata I had:

    a. dramatically broken up with my boyfriend of 4 yrs (now my husband) about 3 months earlier

    b. recently finished a very stressful student teaching experience (I cried everyday when I got home)

    c. just graduated college

    d. dramatically reunited with my boyfriend of 4 yrs and had to decide whether to move 1,000 miles from home to marry him and become a military wife or take a really good teaching job in Kansas City where I knew no one and was 5 hours from any relatives/friends

    I eventually chose to take the job and see how a long-distance relationship with my boyfriend (now husband) went for a year. The stress of being a first-year teacher and 1,000 miles away from the guy who quickly became my fiance made my hair situation deteriorate rapidly.

    Guess I shoulda seen it coming :wink:
     
  10. Karen

    Karen Guest

    Thanks for all your replies.

    Twins, you really put some perspective back. I've been so busy with the move and running back and forth between houses - I've been eating on the run again (gosh I hate that), have not been doing my yoga or aerobics. Ok, I flunked! And pulled my kid out of CVS tonight because he wanted a toy - when I tried to explain to my Josh monster, I just bought him a new pair of tennis shoes and added a toy just last night, it just brought on a worse temper tantrum - instead of counting or breathing, I actually pulled him out of the store and threw him into the car. Yikes, has anyone gone through this ???

    Sissy and Joann - your both probably right. That tingly feeling is probably the results of the shots. I just panic when I feel a cold coming on or getting sick in any way.

    I guess the worst of this is living with the fear that I might lose my hair again. I try really hard not to think like this but it seems its always in the back of my mind.

    Maisy - we all never saw it coming. That's why it's such a shock to us. It's like the shoulda woulda coulda syndrome. I think each one of us would have done things differently had we known.
     
  11. Joann

    Joann Moderator

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    Hi Karen,

    My middle son was the absolute worst for tantrums!!! He would lay down on the floor in the store and refuse to get up. I would have to carry him out and even though he was only 3 he was a big child and so heavy. :shock:

    I guess kids think that if they embarass you enough you will give in to their demands.

    I think that fear of losing hair again will ease up as time goes along.

    Take care. Hugs. Joann
     
  12. IONLYWISH

    IONLYWISH Guest

    Funny how the tables turn. My oldest son would occasionally embarrass me out in public, but I get the last laugh! He will be twelve next month and everything I do embarrasses him! Once he gets over that (in about 4 or 5 years) then it will be his siblings turn to embarrass him. They are seven years younger than my oldest and I am sure they will think of some real doozies when he brings home a date. Makes me smile already.
    Twins
     
  13. New Girl

    New Girl Guest

    What my life was like right before I found my first bald spot was:

    Have 4 kids, 10, 7 and 2 1/2 twins boys, that in itself is hell most days

    I was in a job where I was the only one who could do about a 1,000 things and I worked from morning till night and hated 90% of the people I worked with.

    I never slept from all the stress.

    That was back in Oct 05. I got a new job in the end of Dec 05 and stress wise I am doing 150% better and hopefully this will help my Alopecia Areata. :D Who knows. I guess I cant complain I have read posts where they were completely bald with in a few months of discovering the first spot. :(
     
  14. kathy

    kathy Guest

    I had my first bald spot on the top of my head. Dec, 2004. By march all my hair was gone. What I can remember is my ex- husband a you no what !!. And still is. He was stressing me out so bad and working very hard to do this.
    We have not been together for 6 years my son was 2 when I left his father. I think all the stress did this to me. This past year has been better and I don't let him bother me any more. If there is a God he will help me and put his father in his place. There will always be stress in my life but I put my mind to it that I will try not to let the little things bother me anymore. I would love to hear other womens stories how they got Alopecia Areata. Maybe it's not stress. I would like to find out why this is happening to so many of us. And how it can just happen over night. I'm very thankful that there is nothing else wrong with me as far as I no, it could be a lot worse.
    Take Care, Kathy
     
  15. singa_ess

    singa_ess Guest

    Triggering my Alopecia Areata?

    I'm 28 and was diagnosed with an Alopecia Areata spot 2 years ago, about a year after I started graduate school. Do I feel stressed? Sure, but I have been a broke student for my ENTIRE life, my stress level is always high. On the other hand, I am pretty good at dealing with stress (exercise, baths, quite time, and socializing with friends). Around the time my Alopecia Areata started I also met the love of my life, shouldn't that cancel out the school stress??

    Is stress the trigger for Alopecia Areata???? Maybe, maybe not. I think it is a moot point. Stress can (and is) be correlated to a ridiculous amount of conditions solely because we lead very stressful lives and really there is no way to avoid it. I think auto-immune diseases like Alopecia Areata are diseases of civilization (like cavities, obesity, heart disease, many cancers, allergies, etc). We are getting sick not because of our lifestyle, but because of the lifestyle of homo sapiens in the 21st century. There really isn't a lot to be done other than what we already do: adapt.

    Oddly enough, I am a scientist who studies hormones and stress in other animals, so obviously I think about this issue A LOT!

    SO: Live your life as healthy as possible for mind and body, not for your hair, but for all of you. But don't panic about things out of your control (flu, job stress, whatever), and don't avoid enjoyable things b/c you think it might affect your hair.

    My 2 Cents
     
  16. Guest

    Guest Guest

  17. IONLYWISH

    IONLYWISH Guest

    What does this refer to? There is nothing in that post that recommends anything to anyone. It was just a response to Sissy who forgot to log in and I responded before I saw her correction. You lost me on this one.
    Twins
     
  18. redclaire

    redclaire Guest

    It's a spammer, notice it's little linky poo at the bottom.
    Loser spammers. They're taking up all the good spots in Hell and I was promissed a room with a view.
     
  19. IONLYWISH

    IONLYWISH Guest

    Hi Redclair,
    I noticed the casino garbage at the bottom, but I don't get why they would quote me. I know I'm not very computer savy, but that is just weird. I would think they could make better use of their time.
    Twins
     
  20. redclaire

    redclaire Guest

    You'd think. But they have no lives and the best they can get is to get a rise off of a board. Very sad. And it may only get worse, as school is out very very soon.
     

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