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What I Wish I Knew A Year Ago... Mthfr+autoimmune+anxiety=hot Mess

Discussion in 'Women's General Hair Loss Discussions' started by Frustrated, Dec 11, 2018.

  1. Frustrated

    Frustrated Member

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    I am not sure if there's hope for us. I'm trying to just adjust to "well this is my new hairline"... it's very hard. I have a widow's peak that seems to be thinner and thinner, and everytime i wash my hair the scalp kind of peels there :( i think if there is hope it's time and resetting my system and scalp to what it was before the medicated shampoos and the supplements. And leaving it alone lol!! I've tried to stop staring for growth, so I'm not sure about my regrowth. I stopped dying about seven months ago and just stopped having scalp pain entirely with no recurrence about six weeks ago. So im hopeful this is a good sign but who knows anymore?!
    I'm done messing with supplements. I'm going to leave it alone and see what the next few months brings! Stick with my every other day washing and clips. And try to keep my hands off of it :)
    Spring gives me sunshine so my vitamin d should rise soon. Hoping that helps too.
     
  2. TinaM1968

    TinaM1968 Established Member

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    I use to have the scalp pain too. I think a lot of it was stress it stopped about a year ago and the minute I stress it starts but thankfully I haven’t had that i a very long time. Trying to accept thing is hard just when u think you can live with it it gets worse like overnight. I have the widow peak thing too one spot right up front I’m hoping my body resets as well and maybe just maybe I have have a semi normal life again. Just to look normal and be able to pull my hair back again would be nice. My d is low too but I refuse to supplement any more I also think other people’s “optimal” levels aren’t ours my ferrrin was low 5 years ago so I worked at bringing it up everyone said that was the problem well no I don’t take iron anymore for over a year and now my ferrrin is 195! And I can’t seem to get it down. I hate drs I blame a lot of this on them
     
  3. Frustrated

    Frustrated Member

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    Agreed about the doctors! You're also the only person with hairloss like mine so we obviously don't have a "common" type. And when i say i can't take their pills they think I'm either crazy or full of it. And that's all they have to offer. I feel frequently like if i could figure out why i could solve it. I've spent two years trying to figure out that why. No answers. From taking with you sounds like the mthfr is a primary problem here. Now just have to figure out how to fix that lol!!!!
     
  4. TinaM1968

    TinaM1968 Established Member

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    Wanna hear something coincidental? My husband started looking hair about the same time it did. I always thought that was strange. He is in denial lol or just doesn’t care. He’s a couple years older then me and losing hair all over etc his stopped growing too. His use to grow super fast and curl at the ends. Not any longer doesn’t look mpb either. But since he doesn’t care I guess there no way to compare any tests to see if we have something in common. I also know sugar is an enemy for hair too I now started watching and reading labels for hidden sugars
     
  5. TinaM1968

    TinaM1968 Established Member

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    Yes I swear you and I are identical! I’ve searched so long for someone like me and there is NO ONE. Tired of hearing from everyone it’s in my head and pushing more supplements. I told them I react differently them normal people. One naturopath said oh the mthfr gene only effect b vitamins. No it effect how you body detoxes and absorbs and process things. I checked into the mthfr gene omg it’s comlicated! Hard to understand it all but I did gather that much
     
  6. TinaM1968

    TinaM1968 Established Member

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    In my research of the mthfr mutation and it’s connection, they all said it has no impact on hair. I don t believe that anymore. I did find someone but she did have the bad one like us she had 1277? Or something like that any way she had temple loss but also had hashi and on thyroid meds since she was young but she was able to regrow her temples but that’s where the similarities in our hairloss ended. She didn’t have the “bangs short non growing fringe” at the temple and front or breakage. But maybe there is hope if we can figure out what is causing our issues. Did u happen to see the pictures I posted of my hair last week showing the “bangs” just was wondering if your looked like that
     
    #46 TinaM1968, Mar 16, 2019
    Last edited: Mar 17, 2019
  7. Frustrated

    Frustrated Member

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    I didn't see your pics Tina and I can't seem to find them! Where did you post?
     
  8. TinaM1968

    TinaM1968 Established Member

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    YeS that’s like mine. Mine looks worse then your but I’ve been longer in my journey then you. For me I started noticing the “bangs” about 3 years ago, and I get the deleting it. I deleted mine too from here I just hate seeing it in pictures
     
  9. lostforwords

    lostforwords New Member

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    Hey frustrated!
    I was reading your whole story and I felt as if I was reading my own! I've been down every path and road with the vitamins that cause me to shed, certain foods...Wheat, Almonds and bluberries to name a few. I went to promethease and low and behold I have the Mthfr gene 2x as well. Wtf??? lol
    I just wanted to let you know that you are not alone...hugs xoxoxo
     
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  10. Frustrated

    Frustrated Member

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    Crazy isn't it? Very hard to explain to doctors, etc. "I can't methylate" and "vitamins make my hair fall out" lol! I wish more research was done on this connection, for sure there is one. Just here on this board there are 3 of us and this is a small sampling!
     
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  11. TinaM1968

    TinaM1968 Established Member

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    So hard to get help isn’t it? Even my husband just can’t understand I can’t take vitamins like others. He would always just say take a multi I try now to take nothing but it’s hard to get what we need once we are depleted from just diet
     

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